Institute for Health and Disability Policy Studies

The 2026 National Survey on Health and Disability (NSHD) is open! You are not invisible! Take our survey and share your story. Take the survey at: kuhealthsurvey.org

Learn more about the seventh wave of the National Survey on Health and Disability (NSHD)!

You are not invisible. Share your story at kuhealthsurvey.org

Have you ever had a hard time getting the health care you need? Share your story at kuhealthsurvey.org youtu.be/d-36rAoduGA

Have you ever had a hard time getting the health care you need? Share your story at kuhealthsurvey.org youtu.be/8XX2VTy0g5c

You are not invisible. Share your story at kuhealthsurvey.org !

You are not invisible. Share your story at kuhealthsurvey.org !

Proposed changes to the 2030 Census questions could effect our understanding of who lives in the U.S., including people with disabilities. This could have an impact on ongoing disability research. You can leave comments on the changes at: tinyurl.com/4ebendj3

Have you ever had difficulty finding safe, affordable, and accessible housing? Share your story by taking the National Survey on Health and Disability (NSHD) at: kuhealthsurvey.org youtu.be/5WUfSIz-EEg

Los responsables de formular políticas afirman que las personas que no figuran en los datos son invisibles... No eres invisible. ¡Comparte tu historia en kuhealthsurvey.org !

The 2026 National Survey on Health and Disability (NSHD) is open! You are not invisible! Take our survey and share your story. Take the survey at: kuhealthsurvey.org

You are not invisible. Share your story at kuhealthsurvey.org !

KU-IHDPS is conducting the National Survey on Health and Disability (NSHD). We have partnered with @360directaccess.bsky.social to help participants via ASL. All participant information is confidential. The survey is now open and you can take it at: kuhealthsurvey.org

The 2026 National Survey on Health and Disability (NSHD) is open! You are not invisible! Take our survey and share your story. Take the survey at: kuhealthsurvey.org

Los responsables de formular políticas afirman que las personas que no figuran en los datos son invisibles... No eres invisible. ¡Comparte tu historia en kuhealthsurvey.org !

Policymakers say people who aren't in data are invisible... You are not invisible! Share your story at kuhealthsurvey.org

¡Ya está abierta la Encuesta Nacional sobre Salud y Discapacidad (NSHD) de 2026! ¡No eres invisible! Responde a nuestra encuesta y comparte tu historia. Participe en la encuesta en: kuhealthsurvey.org

The 2026 National Survey on Health and Disability (NSHD) will be launching soon! Stay tuned for opportunities to take and share the survey! ihdps.ku.edu/nshd

AAHD is in solidarity with the disability community in denouncing the Texas v. Kennedy decision. Nothing about us without us includes the right to live in our communities. Read ours and a collection of aligned statements here: aahd.us/2026/09/aahd...

Update to the Texas v. Kennedy case. Some community integration regulations from Section 504 of the Rehab. Act of 1973 will no longer be in effect. Full statement at: https://www.aapd.com/aapd-statement-on-ruling-vacating-community-integration-provisions-in-2024-section-504-rule/

Article from Bangladesh illustrating challenges in measuring disability rates, with real world consequences for people around the globe. #DisabilityResearch #DisabilityPolicy www.thedailystar.net/opinion/view...

Read our new report "Driving Inclusion: Advancing Transportation Coordination and Access to Support Community Living and Wellness for Disabled People and Older Adults!" TinyURL.com/DrivingInclusionReport 🚐

The Department of Labor just updated Section 503 of the Rehabilitation Act, and it's going to negatively impact disabled workers. Let’s talk about it. Read our full statement: https://www.aapd.com/labor-day-2026-dol-regulations-statement/

We are proud to announce our newest collaboration with the Human Services Research Institute + @gwpublichealth.bsky.social. We will provide #accessibility and communications support on MAP-It: A Medicaid Action and Policy Impact Tracker for Disability and Aging Supports www.hsri.org/map-it/

The photos from NCIL’s 2026 Annual Conference on Independent Living are now available to view and download. View the photos: bit.ly/45GqkXh Looking for something specific? Email eleanor@ncil.org with any questions or edit requests. #NCIL2026

From The New York Times: "Federal Funding for Research on Parents With Disabilities Vanishes" The government gave no explanation for terminating the funding, which for decades has supported the only national center focused on the issue. Read the article: www.nytimes.com/2026/08/26/w...

AAPD is launching a new program! We need input from many people, and we want to hear from you! Survey takes 10 minutes and is in English, Spanish, ASL with voiceover, and Easy Read. Learn more: https://www.aapd.com/community-input-survey-for-new-learning-program/

Thank you everyone who submitted clips to help promote the National Survey on Health and Disability (NSHD)! If you have not sent in a video - we are still accepting clips, they just will not be in the first wave of promo vids! Visit ihdps.ku.edu/video to learn more

ATTN: Deaf Autistic Adults Our next #DisabilityResearch featured study drops next Wednesday! Sign up for our Research Listserv for notices about upcoming research opportunities just like this: bit.ly/AAHD-Newslet... Photo credit: Justin Kaneps (All in Frame Collection) #Disability

Is your student with a disability heading to college? The transition from high school means a change in how accommodations are provided. Under the ADA, students typically request accommodations through their college's disability services office. Learn more: https://bit.ly/4gawWmB #ADA

We are looking for people with disabilities to record short video clips (10 seconds!) to help promote the National Survey on Health and Disability (NSHD) launching this fall. Please submit by August 17 so we have time to edit videos and make them accessible! Visit ihdps.ku.edu/video to learn more

New publication from IHDPS and RTC:Rural shows that people may be left behind by limited ACS questions – including people with depression, heart conditions, and cancer. Read more at: doi.org/10.1093/resc...

Peer support is a critical infrastructure that helps disabled people of color build community. Our latest case study explores how peer support organizations reduce barriers to home and community-based services (HCBS) and create pathways that sustain community living. Read more: zurl.co/CijX1

This document outlines NCIL’s funding requests and legislative priorities and demonstrates why investing in independence is both fiscally responsible and consistent with our nation’s commitment to equal opportunity. Tomorrow we take our message to Capitol Hill! ncil.org/2026-confere...

AAHD is proud to celebrate the Americans with Disabilities Act (ADA) 36th Anniversary. On July 26th we uplift this important civil rights law that prohibits discrimination against individuals with disabilities in all areas of public life, including jobs, schools and transportation.

Would you or someone you know be willing to record a 10-second video clip (or several!) to help us to promote the NSHD? Visit our video page to learn more: ihdps.ku.edu/video

AAPD is hosting a webinar on July 14 from 2 - 3:30 PM ET about the Medicaid work requirements. Panelists Rachel Patterson from Patterson & Meek and Jennifer Lav from the National Health Law Program will discuss how disabled people may be affected. Register at https://ow.ly/nnv750ZlLqm.

A new NACCHO report shares recommendations for local health departments and partner organizations on embedding disability expertise into public health systems to support the health of people with disabilities. Learn more and download the report at https://ow.ly/Umil50Zl7kw

Here’s a bill walk-through video of our Plain Language Policy Dashboard to show you how it all works 💜 Check out the Dashboard here: plain-language-policy-dashboard.org [Screen recording of a video walk-through of how to look up a bill inside New Disabled South’s PL Policy Dashboard page.]

IHDPS Research Associate Kelsey Goddard is quoted in this article about the importance of disability research, as government changes interrupt funding and services across the U.S. www.statnews.com/2026/06/19/f...

thearc.org/blog/why-and...

NCIL strongly condemns the recent Department of Justice Office of Legal Counsel (OLC) memo that attempts to undermine the integration mandate at the heart of Section 504 of the Rehabilitation Act, the Americans with Disabilities Act, and the landmark Olmstead v. L.C. decision. More: bit.ly/4aH3kKw

27 Years of Olmstead: People With Disabilities Belong in the Community 🏘️ Explore our resources through our email newsletter conta.cc/4uOOjh6 or on the Community Living Policy Center’s website Heller.Brandeis.edu/Community-Living-Policy #Olmstead #CommunityLiving #DisabilityPolicy #HCBS

Federal grants and funding rules are potentially changing, with huge implications for the #disability community. Critical programs and research could be cut based on #DEIA allegations alone. Please read our alert on how you can take action: aahd.us/2026/06/omb-... Public comments due: July 13th.

CMS' new work requirements threaten the health, safety, and independence of the millions of people with disabilities who rely on Medicaid. AAPD is working hard to educate our community about these new requirements and how to prepare for them. Learn more here: www.aapd.com/medicaid-wor...

We will continue working to ensure that Medicaid remains a strong foundation for independence, community living, and full participation. Read our full statement: www.disabilitybelongs.org/2026/06/stat...