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As harmful autism disinformation campaigns go, grievance parents‘ attempt to break off “ #profoundAutism” as a separate diagnosis via smearing #neurodiversity advocates is notable—mostly for its spitefulness. Select observations by @embergreen.bsky.social: thinkingautismguide.com/2026/03/debu... 1/

"I want to talk about and to parents. Parents of autistic kids who might be getting manipulated by very persuasive arguments into fearing and distrusting a movement [ #neurodiversity] which is actually there to help." 2/

"I was looking into a report that RFK Jr. was citing, and I noticed this one study that he claims supports his argument—and I was surprised to see that one of the listed authors was Alison Singer. Alison Singer of course, of Autism Every Day fame." CN: filicide youtu.be/C7NTfZzS9b8?... 3/

"So who is Alison, & why does the mention of her name get me so wound up?" [Singer has/held pivotal roles with the IACC, Autism Speaks, & the Autism Science Foundation.] "She’s got some fingers in some pies, then. This is not a person who is coming across as powerless or silenced or anything." 4/

"Alison gained a lot of praise for not being anti-vax & for quitting Autism Speaks for pursuing research to that end. 'A voice for science,' she was called. By Nature no less. (To be clear, Alison is not a scientist—nor does she have a background in science. Her qualification is business admin.)" 5/

"If you’ve heard of Alison it might be because you’ve seen a short film called Autism Every Day in which she discusses when she felt desperate enough to drive her car off a bridge with herself and her autistic daughter inside it. I’ve spoken about this before because it upsets me a great deal." 6/

"Alison has responded to the criticism saying that if she made the film again, she would try to be clearer in what she meant saying, 'I certainly did not mean to offend anyone or suggest that Jodie’s life or anyone else’s was not valued.'” 7/

The reason why that clip upsets me so very much is not because it’s a mother describing a brief fleeting moment of hitting rock bottom, of having a thought that probably made her feel like the worst person to ever exist. No, I can actually empathize with that. 9/

I was so upset because she articulated this so casually right in front of her young daughter, entirely in the assumption that [her daughter] did not understand what was being said, and I don’t claim to know what Jodie did or did not understand. 10/

But to broadcast this as a part of autism advocacy, parents talking so candidly right in front of their very young kids—who by the way, might be taking things a little bit more literally than their parents intend—it normalizes the idea that autistic kids just aren’t listening, don’t understand. 11/