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She said since the changes there had been situations where he has been unable to have his catheter or stoma changed, which also impacted his quality of life. "It impacts his dignity, and it impacts the small moments of independence that he can have," she said.

abc.net.auFamily fears there will be deaths as NDIS changes hit close to homeShane Danes's family have dedicated their lives to keeping him in his home and out of aged care, but they do not know how much longer they can keep it up.

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