Post

LymeScience
@lymescience.org

Yale undergraduate Mateo Ramírez-Valentini writes about families who travel long distances for experimental treatments. He focuses on how some of these treatments are scams or over-hyped. One Argentinean family raised $350k after being enticed by notorious cancer quack Stanislaw Burzynski.

yaleglobalhealthreview.comMigrating for a Miracle: The Geographic Divide in Rare Cancer TreatmentsBY MATEO RAMÍREZ-VALENTINI Medical Migration in Rare Pediatric Cancers In 2021, an eight-year-old girl named Delfi Bollo traveled from Córdoba, Argentina to Houston, Texas, seeking a treatment that…

6 reposts10 likes

bernardo issel
@bernardoissel.bsky.social

You catch my reply to an old skeet of yours about BALF? Perhaps didn't warrant respons, but just in case got lost in notifcation deluge -- here this skeet. Thanks for all your work highlighting medical quackery.

LymeScience
@lymescience.org

Mateo's family hosted the Argentinean family

LymeScience@lymescience.org

"The [Burzynski] clinic offered Delfi an experimental treatment called antineoplastons, a drug that has never been approved by the FDA. Yet it provided almost no support in managing her care. My mother and I spent nights transcribing hour-long voicemails from her doctors because no one else would."