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ME/CFS Science
@mecfsscience.org

1) An overview of positive developments in ME/CFS research 👇 The European Union awarded €7.5 to a ME/CFS consortium that will conduct multi-omics and test biomarkers in hundreds of patients. It will connect and harmonize five biobanks across the continent. bsky.app/profile/mecf...

ME/CFS Science@mecfsscience.org

1) 🇪🇺 Good news! The European Union has awarded € 7.5 million for a big ME/CFS consortium that will study biological mechanisms in hundreds of patients. This is a major milestone for ME/CFS research in Europe.

ME/CFS Science
@mecfsscience.org

2) In the UK, the government invested £4.75 million in SequenceME. It will measure the whole genome of thousands ME/CFS patients in high resolution so that rare mutations can be found. bsky.app/profile/mecf...

ME/CFS Science@mecfsscience.org

1) In this interview with David Tuller, Prof. Chris Ponting gave more info about the SequenceME & Long Covid project that received £4.75 million from the UK government. It will measure the whole genome of ME/CFS patients in high resolution so that rare mutations can be found.

ME/CFS Science
@mecfsscience.org

3) The WE&ME Foundation launched an ambitious grant program that was co-developed by members of the Science for ME forum. It aims to fund 7 projects with a budget of €120,000-180,000 per project. bsky.app/profile/mecf...

ME/CFS Science@mecfsscience.org

1) The WE&ME Foundation has launched a major international call for ME/CFS research in collaboration with the Science for ME forum. It aims to fund 7 projects with a budget of €120,000-180,000 per project. The stage 1, short proposal, deadline is 25 August 2026.

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ME/CFS Science
@mecfsscience.org

4) In Norway, the research team of Fluge & Mella is proceeding with ResetME-study: a randomized trial of the cancer drug daratumumab with funding for the Norwegian ME Association. A pilot trial already showed positive results bsky.app/profile/mecf...

ME/CFS Science@mecfsscience.org

1) The pilot results (n = 10) for the Daratumumab trial on ME/CFS have been published and they look quite encouraging. Tolerability and feasibility were good and some patients had substantial improvements.

ME/CFS Science
@mecfsscience.org

5) The German government has launched the ‘Decade against post-infectious diseases’. They plan to spend € 500 million in research on ME/CFS and Long Covid. bsky.app/profile/mecf...

ME/CFS Science@mecfsscience.org

1) 🇩🇪 Some really good news! Germany plans to invest half a billion euros in research on diseases such as ME/CFS and Long Covid. They are calling it "The National Decade Against Post-Infectious Diseases"

ME/CFS Science
@mecfsscience.org

6) The Netherlands has already launched its ME/CFS research program with a budget of €32.9 million. It includes biobanks and a collaboration with the brain bank to collect and investigate human brain tissue. bsky.app/profile/mecf...

ME/CFS Science@mecfsscience.org

1) 🇳🇱 The Dutch research agency ZonMw announced € 1.5 million in funding for 4 new Long Covid studies. It includes a project by Dr. Rob Wüst that will investigate physical changes (muscle, blood, autonomic function) in people with severe Long Covid who are homebound.

ME/CFS Science
@mecfsscience.org

7) Less is happening in the US but there was a 3 million NIH grant for the research team of Nancy Klimas and Luboc Nathanson and in Florida. It will investigate exposure to toxic mold and its impact on the immune system of ME/CFS patients. bsky.app/profile/mecf...

ME/CFS Science@mecfsscience.org

1) 🇺🇸 The Research team of Nancy Klimas in Florida has received a $ 3 million grant from the National Institutes of Health (NIH). Their study will investigate whether exposure to toxic mold affects symptom severity and the immune system in ME/CFS patients.