Post

Elana Levin
@levin.bsky.social

Don't give up! There are RX meds that help a lot of people manage symptoms and you deserve to try them to see if they help you. If your doctor only gaslights it may be worth trying🧵

Solve M.E.@solveme.bsky.social

Myth #6: Doctors cannot help people with ME/CFS. ❌ There are no FDA-approved treatments yet, but doctors can help manage symptoms like poor sleep, pain, and heart issues. Swipe to see what the science shows. ➡️ Part 6 of our six-part Myth vs. Fact series. #MECFS

Elana Levin
@levin.bsky.social

a local long covid clinic (some of those are bad too and some of them have wait lists for years but get on the list and see). An integrating care, post viral illness specialist, chronic pain doc or rhematologist might be willing to try prescribing you one of the common LC meds for symptoms.

Elana Levin
@levin.bsky.social

a friend w LC had scary bad chest pain. a standard pericarditus med stoped her pain (and may have saved her heart). IDK if her test results showed she had the issue but the treatment worked regardless. Don't let them dismiss you out of hand. (or at least try to get treatment).

Elana Levin
@levin.bsky.social

the fact that there is no cure doesnt mean there's nothing to be done. And the thing is with an energy limiting illness it is so much harder to find specilty help because you feel like shit. Friends: step the fuck up. Help people. Make someone dinner so they search for a specialist online.

0 reposts4 likes

Elana Levin
@levin.bsky.social

Oh, and I forgot to mention the absolutely vital patient communities online for LC. These are private. If this is something that you need, let me know in a DM and I can share information with you