Sarcoma Foundation of America (SFA)

In honor of Childhood Cancer Awareness Month next month, we’re inviting our community to share their experiences with childhood sarcoma. Selected stories may be featured on SFA’s our social media platforms.

At the Stand Up to Sarcoma Gala, we come together to share our stories, celebrate hope, and honor everyone whose life has been touched by sarcoma. We hope you’ll join us for the Stand Up to Sarcoma Gala on October 6, 2026, in New York City. curesarcoma.org/stand-up-to-sarcoma-gala/

SFA is proud to be a charity partner for marathon events across the country, bringing together runners who are ready to turn every mile into meaningful impact for the sarcoma community. Reach out to Annie Blake at ablake@curesarcoma.org to learn more and get involved. Limited spots remaining!

From bake sales and golf tournaments to community gatherings, our incredible supporters continue to find creative ways to raise funds and awareness for sarcoma research. Every fundraiser, big or small, helps advance critical research and brings us closer to a cure. Learn more: buff.ly/WMvbdGt

SFA is working to ensure the needs of the sarcoma community are represented in policy decisions that impact research, testing, treatment, and clinical trials. Learn more about SFA’s policy and advocacy efforts: buff.ly/CXGfqhR

Sarcoma Match, powered by Imerman Angels, connects patients, survivors, care partners, and others affected by sarcoma with one-on-one peer support from someone who understands their experience. Become a mentor or mentee today: curesarcoma.org/support-reso...

On July 25, Jordan Farrell hosted a Zumba Masterclass benefiting RTCS North Carolina in partnership with Duke Cancer Institute. Inspired by her mother’s journey with leiomyosarcoma, Jordan brought the community together through movement and connection while raising an incredible $1,200!

The inaugural Sarcoma Awareness Symposium is taking place 7/23/2026. Hear from leading experts, a sarcoma survivor, and advocates as they discuss early detection, treatment, survivorship, and the urgent need for increased research and funding. Register: buff.ly/72tjKOL

Join the 5th Annual Scott Lively Memorial Golf Tournament on 8/1/2026, at Bear’s Best Atlanta in Suwanee, GA! Held in memory of Scott Lively, this event brings together family, friends, and supporters to celebrate Scott’s legacy while raising awareness and funds for sarcoma research. buff.ly/hikegOY

It's Wear Yellow Wednesday! Join us in raising visibility for sarcoma. Post your photo wearing yellow, tag us, and use #WearYellowWednesday #Sarcoma #SarcomaAwarenessMonth

Join the sarcoma community tomorrow in raising awareness by wearing yellow. Share a photo of yourself wearing yellow, tag us, and use #WearYellowWednesday to help shine a light on sarcoma and everyone impacted by this rare cancer.

Join us for a month-long charity streaming event in honor of Sarcoma Awareness Month! Throughout July, streamers from across the community will go live to raise awareness and support critical sarcoma research. Discord Server: buff.ly/t5Ccf6y Register your event on Tiltify: buff.ly/djq0GLk

SFA's Treatment Centers Directory helps patients and families connect with specialized centers experienced in treating sarcoma, offering access to multidisciplinary care, clinical trials, and expert support. Explore the directory and find a treatment center near you: buff.ly/fMH9gaj

The 2026 Children's Art contest is open! Kids are invited to create original art that includes a yellow ribbon or sunflower or any symbols of sarcoma awareness. Entries are due by July 21, and winners will be announced at the end of July. #sarcoma #curesarcoma #sarcomaawarenessmonth

Let your voice be heard! Join SFA in Washington D.C. for our Advocacy Weekend. Engage with elected officials and advocate for the sarcoma community. Together, we can drive change and move closer to better outcomes for everyone affected by sarcoma.   Find more information at buff.ly/kVjVfHi

This Sunday, from 1–3 PM, shop in-store at Kendra Scott in Oxmoor Mall or online and 20% of your purchase will support Race to Cure Sarcoma Louisville! Just mention “Sarcoma” at checkout or use code GIVEBACK-LYPGM online! Bring a friend, treat yourself, and support the sarcoma community.

During National Cancer Research Month, we’re reminded that rare cancers like sarcoma are too often overlooked. As the largest private funder of sarcoma research, SFA remains committed to advancing discoveries and improving outcomes for every patient. Show your support for our work: buff.ly/qbt51NI

May is National Nurses Month. Nurses are the unsung heroes in every sarcoma story, walking beside patients and families through their hardest, most uncertain moments. Honor a nurse who has touched your life with a tribute gift this month. Give a gift: buff.ly/YRP44gI

Join us in Washington, D.C. this July for Advocacy Weekend 2026! Stand with the sarcoma community as we meet with lawmakers on Advocacy Day, learn together on Education Day, and come together at the RTCS DC to raise funds for lifesaving research. Find more information at buff.ly/MSmLDXl

Join us for the next Live Virtual Session with the Experts! During the session we will highlight the different types of biomarker tests used in sarcoma, how results are interpreted, and how this information can guide personalized treatment strategies. Register:https://buff.ly/zu6bpXv

Join us for Miles for Michelle’s first fundraiser. Enjoy a round-robin tournament, open lanes, a 50/50 raffle, silent auction, food for purchase, and more! This event is held in memory of Michelle Reeder, who passed away from hemangiopericytoma. More information: milesformichelle.com

As National AYA Cancer Awareness Week comes to a close, we want to remind you that you can still share your AYA sarcoma experience to help us better support this community. Take the survey here: www.surveymonkey.com/r/3SF3SXR #AYACancerAwarenessWeek #AYACancer #CureSarcoma #Sarcoma

Kate DeForge shares what it is like to navigate young adulthood with sarcoma and the mindset that shapes her life today. Her sister Kristen also joins to share her perspective. Listen wherever you get podcasts.

This National AYA Cancer Awareness Week, we’re highlighting adolescents and young adults facing sarcoma, who face unique challenges such as delayed diagnoses and limited treatment options. We’re committed to raising awareness, supporting AYAs, and advancing research to improve outcomes for everyone.

We want to hear from you! If you’re an adolescent or young adult (ages 15–39) who has been diagnosed with sarcoma, share your experience in our short survey. Your insights will help guide SFA’s AYA committee and shape programs that support this community. Take the survey: buff.ly/YAhyGYO

SFA is heading to the AACR Annual Conference to connect with researchers, advocates, and partners and stay at the forefront of sarcoma science. Attending too? Email development@curesarcoma.org to connect!

Join us for Live with the Experts on biomarker testing in sarcoma! Learn how these tests guide treatment, clinical trial options, and personalized care with expert insights for navigating sarcoma care. Register: buff.ly/3eDXtD8

Thank you to our incredible marathon team for raising over $27,000 to support our mission! Your commitment and the miles you ran help bring greater awareness to sarcoma and support the work to improve outcomes for patients and families. Congratulations and thank you! #CureSarcoma #UnitedNYCHalf

At RTCS events, our community gathers to recognize every person affected by sarcoma and transform that shared experience into momentum for progress. Every runner, walker, team, and supporter helps move research forward and bring hope to patients and families. Join a race near you: buff.ly/DcjXLWx

"I participate in memory of my younger sister who died from Uterine Sarcoma in 2021 at the age of 37. I want to raise awareness and funds to help others and to keep her memory alive." - Wendy Artman, RTCS Atlanta Join Wendy and many others on April 4, 2026, at Suwanee Town Center for RTCS Atlanta.

Happy National Doctors' Day to all the dedicated medical professionals who provide compassionate care to people with sarcoma! Thank you for your commitment to improving the lives of those affected by sarcoma.  #NationalDoctorsDay #CureSarcoma #sarcoma

The full recording of Part 2 of our "Live with the Experts" series on circulating tumor DNA (ctDNA) in sarcoma is now live on our YouTube channel. From ctDNA basics to new updates and a thoughtful discussion on what’s next, this is a conversation you don’t want to miss. Watch: youtu.be/8XjkBwcvgMk

Missed our Advocacy Weekend Information Session? The full recording is now live on our YouTube channel! Hear what to expect in Washington, D.C. and learn how sharing your story and speaking with lawmakers can make a real difference for the sarcoma community. Watch here: youtu.be/PGNOG-Bm-qw

Sarcoma Foundation of America's Clinical Trial Matching Service makes it easier by offering free, confidential access to up-to-date sarcoma clinical trials across the U.S. and Canada, matched to your specific diagnosis and treatment history. Learn more at the SFA website.

The FDA’s Cure ID platform lets patients, care partners, and clinicians share real-world treatment experiences across all sarcoma subtypes. Each submission helps researchers identify patterns, explore repurposed treatments, and shape future clinical studies. Share your experience: buff.ly/ahwCHwc

20% sarcomas are ultra-rare, meaning they have an incidence of 1 per1,000,000 or less. For patients facing these diagnoses, rarity often means less research dollars, limited treatment options, and too few answers. SFA helps ensure that all sarcoma patients receive the care they deserve.

Part 2 of our ctDNA Live with the Experts is happening next week! This session, we’ll cover a quick refresher on ctDNA basics, new insights since Part 1, unanswered audience questions, and a discussion on ctDNA’s current and future role in sarcoma research and clinical care Register: buff.ly/OOjuWVD

National Adolescent and Young Adult (AYA) Week is April 5–11. Your story has the power to inspire, connect, and bring hope to someone else facing sarcoma. We invite you to share your journey and be featured on the Patient Stories page of our website. Submit your story: buff.ly/7khkFop

The March Sarcoma Spotlight newsletter is here! This issue features updates on upcoming Race to Cure Sarcoma events, information about upcoming webinars, SFA resources, and more! Read the March newsletter to stay up to date on the latest research and community news. Read here: buff.ly/xqV3QGG

The National Comprehensive Cancer Network just published new guidelines for pediatric rhabdomyosarcoma, helping doctors provide the best possible care to some of their youngest patients. Full news release: buff.ly/feLgaIZ

At Race to Cure Sarcoma events, we come together to honor every life touched by sarcoma and to turn remembrance into action. Every participant, every team, and every dollar raised moves us closer to new treatments and better outcomes. Join a race near you and help drive progress. #curesarcoma #RTCS

New study on drug combination for advanced sarcoma. Researchers tested cabozantinib plus temozolomide in 72 patients with advanced soft tissue sarcoma. More research is needed, but these early results offer hope for patients needing new options. Full study: buff.ly/C5hvPHW

Today is Rare Disease Day. At any given time, more than 250,000 people are living with sarcoma. This community is vast, yet “rare” still too often means delayed diagnosis, limited treatment options, and too little research funding. Support SFA: buff.ly/C5Olnjy

At an RTCS event, whether you attend as a volunteer, participant, or survivor, you will find a community of people whose lives have been touched by sarcoma. It is a space where stories are shared, support is offered, and hope is strengthened through being together. Find a race near you.

Saturday is Rare Disease Day, a day to remember that behind every rare diagnosis is a person, a family, and a life forever changed. Rare may describe the numbers, but it does not define the strength, resilience, and hope of people like Angela. Full story: buff.ly/U3ihaoa @angelacleveland.bsky.social

By providing seed funding for translational science, SFA helps researchers take bold, high-risk ideas from concept to discovery. This turns promising science into the preliminary data that opens doors to federal funding and, ultimately, better therapies for patients who urgently need new options.

Support from SFA enabled Dr. Karen Pollok, PhD, to test a promising combination therapy for osteosarcoma that has spread or no longer responds to standard treatments. Because these drugs are already used in other cancers, this research could accelerate safer, more effective treatments.

Sarcoma represents about 1% of adult cancers and, like many rare cancers, faces delayed diagnoses, limited treatment options, and less research funding. At SFA, we’re working to change that by funding research, supporting patients and families, and advocating for better outcomes. buff.ly/C5Olnjy

RTCS Austin is just one month away! Start or join a team and walk or run in honor of someone affected by sarcoma. Your participation helps improve outcomes for people diagnosed with sarcoma. Every step, every dollar, and every team makes a real difference. Register: buff.ly/rlJb9hi

Today is National Caregivers Day, a day to honor and appreciate care partners! We recognize and thank the unwavering commitment of those supporting to individuals with sarcoma. Take a moment today to thank the caregivers in your life. Your love and support make all the difference. #CureSarcoma