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1) An overview of positive developments in ME/CFS research 👇 The European Union awarded €7.5 to a ME/CFS consortium that will conduct multi-omics and test biomarkers in hundreds of patients. It will connect and harmonize five biobanks across the continent. bsky.app/profile/mecf...

ME/CFS Science@mecfsscience.org

1) 🇪🇺 Good news! The European Union has awarded € 7.5 million for a big ME/CFS consortium that will study biological mechanisms in hundreds of patients. This is a major milestone for ME/CFS research in Europe.

2) In the UK, the government invested £4.75 million in SequenceME. It will measure the whole genome of thousands ME/CFS patients in high resolution so that rare mutations can be found. bsky.app/profile/mecf...

ME/CFS Science@mecfsscience.org

1) In this interview with David Tuller, Prof. Chris Ponting gave more info about the SequenceME & Long Covid project that received £4.75 million from the UK government. It will measure the whole genome of ME/CFS patients in high resolution so that rare mutations can be found.

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3) The WE&ME Foundation launched an ambitious grant program that was co-developed by members of the Science for ME forum. It aims to fund 7 projects with a budget of €120,000-180,000 per project. bsky.app/profile/mecf...

ME/CFS Science@mecfsscience.org

1) The WE&ME Foundation has launched a major international call for ME/CFS research in collaboration with the Science for ME forum. It aims to fund 7 projects with a budget of €120,000-180,000 per project. The stage 1, short proposal, deadline is 25 August 2026.

4) In Norway, the research team of Fluge & Mella is proceeding with ResetME-study: a randomized trial of the cancer drug daratumumab with funding for the Norwegian ME Association. A pilot trial already showed positive results bsky.app/profile/mecf...

ME/CFS Science@mecfsscience.org

1) The pilot results (n = 10) for the Daratumumab trial on ME/CFS have been published and they look quite encouraging. Tolerability and feasibility were good and some patients had substantial improvements.

5) The German government has launched the ‘Decade against post-infectious diseases’. They plan to spend € 500 million in research on ME/CFS and Long Covid. bsky.app/profile/mecf...

ME/CFS Science@mecfsscience.org

1) 🇩🇪 Some really good news! Germany plans to invest half a billion euros in research on diseases such as ME/CFS and Long Covid. They are calling it "The National Decade Against Post-Infectious Diseases"

6) The Netherlands has already launched its ME/CFS research program with a budget of €32.9 million. It includes biobanks and a collaboration with the brain bank to collect and investigate human brain tissue. bsky.app/profile/mecf...

ME/CFS Science@mecfsscience.org

1) 🇳🇱 The Dutch research agency ZonMw announced € 1.5 million in funding for 4 new Long Covid studies. It includes a project by Dr. Rob Wüst that will investigate physical changes (muscle, blood, autonomic function) in people with severe Long Covid who are homebound.