cbme-mark.bsky.social

Isn’t it good to know that there are people fighting on our behalf? If you have severe or very severe ME, this is urgent. If you have moderate or mild ME, it’s about your future. www.crowdjustice.com/case/justice...

Total welfare spending: ~10.6% of GDP — the same band it has occupied since the early 1980s. Official forecast: 10.9% → 11.2% by 2030. That’s not a “ballooning welfare budget”, @theguardian.com. It’s a flat line. Stop doing the Treasury’s copywriting for free.

Every one of our committee members is severely affected by ME and we are immensely grateful to the group members who have volunteered to help train GPs www.cambridgeindependent.co.uk/news/cambrid...

Benefits There has barely been any increase in the number of people claiming benefits if you take into account population growth, aging population, increase in morbidity & pension age rising so it include more people Not the narrative you hear in media obr.uk/wtr/welfare-...

meassociation.org.uk/2025/06/the-...

John McDonnell is great.

I’ve been making my way through the Welfare Reform Bill and this paragraph on the gov.uk website is genuinely disgusting. Receiving a decent disability benefits rate “encourages sickness”, does it? Funny, I thought it just enabled severely ill and disabled people to eat.

If we want change, we need to fundraise for it. Around half of medical research is funded through the charity sector. Many people won't be able to donate, but for those who can, I cannot think of a more deserving cause than driving change for people with ME.

www.ed.ac.uk/news/scale-o...

Great presentation made by Prof Chris Ponting (@cgatist.bsky.social) to the UK APPGs on ME & Long Covid about the ongoing failure to fund research into ME. UKRI is failing #pwME and #LongCovid Time for Wes Streeting to step in: @tessamunt.bsky.social Please share. Pt2 in next post.

Awareness Month petition - final call If you haven't signed yet, please do - and just as importantly, share the link with everyone you know. You can do this from the petition web page. Thanks!! you.38degrees.org.uk/petitions/ri...

the.organise.network/surveys/stop...

An excellent response to recent opinion in the BMJ that behavioural treatments address the right approach to ME/CFS. www.bmj.com/content/389/...

👏👏👏

Me too - first generation Englishman

My grandmas were immigrants, my mum & sisters in law are immigrants; my sister & nephews are migrants. My kids study maths, Shakespeare, dance, act & score tries alongside the kids of immigrants. My dad’s life was saved by immigrants. Immigrants have made us richer, wiser, stronger Win the fight

Text of an open letter by Disability organisations to our Cambridge MP Daniel Zeichner MP (Cambridge)

www.buffalo.edu/news/release...

The #MECFS community should be concerned about this. A right-wing bias is likely to play into the hands of powerful vested interests who betray ME/CFS as a psychological problem.

petition.parliament.uk/petitions/72...

If we really want to take on chronic diseases.... by @virusesimmunity.bsky.social and @hmkyale.bsky.social #LongCovid, post-infection syndromes, immune system assessment and intervention gift link www.wsj.com/opinion/how-...

New @science.org Exposomics. We're not doing nearly enough to understand and mitigate our toxic environmental exposures. A very insightful perspective www.science.org/doi/10.1126/...

www.theguardian.com/society/2025...

www.theguardian.com/society/2025...

the.organise.network/campaigns/ne...

This looks like an interesting and much needed project. In Neunkirchen-Seelscheid in Germany, a housing project is being planned especially for severely ME/CFS sufferers with 24-hour assistance. sozialhummel.de/wohn...

25-30% of people report Long Covid 6+ months after infection Rates are highest in lower-income countries & among Arab, N. African groups. Risk rises with age, reinfection & hospitalization Once again the most marginalized bear the heaviest burden 📝🖇️ tinyurl.com/msxbbshx

This is the petition that Cambridge ME and Long Covid Support’s ME Awareness Week poster will be pointing people to. If you haven’t already, please help us get off to a good start by signing, and asking friends, family and other groups to sign as well! you.38degrees.org.uk/petitions/ri...

This study shows the real harm done by psychosomatic misdiagnosis: ⬆️ Mental distress ⬆️ Testimonial Smothering 90% affected were women in their 50's Patients recommended 'a restorative action & reconciliation process' 📝🖇️https://tinyurl.com/mtrkdvmj

🤔Where does this widespread disbelief of disease come from? Melanie Sloan shows that one reason for this is the assumption in medicine that complex illness with "many symptoms" is a 🚩 Rooted in neurology & psychiatry literature by Sharpe, Stone & Carson.

forms.gle/N8Dg9bNkFRQH...

"The lost earnings due to long COVID among working-aged adults [in the US] are estimated to total $211 billion in 2022 and $218 billion in 2023." www.nature.com/articles/s43... Image is from latest Science for ME weekly update #LongCovid #PASC

Please take a moment to sign this petition: ‘Protect Disabled people who cannot work from planned cuts to benefits’. Thank you so much: tinyurl.com/5erjajtv #WelfareNotWarfare

YES! This is the article I’ve been longing to write (but haven’t had the spoons). Thank you!

Another petition. Keep signing - we need the government to get the message loud and clear. Saving a few quid by pushing the disabled into destitution is WRONG. campaigns.scope.org.uk/page/165719/...