Deidre

This in my home county and I'll be voting early in the election.

When October is a wash of warm golden tones, the fallen leaves creat a new carpet for the upcoming months and for just a moment you can stop, look around, and think: all is good. 📷 #photography #nature 🌱🌿

It's been a few years since I"ve been to @lakemichigan13.bsky.social but the Lake never disappoints. 📷 #photography #nature 🌱🌿

It's a lovely Sunday Morning in West Michigan. 📷 #photography #nature 🌱🌿

So who is watching who here? I was lucky to catch a couple of white tail deer, does, early one morning recently at a near by park. 📷 #photography #nature 🌱🌿

An innovative treatment is helping injured penguins get back on their feet in Chile. https://to.pbs.org/4xBXX80

The process of trying to get edisability will make you want to quit 3000 times just to get a denial, then another 2000 times to appeal that denial. My husbands prcoess started April 2025 & we're working our way through the appeal process. AKA round 2. #ChronicIllness #InvisiableIllness #mecfs #POTS

So it's our 17th wedding anniversary. With his #chronicillness of #MECFS that doesnt't leave us a lot of options to choose from. We both miss being about to go out and have drinks & dinner somewhere. So Surf & Turf our way. 🍽️ 🍜 #FoodSky

Planet Wild creating the beginnings of a Solarian Renaissance: #AGoodPlace

Windows software is just getting worse & I'm near tears dealing with it. I no longer want to support the system & I'm struggling to find a reason to go on Vs just closing down my biz. The sad part is, I know it can get worse; I just don't know if I can survive it. #techlife #smallbusiness

💙 Today is Severe ME/CFS Awareness Day. Severe ME/CFS can leave people bedbound, unable to tolerate light or sound, and dependent on others for basic care. This publication highlights why greater recognition and care are urgently needed: https://bit.ly/4fi8aRp #SevereME #MECFS

"Symptoms made worse due to physical or cognitive exertion in Myalgic Encephalomyelitis & Chronic Fatigue Syndrome" #MEcfs #PwME #CFS #ME #MyalgicE

Think Like a Dog, all about dog psychology and why it makes them awesome, is out September 1! Check this link in for pre-ordering and tour dates and giveaways linktr.ee/thegoldenrat...

I'm so geeked right now, she's where my parents got the idea for my 1st name.

"Guys, is that better yet?"

👀👀👀

My #pwME can talk to 2 other #pwME that live in our area, including 1 being his son's aunt. They talk through FB messenger or via text. All need support, but struggle to find it. #Chronicillness is everywhere, you just have to be aware of it to see it. #MECFS #Frailbutfurious

Applying & waiting for SS disability in the USA is a multi-year process. It's a hateful, disheartening time for someone to go through. You desperately need the approval for assistance, but have a small chance of winning. #mecfs #chronicillness

This month has been a struggle. Biz is way down. The car we wanted to buy was sold the day after the test drive. Our car then needed $1k in repairs. My PwME had a few PEM events and struggled with headaches all month. June was not pleasant, & now a heat wave is about to start. #mecfs #POTS #smallbiz

@bouncebckbelle.bsky.social I got mail today. Prefect timing as I had just returned from the library with a small stack of books to find it waiting in my mailbox. Love it. Thank you! 😍🤗 #FOTS

It is Monday and that means it is time for #MedicaidMondays! Today we are sharing facts about Medicaid, upcoming changes, and how to take action. See our #FrailAndFurious campaign page here: www.meaction.net/frail-and-fu... #Disability #PwME #MECFS #LongCovid

I already stopped by 1 of my local libraries and walked out with 2 cookbooks & @davidpogue.bsky.social new book, Apple: The First 50 Years. #BookSky 📚💙

If you need to cool down for a bit this summer, allow me to sing the praises of the library. If your local library system is anything like mine, it probably offers a lot of great things for you to do, both tech-related and not, at no extra cost. Read more from @jaypeters.net:

@thegoldenratio4.bsky.social They probably didn't ask to get bitten in so many words but @isamiscreant.bsky.social probably would approve. #FOTS

My PwME was denied a Permanent handicap placard b/c the cardiologist's PA thinks his conditions "may improve". Um, #MECFS has no known cure or treatment. Guess who just got sent the @batemanhornecenter.bsky.social Clinician Guide. #chronicillness #frailbutfurious

Tried to get a permanent handicap placard for my PwME; instead, the PA said they could reissue a temporary 1 again and that we'd have to see a specialist for a permanent one. What specialist??? This is the 5th temp. #ChronicIllness #mecfs #invisibleillness #frailandfrurious

I see that Nintendo Music is trending and thought that maybe @whelan06.bsky.social & @isamiscreant.bsky.social have finally gone viral. #FOTS

Day 29 of spreading awareness. #MECFS is a cruel, invisible illness that deserves more attention, research, and knowledge. #ChronicIllness #ChronicPain #InvisiableIllness #POTS

The founder of Modern Nursing. A naturalist who helped shape parts of modern science. Yeah, these 2 were 2 of the laziest people in history. 🙄 #mecfs #chronicillness #unitedwithME #frailbutfighting

My husband is mostly house-bound. We do our best to keep his inflammation down, which means a strict diet/lifestyle. He's lost muscle strength in the last couple of years. He has Erosive Osteoarthritis in his hands. He has POTS. Just to name a few things that work against him. #mecfs #chronicillnes

Aww, and he's perfect for #MECFS awareness month. 🐙

We went in for a Tilt Table Test for my husband and walked out with an #MECFS diagnosis. 2 years later, he got the POTS diagnosis as well. Currently, still on the wait list to see the POTS specialist in our area, have been waiting for over a year now. #chronicillness #Frailbutfighting

It is a complex, multi-systemic disease that profoundly impacts physical and mental function, often causing more functional impairment than conditions like congestive heart failure or multiple sclerosis. The quality of life of someone with MECFS isn't really a quality. #mecfs #fibro #chronicillnes

When you have a #chronicillness, there is no road map to recovery. #mecfs

Colbert guest hosted a public access TV show in Monroe, Michigan a day after the Late Show ended. Guest star: Jeff Daniels Special appearance by: Eminem Musical director: Jack White Genius. youtu.be/jJTXB5uT_C4?...

Unrefreshed sleep is common in many #chronicillness. For my husband, falling asleep isn't the issue; it's staying asleep. We work at improving sleep hygiene, and a decent night of sleep makes a world of difference in managing his other symptoms. #me/cfs #frailbutfighting #UnitedwithME

Every day, my husband works at trying to manage all his symptoms. I help him manage some. Things we've done to manage his #MECFS include restrictions on foods, eliminating WiFi/Cellular signals, air filtration, mold mitigation, & more. #mecfsawareness #UnitedwithME #frailbutfighing #chronicillness

My husband works, but to maintain his condition. It's something he does every day, throughout the day, with no vacation time earned. It doesn't earn an income. #mecfs #chronicillness #untiedwithME #frailbutfighting.

Let's talk sleep & ME/CFS, or rather the lack of sleep. My husband struggles nearly every night with sleep. Waking up throughout the night, struggling to get back to sleep. We've taken multiple steps to create better sleep hygiene, & the struggle continues. #chronicillness #mecfs #frailbutfighting