Elke Hausmann

It’s a lengthy read, but that’s what we‘ll get to: ‚We need a greater recognition from society and politics of what the Covid virus can do to bodies, long-term. Above all, what we need is liberation from judgements.‘ #LongCovid

Wow - Uni Jena, hier kleiner Auszug unter ‚Hinweise für Lehrende‘. Gibt’s sowas auch an anderen Unis?? #LongCovid #ME

#LongCovid #ME

#LongCovid

Now Recruiting: The Rosetta Stone study at Imperial College, London! If you are interested in taking part, please read the full blog for the eligibility criteria and to express your interest: https://meassociation.org.uk/9be1 #MECFS #LongCovid #pwME

Awesome letter from @longcovidadvoc.com to UK PM Andy Burnham, pleading him to take real action for ME/CFS and LongCOVID. A small step in the right direction is being requested. This would be real hope, not the false hope of 2010s rehabilitation clinics. www.longcovidadvoc.com/post/dobbin-...

I wish people would not just invoke PEM, but show us that they understand it… #LongCovid #ME

Short #MECFS explainer for children from German TV. Includes an explanation of post-exertional malaise (PEM), the worsening of symptoms after activity. Note: People can recover. Older studies suggest around 5–10% of adults make a full recovery.

A working group appointed by Iceland's Director of Health has produced a strong in-depth report with 42 recs for healthcare, social services, uni's, insurance and public funding It clearly states the need to move from psychologisation to funding & support. www.icelandreview.com/news/iceland...

#LongCovid

Beth Dobbin has clearly responded on X & IG to the inadequate response to her letter to Andy Burnham. We completely agree. It is inadequate and pitiful. SequenceME needs FULL funding not a partial pittance. We cannot make progress with this approach. @yvettecooper-mp.bsky.social

We support the #RightToMask to in healthcare. No one should have to take off a better mask to get the care they need. Read the open letter from @cvcev.bsky.social, signed by Inquiry Core Participants, clinicians and scientists: www.clinicallyvulnerable.org/our-work/ope...

A pretty generic, non-commital response to Beth Dobbin's letter to Andy Burnham. A key problem of the Delivery Plan (which doesn't deliver) is that it's used as policy theatre to ensure change doesn't happen on the scale that is needed. 1/4

‚Psychosomatic medicine has never been a priority, and psychosomatic medicine will not be a priority in the future either, because on every issue, we are always guided by the current scientific knowledge.‘ Matthias Hauer, Bundesforschungsministerium (Federal Ministry of Research) #LongCovid #ME

Thank you Beth! #LongCovid #ME

www.lbc.co.uk/article/refo...

The Covid Inquiry’s Module 6 report is devastating. Its central conclusion: adult social care was treated as “something of an afterthought”, while “protecting the NHS” sometimes came at the expense of people receiving and providing care. 1/10

#LongCovid #ME

@davetuller1.bsky.social quoting @anilvanderzee.bsky.social #LongCovid #ME

#LongCovid

NYT: 'How Bad Is Another Case of Covid?' “Every time there’s a wave, there’s another wave that’s going to follow with patients developing new onset long Covid,” said Akiko Iwasaki, an immunologist at Yale University www.nytimes.com/2026/10/19/w...

Please let us have Novavax in the UK! There are many people with #LongCovid in this country crying out for it. @yvettecooper-mp.bsky.social

PRIME Webinar 4 - The Neurology of ME/CFS Wednesday 28 October, 2-5 pm GMT, online via Zoom The list of speakers & a link to the webinar programme can be found in the announcement Announcement www.actionforme.org.uk/register-for... Registration us02web.zoom.us/webinar/regi... #MEcfs #PwME #CFS

Recordings of the 2026 PRIME Symposium talks are now available to view: www.youtube.com/playlist?lis... #pwME #MEcfs Also: PRIME's 4th online webinar, The Neurology of ME/CFS, will take place on Wed 28th October, 2026 at 2pm-5pm GMT. Register here: www.actionforme.org.uk/register-for...

Gefährlich für Betroffene sind ja eigentlich gar nicht die ideologischen #ME/CFS Leugner. Deren Spiel ist offensichtlich. Gefährlich für die Betroffenen sind die neuen "PEM-Versteher", die dann obsolete/gefährliche Ansätze wie CBT oder GET unter neuem Mascherl verkaufen wollen.

This interview with Guardian columnist George Monbiot about the poor treatment of people with ME/CFS has been viewed 32,000+ times!! www.youtube.com/watch?v=Maae...

A well-known psychosomatic and functional proponent of Long Covid in France, has been nominated for the Maddox Prize 2026 from an institution claiming to 'stand up for science and evidence', @standupforscience.net and which is supported by @royalsociety.org 1-6 senseaboutscience.org/activities/mad…

1/2 Huge thanks to Olympic athlete Beth Dobbin for using her limited energy to share her story & raise awareness of the severely debilitating effects of ME & the lack of clear NHS pathways. www.bbc.co.uk/sport/athlet... We hear of situations like this all too often.

“These are some of the sickest patients I’ve ever come across in my life.” Dr @binitakane.bsky.social talking about #MECFS and the lack of research, specialists and services on yesterday’s BBC Radio 5 Live.

(1/3) People with #MECFS are shamed for being ill. Stigma in the diagnosis and the pejorative use of the word 'activism' are forms of repression. Out of pwME/CFS I knew, those in the UK stood out as the most cautious about using their real name on public forums. It is no mere coincidence that ...

This #ME/CFS story, which ws flagged up first by BBC Sport, has got legs. Now it's been carried by celebrity website People.com people.com/olympic-spri... | Well done, Beth, and thank you. #BethDobbin

Wenn man solche Verläufe sieht, ist eine Sache umso klarer: Leute, die primär psychische Ursachen, Vermeidungsverhalten oder Dekonditionierung als Ursache für #MECFS sehen, haben in Patientenversorgung und Fortbildung nichts verloren. www.bbc.com/sport/athlet...

"Sie trainierte weiter" Großer Fehler, aber über #LongCovid und daraus oft folgender #MECFS wird ja nicht aufgeklärt, ist "vorbei". #TeamVorsicht #CovidIsNotOver #Normalitätssimulation

My thoughts about the film Complicated, with children who have EDS/hEDS, where they and their families are not being take seriously. With child protective services as a result. Medicine needs to do better! www.facebook.com/share/p/1XDf... #EDS #hEDS #pwme #myalgicE #millionsmissing

@cabruce.bsky.social Dame Parveen Kumar - a real charmer when interviewed by Jim Al-Khalili on his radio show earlier this week. Insisted that evidential proof was the only way to get into her book, but not challenged at all about why she and Jim Clark consistently get it wrong on #me/cfs.

📺 Quality interview with Beth Dobbins on @BBCSport Thank you Beth for your precious energy for this. We understand the impact this can have.

"It's life-decimating like I can't even put into words," she says. "I feel like I've lost everything. "I have still got my family, but I've lost my independence, my health, the ability to work, the ability to exercise." Beth Dobbin. www.bbc.co.uk/sport/athlet... #ME #Health #Sport

"The disease means far more than physical exhaustion or limited performance. It can tear people out of their previous social lives, make relationships difficult and give people the feeling of no longer being part of society. Even positive experiences or conversations could lead to a health overload"

"The presentation was preluded by Giovanni Maio, Professor of Medical Ethics at the University of Freiburg. Under the title “Ethics of Vulnerability” he highlighted the profound impact of ME/CFS on the lives of those affected."

Outstanding website from Clinically Vulnerable Families with excellent resources & info 👇