Kerry L. Wong 🦋 Float Like a Buttahfly

Vacation Mode: ACTIVATED! I've scheduled a few posts over the next few weeks, but if you reach out and I don't respond, please don't take it personally. I'll get back to you when I return (and recover)! 🦋

Olivia: Next in my "it's okay to..." series. "Your feelings of grief, loss, anger, frustration and sadness are all valid. It's okay if you're struggling right now, these are difficult times we're living in 🩵" H/T: @o-bel.bsky.social

The research is about US! 🔬 Our patient leaders are heading to #ACR26 in Orlando, Nov. 6–11, bringing rheumatology research home through daily patient-friendly video updates. Join us FREE & virtually! 👉 bit.ly/GWUACR26 #GoWithUs #AiArthritis

I’ll be co-hosting the November episode of the @ifaiarthritis.bsky.social podcast w/ Leila P.L. Valete, @chroniceileen, and James Hollens. We'll be talking about the recent term "sickfluencer" and how it impacts real patients. 🦋 aiarthritis.org/podcast #aiarthritis #ChronicIllness #PatientAdvocacy

The #OOTD Walk was this morning, always a beautiful, emotional event. Always remember: you are not alone, and there is hope. #Suicide and Crisis Lifeline: 988 Crisis Text Line: 741-741. There's still time to support the cause and help #StopSuicide! 🦋 afspwalks.donordrive.com/participants...

ADAM JOHNSON: “The raid on @repilhan’s home has thus far received zero of the above media interventions. No editorials, no opinion columns in the Times, Post, or Journal…” theintercept.com/2026/10/15/i...

Woohoo!!! Congratulations to all, but especially my girl Nastier🗽! 🦋 #WNBA🏀 #NYLiberty🗽

Just a few more days till the @afspnational.bsky.social Out of the Darkness Walk! Here's why it's so important to me, along with some facts & resources. If you'd like to make a donation, please visit afspwalks.donordrive.com/participants/buttahflyk 🦋 #MentalHealthMatters #OOTD #StopSuicide #988

I am not a "sickfluencer." The term makes me cringe, and the recent article made me fume. I'm looking forward to joining this conversation, and we'd love to hear your thoughts. *Stay tuned for a column about this next week, too! 🦋 #ChronicIllness #PatientAdvocate #PatientExperience #SpoonieSky

{Alt text: white text on black background: in english we say "i'm tired" but in poetry we say: i have been holding up entire skies with hand that were only ever meant to hold flowers -sophia bray 🦋 #ChronicIllness #fatigue #ChronicFatigue #SpoonieSky

Go Bills!! 🦋

This is a dance off. If you see this post a dance! (This one can't be reduced to a GIF, though. You're welcome. 😘) 🦋 youtu.be/jPCJIB1f7jk?...

🌎 October 12 is World Arthritis Day! Arthritis isn't one disease! Unlike osteoarthritis, AiArthritis diseases involve immune dysfunction and can affect the whole body—not just joints. 💬 What do you wish others understood? #WorldArthritisDay #AiArthritis #Autoimmune #Autoinflammatory

Finished before midnight, so it counts!😉 It's so much more than joint pain: Taking a look under the #arthritis umbrella for #WorldArthritisDay 🦋 @ifaiarthritis.bsky.social #arthritis #AiArthritis #ChronicIlIness #fibromyalgia #RA #sarcoidosis #osteoarthritis #SpoonieSky

Sometimes, there really is the perfect shirt for the occasion. 🦋 #ChronicIllness #ChronicPain #PainManagement #SpoonieSky #WorldArthritisDay

How cool! I received an anonymous donation on my @afspnational.bsky.social fundraising page! Whoever you are, THANK YOU!!! (And if anyone else wants to support the cause, here's the link) afspwalks.donordrive.com/participants... 🦋 #StopSuicide #MentalHealthMatters #AFSP #OOTD

Green Minds is looking for U.S. adults with #AcutePain who have received prescription treatment in the past 12 months. ⏱️ 60-minute online interview 💸 $100 For info, contact: urwa.abrar@greenmindsinsights.com To apply, visit: forms.cloud.microsoft/Pages/Respon... 🦋 #AcutePain #PatientExperience

The @afspnational.bsky.social Out of the Darkness Walk is just one week away, and I'd love to have your support! No donation is too small to make a difference (or too big 😉) Anything you can do would be greatly appreciated! 🦋 #MentalHealthMatters #StopSuicide afspwalks.donordrive.com/participants...

Immigrant New Yorkers belong here. ICE does not. If you need help, call our free, confidential Immigration Legal Support Hotline at 1-800-354-0365 or dial 311 and say “Immigration Legal.” Help is here in your native language, no matter your immigration status. More info: nyc.gov/knowyourrights

Ok, can we pleeeeease get rid of DeMarco now? #NYLiberty

All these years later.... I'm STILL a member of The Resistance.

Many people with #ChronicIllness have a long list of #medications that keep us going. #TalkAboutPrescriptions Month (who knew that was a thing?) is a great reminder of why we should be talking about them all year long. 🦋 sarcoidosisnews.com/columns/crit... #PatientExperience #sarcoidosis #SpoonieSky

This is one of the most disgusting things I've ever seen ... And we see a LOT of disgusting stuff these days. Worst of all is that millions will log on to watch ... and then they'll take that as a reason to execute even more ... and sell ad space. There is no bottom.

#AbolishICE

Chronic illness is like:

This Liberty game is giving me normal blood pressure (I usually run very low lol)!!! #WNBA🏀 #NYLiberty🗽 #LightItUpNYL

Real Patients™ is looking for people with a variety of health conditions. Share your experience with researchers working to imprоvе treatments, products, and care. Get compensated for your time. To apply, visit: apply.savvy.coop/speakers-bur... 🦋 #ChronicIllness #PatientExperience #SpoonieSky

New York Knicks center Karl-Anthony Towns, who tragically lost his 58-year-old mum and several family members to COVID-19 complications, continues advocating for vaccination. “I have asthma,” Towns said, highlighting his “high-risk status” while raising awareness of the non-mRNA NUVAXOVID vaccine.

WTF happened to my Libs?!? It's like a different team this half! Let's get back in there!!! #LightItUpNYL

Let's go LIBS!!! 🦋 #NYLiberty🗽 #LightItUpNYL #WNBA🏀

How would you describe your pain? Comment below! And check out the full conversation with @Leila P.L. Valete, CHES & Deb Constien at aiarthritis.org/talkshow-ep125 🦋 #AiArthritis #arthritis #autoimmune #ChronicIllness #ChronicPain #endometriosis #fibromyalgia #migraine #RA #sarcoidosis #SpoonieSky

And this is why #AI will never replace real writers. 🦋 #writing #WritingCommunity #BookSky

Calling all NYC artists — painters, filmmakers, poets, musicians and more! Did you know our city provides grants to support your work every year? And this year, we're DOUBLING the amount — from $5,000 up to $10,000 per artist! Deadlines are approaching fast — apply today at nyc.gov/artistgrants.

The @afspnational.bsky.social Out of the Darkness Walk is coming soon. Here’s why it’s so important to me (and a few ways you can help support the cause). 🦋 #StopSuicide #MentalHealthMatters #ChronicIllness #ChronicPain #OutOfTheDarkness buttahflyk.substack.com/p/creating-h...