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I pretend to not have seizures. I shake, my vision splits, my neurons have their rave party, but I don’t want anyone to know. And if I get incapacitated, I APOLOGIZE to the person who can no longer speak to me! “I’m sorry that I’m going through hell right now.” Every goddamn time.

I was wondering why. – I feel guilty for not taking better care of myself. – I don’t want to alarm people because they always think they should be doing something. – Memory loss makes me very vulnerable. If inapacitated I have no idea what just happened, so I’m apologizing just in case.

When I put it like that, I guess acting this way makes sense. Before s standup show I explained that if I get a seizure someone should help me off the stage, and that conversation lasted for a very long time, I thought it would be straightforward. Epilepsy is incomprehensible to scientists too.

People like to ask a lot about epilepsy, but then that subject takes over the entire conversation, and afterwards it doesn’t feel like anyone is better infomed, but rather like they didn’t really want to know all of that. So I just feel more alone.

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