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1) Trigger warning: suicide This paper analyzed 505 entries on the National CFIDS Foundation memorial list. These were people with ME/CFS who passed away. The messages summarize their life, illness and struggles. The researchers grouped these into several recurring themes.

3) Dismissal by healthcare providers was another theme, causing some to avoid medical care: “Her experiences with physicians who dismissed her complaints made her avoid them as much as possible and she was taken to a hospital by ambulance only when her pain became unbearable"

4) Patients were told that the illness was all in their head and some doctors were not willing to prescribe the necessary pain medication. Some said that medications or treatment with graded exercise therapy worsened their condition.

5) Another recurring theme is isolation by the illness. Some were "confined to one room and could not tolerate noise or light." Others saw a breakdown of social relationships such as a divorce, loss of friends, getting fired at work, etc.