Down Syndrome Medical Interest Group UK & Ireland

Want to keep up to date with care of people with Down Syndrome? Come join us in #Edinburgh on the 20th of November for our Winter Meeting Tickets at dsmig.org.uk, join DSMIG at the same time and get a discounted ticket - making membership essentially free ❤️ @dsa-uk.bsky.social

Do you look after babies, children, young people or adults with Down Syndrome? Do you live in the UK or just live the idea of visiting Edinburgh? Come along in November to our Winter Meeting ❤️❤️❤️❤️❤️ #medsky #pedsky #DownSyndrome @dsa-uk.bsky.social

This guide is to help supporters and parents promote positive emotional well-being for people who have Down syndrome. It contains lots of ideas and strategies covering all aspects of life. Please access the online guide on our website: https://loom.ly/C_Emm74

DSEngage LIVE | 4pm Disco🪩 Join people who have Down’s syndrome from all over the country for our 4pm Disco. Pick your favourite song, turn on your disco lights, and have a dance around your living room. Next Session: 6 October 2026. Time: 4 – 5pm. Please sign up here: https://loom.ly/HOSfvY8

Today (5th October) is World Teacher Day. To mark this, we thought we'd bring your attention to the resource 'International Guidelines for the Education of Learners with Down Syndrome' - published by DSi. If you're an educator, please click here to read the resource: https://loom.ly/FcRen4Q

Want to keep up to date with care of people with Down Syndrome? Come join us in #Edinburgh on the 20th of November for our Winter Meeting Tickets at dsmig.org.uk, join DSMIG at the same time and get a discounted ticket - making membership essentially free ❤️ @dsa-uk.bsky.social

Looking forward to the DSMIG workshop at the #BACCH Annual Scientific meeting in wonderful Cardiff next week! 🏴󠁧󠁢󠁷󠁬󠁳󠁿 @commchildhealth.bsky.social @dsa-uk.bsky.social

It can be tricky transitioning from child to adult services. Our England guide simplifies the process, sets out key timescales and links to other useful resources and organisations. You can find it here: https://loom.ly/OhCFyMU

Researchers from the University of Manchester are looking for adults who have Down’s syndrome between the ages of 18-50 to take part in a study about testing people’s hearing using a test called Auditory Steady State Response or ASSR. Click here to find out more/take part: https://loom.ly/aeKlRn8

In this article by Dr Liz Marder she explains the different immunisations and why they are important as well as a useful schedule of when they should happen. Resource link here: https://www.downs-syndrome.org.uk/wp-content/uploads/2024/03/Immunisation-March-2024-FINAL-.pdf

The Timms Review of Personal Independence Payment (PIP) is open for evidence until 28 May 2026. If you support a young person or adult with Down’s syndrome, you can share your experience of the PIP process. Call for evidence: https://loom.ly/JEUPq80 Submit your response: https://loom.ly/PSMq5mc

We are looking for parents contacts (on behalf of a parent) where an adult who has Down's syndrome, has a diagnosis of Type 1 diabetes. If you can help, please email stuart.mills@downs-syndrome.org.uk Thank you. 🙂

Awesome to see Dr Liz Marder receive Honorary Fellowship of @rcpch.bsky.social at #RCPCH26 @dsmig.bsky.social @dsa-uk.bsky.social

Today we're celebrating #WorldDownSyndromeDay! 😄 These pictures are from our DS session last Sunday, taking place every two weeks at the Elite Performance Centre. #TogetherAgainstLoneliness | #WDSD26

Happy World Down Syndrome Day from all of us at the Down's Syndrome Association! 💚🧦 We hope you have a great time celebrating, however you're spending your day! Make sure to wear your #LotsOfSocks and badges to show your support for #WDSD! #WDSD26 #TogetherAgainstLoneliness #WorldDownSyndromeDay

Happy World Down Syndrome Day! Let’s look back at where our special partnership all started as we hear from Remco Norden, Vice President of UK&I Operations and Alison Thwaite, Head of Employment Services at the Down’s Syndrome Association. Please watch the full video here: https://loom.ly/K4k9nnk

#WorldDownSyndromeDay This year’s theme: “Together Against Loneliness.” Children and young people thrive when they feel seen, valued, and included within their communities. Through play, children can build relationships, develop confidence, and express themselves in ways that feel natural to them.

Thanks for getting your #LotsOfSocks on for #WorldDownSyndromeDay! #TogetherAgainstLoneliness

Which odd 🧦 should I wear? 🤔 #LotsOfSocks #WorldDownSyndromeDay

Happy #WorldDownSyndromeDay everyone! Fantastic photos...looks like everyone's having a great time.

Our differences are natural and are what make this world beautiful. This World Down Syndrome Day, let’s foster neurodiversity affirming communities and work “Together Against Loneliness.” #DownSyndrome #WDSD

Booking is now open for the BACCH ASM 2026 in Cardiff! Reserve your spot now - discounted rates are available for BACCH members. For ticket options and other details see www.bacch.org.uk/pages/asm.

Connecting with kindred spirits, or peers with similar experiences to your own, is vital for feeling seen, understood, and valued. As we approach World Down Syndrome Day, let's build these connections and come “Together Against Loneliness.” #DownSyndrome #WDSD

The Down Syndrome Act statutory guidance consultation is seeking good practice examples and resources that can inform future guidance on adulthood, independence and employment. If you have materials or evidence that highlight what works, please contribute. Respond here: https://loom.ly/XurzOHM

It's the start of Down’s Syndrome Awareness Week 2026! 🧦💚 Make sure to show your support and celebrate from the 16 to 22 March 2026 (World Down Syndrome Day is on the 21 March.) Join with us and with people around the world to stand Together Against Loneliness! See more: https://loom.ly/KpXtcgI

Coming March 2: the Spring 2026 edition of 3.21: Canada's Down Syndrome Magazine - the Healthcare Issue. Subscribe for free today to receive a free digital copy in your inbox! DSRF.org/magazine 3.21 Magazine is co-published by DSRF and the Canadian Down Syndrome Society.

Do you want to take part in Challenge 21?! 💚 Down’s syndrome is caused by the presence of an extra copy of chromosome 21. We have therefore come up with a selection of challenges for you all based on the number 21! Go to our website to find out more about getting involved: https://loom.ly/J1fnOag

Join us at the RCPCH conference! The session will run jointly with the British Academy of Childhood Disability and the British Paediatric Respiratory Society “Bridging Disciplines: optimising outcomes for children with complex respiratory and neurodevelopmental needs” @bacdisability.bsky.social

We have another new team member to introduce - our newest Speech Language Pathologist, Aideen Sweeney! Aideen (she/her) completed her Master’s degree in Speech and Language Therapy at the University of Essex in the United Kingdom. Welcome to DSRF, Aideen!

DSEngage Live | Dance Class 🎶 Join people who have Down’s syndrome from all over the country to Wake up and dance via Zoom! Next Session: Thursday 5 February 2026 (tomorrow.) Time: 9.30 – 10.15am. The sessions will be led by a Dance Leader from DanceSyndrome. Book here: https://loom.ly/fEn2yVs

A reminder that anyone aged 14 and over can request an annual health check at their GP practice. This should then result in any health needs being met and a plan for moving forward to ensure optimum health throughout the year. Find out more here: https://loom.ly/YQ8ENds

We welcome the updated publication of the 8th LeDeR report for 2023. Although the report provides important insights, the pace of change remains far too slow. Response in full here: https://loom.ly/qgg6G1I

Have you got your 'Lots of Socks' yet?! 🧦 Celebrate World Down Syndrome Day 2026 (21 March) the Lots Of Socks way! Please support the DSA and WDSD by getting your pair here: https://www.downs-syndrome.org.uk/product/lots-of-socks-2026-individual-pairs/ #WorldDownSyndromeDay

The current issue of 3.21 Magazine takes on the topic of housing for adults with Down syndrome. We asked some experts what skills are most important to maximize independence after moving out, how to cultivate them, and what forms of support can help fill the gaps. www.dsrf.org/resources/bl...

Parents and carers of children and young people who have Down’s syndrome - your voices matter. The Department for Education (DfE) says this national conversation on SEND will influence the next Schools White Paper. Click here: https://consult.education.gov.uk/send-reform-national-conversation

We're sorry that this week's (9 January) 'Get Moving' session has been cancelled. Get Moving is the new name for Pilates Plus. 🤸 Please join us for the next Get Moving session on Friday 16 January instead. You can sign up here: https://loom.ly/-T0bZlY

We are delighted to introduce you to the newest member of the DSRF staff team: Occupational Therapist Devanshi Gupta. Welcome to the team, Devanshi!

Supporting the well-being of adolescents and adults who have Down’s syndrome: Thursday 15 January 2026 | 10.30 to 11.45am | FREE In this webinar we will talk about what we mean by well-being. We also talk about the importance of self esteem. Book onto the webinar here: https://loom.ly/d5IbUjI

The Down Syndrome Medical Interest Group no longer has a Twitter/X account, but we have moved to Bluesky ❤️ Could any lovely #paedsky #paediatrics folks give it some love? #paedsky #pediatrics It's @dsmig.bsky.social Also @rcpch.bsky.social - give it a follow 😁

Yesterday, staff from the DSA attended The Down Syndrome Medical Interest Group UK and Ireland Winter Meeting at the Royal Society of Medicine, London. All of our staff members gave brilliant presentations - well done to all involved! @dsmig.bsky.social

Our prize draw for the chance to win a signed copy of Ellie Goldstein’s book 'Ellie' is closing on the 12 December at 12pm! 💚 The main prize will now be the book AND a Barbie doll with Down's syndrome! As well as four Barbie's with Down's syndrome to give away. Enter here: https://loom.ly/U3J0Ceo

Hey @rcpch.bsky.social - how about a follow back?

Good morning all! A big hello to all attending the #dsmig winter meeting at the Royal Society of Medicine