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It’s understandable when parents new to autism to look to other parents for help. But it’s also crucial for those parents to understand that autistic adults are not the enemy. 8/

Like the leaders of any other community your child belongs to but you do not, autistic and disability advocates have beneficial insights and learned wisdom that non-autistic parents simply cannot provide (and that, as a bonus, research supports). journals.sagepub.com/doi/10.1177/... 9/

My mostly non-speaking autistic son has become several magnitudes happier, and my own parenting experience has become significantly less fraught, thanks to autistic guidance. www.washingtonpost.com/lifestyle/20... 10/

My autistic son’s disabilities require full-time support, which means he and I live the very lives autism grievance parents tend to portray as horror shows. Please know that I would never deny how challenging things can be for families like ours. 11/

Accessing the supports my autistic son needs can be brutally difficult, especially as he and his peers transition into adulthood. But unlike autism grievance parents, I believe my son deserves respect and understanding—not grievance parents’ relentless exploitation of their children as burdens. 12/

You can clock such parents when they reject insights & advocacy from autistic communities—insisting autistic adults “despise parents of autistic kids,” while invoking Trumpian egocentrism, claiming it’s them who “have been at the forefront of […] improving the lives of those disabled by autism.” 13/

Autism grievance parents also often claim that they need to “be their children’s voices.” These stances are troublingly out of sync with rights- and services-focused developmental disability organizations, as well as a worrying denial of their children’s communication capabilities. 14/

As autistic advocate Julia Bascom @juststimming.bsky.social reminds us, “There are no voiceless people. There are plenty of people who are spoken over, ignored, or not given an accessible way to communicate.” autisticadvocacy.org/2021/01/tran... 15/

Note that autism grievance parents are often pro-vax but some—for instance the NCSA’s Jill Escher—happily take smiling photos with dangerous anti-vaxxer Robert F. Kennedy Jr. Grievance parents can be more concerned with furthering their anti-autism agenda than protecting public health, it seems. 16/

Autism grievance parents head autism organizations often wrongly perceived by autism advocacy outsiders as useful, including Escher’s National Council on Severe Autism (NCSA), Alison Singer’s Autism Science Foundation (ASF), and The Profound Autism Alliance. 17/

Instead of partnering with autistic and disability orgs, autism grievance parent efforts tend to be obstructive—including hyperbolic negativity about autism issues, and asking RFK Jr. to declare the “autism epidemic” (there is no autism epidemic) a public health emergency. 18/

Autism grievance parents are MAGA-like in aggressive hypocrisy & spin. Typically wealthy, connected parents who sit on multiple boards & head foundations, they claim to be bullied by #neurodiversity & autism advocates (i.e., by systematically marginalized & largely impoverished disabled people). 19/

Autism grievance parents are thumb-on-the-scale influencers in autism policy and research—yet take advantage of entrenched negative attitudes about disability and their status as parents of high-support autistic children to appear like typical Davids, and avoid being outed as elite Goliaths. 20/

Consider how grievance parents hijacked a Lancet commission on strategies for improving autistic lives to promote a “profound autism” label. “Profound autism” then became the focus of the commission’s media coverage, even though many spoke out about the functional inappropriateness of the term. 21/

Critics noted that “Profound autism” oversimplifies support needs, dismisses abilities, reinforces segregation, & is superfluous (the DSM already has level 1, 2 & 3 autism support needs). In response, grievance parents relaunched their campaign—this time with opinion pieces bemoaning censorship. 22/

Another MAGA-like autism grievance parent strategy is to solicit pity (for themselves, not their autistic children) by constantly violating their disabled children’s privacy in the name of “honesty.” (I will not compound their missteps by linking to an example.) 23/

Yet when disability researchers and policy makers suggest perhaps talking about autistic people with respect, and about disabilities with neutrality, autism grievance parents campaigned at the highest policy levels for their “right” to use demeaning language about their own disabled children. 24/

When autistic people describe autism as meaning strengths as well as disabilities, autism grievance parents claim that they are being ridiculed for not talking about autism as a “gift.” autisticadvocacy.org/about-asan/ 25/

Autism grievance parents also ape MAGA’s strategy of claiming to represent a wider underserved (autism) community, while in actuality working against the interests of autistic people and families who lack grievance parents’ class advantages, or who have trouble accessing public benefits. 26/

This disconnected entitlement is—possibly—why, while autistics themselves beg for increased quality of life & policy, autism grievance parents endorse cure-based or self-funded autism causation research, & advocate for institutionalizations & against best-practices community housing policy. 27/

Social media algorithms that harness negativity to increase views allow autism grievance parents to create echo chambers of indignation, with followers who don’t bother to fact check before sharing. 29/

In autism grievance parent forums, parents encounter absurdities like framing the autistic-led @autisticadvocacy.org as a social media troll factory—when the briefest scan of ASAN’s site shows constant high level, actively accessible policy & outreach in support of marginalized autistic people. 29/

Like MAGA disinformationalists, autism grievance parents manipulate their followers’ emotions, keeping them too angry to think critically. 30/