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2) Food insecurity was defined as ‘sometimes’ or ‘never’ being able to afford to eat properly, or ‘sometimes’ or ‘always’ having food run out, eating less, eating less variety due to cost, relying on others for food or using food grants/banks.

3) Food insecurity was more common in young people and increased with illness severity, but among the very severe, it was actually lower (potentially due to higher support and provision in this group).

4) Financial hardship was one reason for food insecurity, as only 7% of the respondents were able to work full-time. Patients described how they had to reduce spending on food because of their medical expenses: "I have to balance my grocery shopping with my health bills."