International Kidney Cancer Coalition

15h

📢 Survey alert! You may have seen other kidney cancer surveys circulating, but the IKCC Global Patient Survey 2026 is the only global survey available in 18 languages and reaching every continent. 👉 Take part today: buff.ly/fvjKWHI

15h

If you are a kidney cancer patient or carer, we want to hear from you! It takes just 15 minutes to complete and helps ensure that voices from around the world are heard. #KidneyCancer #GlobalPatientSurvey

🌍 The International Kidney Cancer Coalition (IKCC) is having a busy program at ESMO 2026, connecting with the international oncology community in Madrid.

IKCC will soon publish a dedicated report highlighting key insights and innovation in kidney cancer from ESMO 2026.

International Kidney Cancer Coalition (IKCC) ESMO - European Society for Medical Oncology WECAN Global Cancer Coalitions Network Caleb Egwuenu Olivier Exertier Julia Black Jonasch Eric Steve Pointon

🌍 The International Kidney Cancer Coalition (IKCC) is having a busy program at ESMO 2026, connecting with the international oncology community in Madrid.

Engaging with patients, advocates, healthcare professionals, researchers and industrial partners is essential to ensuring that innovation ultimately translates into meaningful improvements for people affected by cancer.

🔬 For IKCC, ESMO 2026 is also an important opportunity to follow the latest developments relevant to the kidney cancer community and to reflect on what they may mean for patients and patient organisations.

Have you completed the Global Patient Survey on Kidney Cancer yet? Your voice matters! Take a few minutes to share your experience and help shape the future of kidney cancer care. Every response counts! Take the survey today: buff.ly/fvjKWHI #KidneyCancer #PatientVoice

🤖 Can AI improve kidney cancer diagnosis? COMFORT explores how AI can help doctors identify kidney lesions and distinguish benign cysts from tumours.

🔬 Using 1,629 kidney scans, the project aims to support better diagnosis and treatment planning, with doctors always in control. 🤝 Meet the partners: buff.ly/f9PvD7M

🔬 The CARE1 European project was highlighted at the 2026 IKCC Annual Summit by Professor Bohuslav Melichar. This Phase III clinical trial compares two first-line treatment approaches for metastatic clear-cell kidney cancer: dual immunotherapy and immunotherapy combined with targeted therapy.

🧬 CARE1 aims to enrol 1,200 patients across Europe and identify biomarkers of treatment response and toxicity, helping support more personalised treatment decisions. 🤝 Partners include Gustave Roussy, IGR and IKCC, alongside other European institutions. 🌐 buff.ly/sQMrXCj

📢 Calling all #KidneyCancer patients, carers and survivors! Your voice matters! Share your experience in the Global Kidney Cancer Patient Survey and help make a difference for patients worldwide.

⏱️ It takes just 15 minutes to make your voice heard and help shape a better future for the kidney cancer community. Every experience counts. Every voice matters. Together, we can make a difference! 👉 Take the survey today: buff.ly/fvjKWHI #KidneyCancer #PatientVoice #KidneyCancerAwareness

🔬The 2026 IKCC Annual Summit provided an opportunity to highlight the DISCERN project, presented by Professor Marc Gunter from Imperial College London, co-Principal Investigator of the European research project. 🌐 Learn more about the DISCERN project and its partners: buff.ly/qsrIop4

The study analysed around 7,000 proteins and identified eight significant associations with kidney cancer risk, offering new opportunities for biomarker research and early detection.

🌱 IKCC Grants 2026: Meet our Seed & Grow Grant recipient We’re pleased to recognise V Care Foundation (India) as a 2026 Seed & Grow Grant recipient.

Their project, Miles That Matter, aims to increase kidney cancer awareness in underserved communities through education, community outreach and partnerships with local healthcare providers.

By bringing information and awareness closer to communities with limited access to resources, the project will help strengthen understanding of kidney cancer and the importance of early awareness. #IKCCGrants #KidneyCancer #KidneyCancerAwareness #HealthEquity #CommunityHealth

We would like to recognise and thank three outgoing members of the IKCC Board: Michael Jewett, Anne Wilson and Bryan Lewis, for their dedication and commitment to kidney cancer advocacy.

We are sincerely grateful to Michael, Anne and Bryan for their time, leadership and valuable contributions to IKCC. Their work has helped strengthen international collaboration and advance the patient voice in kidney cancer advocacy.

Thank you, Michael, Anne and Bryan, for being part of this journey and for the lasting impact you continue to make. #IKCC #KidneyCancer #PatientAdvocacy

We would like to recognise and thank three outgoing members of the IKCC Board: Michael Jewett, Anne Wilson and Bryan Lewis, for their dedication and commitment to kidney cancer advocacy.

During the 2026 IKCC Global Kidney Cancer Summit in Prague, they took part in the Looking Back, Looking Forward session, sharing their perspectives on the progress made in kidney cancer care and advocacy, as well as their thoughts on the future of the kidney cancer community.

🧬 Genetics & Kidney Cancer Town Hall What does genetics mean for people living with kidney cancer and their families? Join KidneyCAN on 28 October to learn about inherited kidney cancer, genetic testing and emerging research.

The session will feature: 🔹 Dr Brian Shuch 🔹 Dr David Braun 🔹 Genetic counsellor Lindsey Byrne, MS, LGC A Community Social will follow the Town Hall, offering an opportunity for patients, caregivers and others to continue the conversation.

buff.lyGenetics and Kidney Cancer: From Family Risk to the Future of Patient Care | A KidneyCAN Town HallThis webinar explores what genetics means for kidney cancer patients and families today, and how this knowledge shapes care.

📅 28 October 🕠 5:30–6:30 PM ET – Town Hall 🕡 6:30–7:30 PM ET – Community Social 👉 Register: buff.ly/PTi2FJC

🎉 Over 1,000 patients and carers have already contributed to the IKCC Global Patient Survey 2026–2027! A big thank you to everyone who has taken the time to share their experiences. 💙

buff.ly2026 International Kidney Cancer Coalition Global Patient Survey on Kidney Cancer and Growths2026 International Kidney Cancer Coalition Global Patient Survey on Kidney Cancer and Growths

If you have been diagnosed with kidney cancer or care for someone who has, we invite you to complete the survey. It takes approximately 15 minutes, and all responses remain confidential. Previous participants are also welcome to take part again.

buff.ly2026 International Kidney Cancer Coalition Global Patient Survey on Kidney Cancer and Growths2026 International Kidney Cancer Coalition Global Patient Survey on Kidney Cancer and Growths

👉 Use the QR code or follow the link below to complete the survey: buff.ly/Mkj0pxs ⏳ The survey closes on 20 November 2026. 🌍 Help us make sure the voices of people affected by kidney cancer continue to be heard. Every experience matters!

🎉 Over 1,000 patients and carers have already contributed to the IKCC Global Patient Survey 2026–2027! A big thank you to everyone who has taken the time to share their experiences. 💙

Every response helps us better understand the experiences of people living with kidney cancer and identify areas where care and support can be improved.

buff.ly2026 International Kidney Cancer Coalition Global Patient Survey on Kidney Cancer and Growths2026 International Kidney Cancer Coalition Global Patient Survey on Kidney Cancer and Growths

This year marks 10 years of the Global Patient Survey, giving us a decade of valuable insights to guide future advocacy, education and support programmes. Haven't taken part yet? There's still time to have your say! 🗣️

The success of the 2026 IKCC Global Kidney Cancer Summit would not have been possible without the support of our sponsors. We would like to extend our sincere thanks to Arcus, Exelixis and Pfizer for supporting this year's Summit in Prague.

Their support helped bring together more than 50 patient advocates, healthcare professionals and kidney cancer experts from around the world for two days of knowledge-sharing, collaboration and discussion.

Events like this create valuable opportunities to strengthen patient advocacy, exchange expertise and work towards better and more equitable kidney cancer care worldwide. We are grateful for their support and commitment to the kidney cancer community. #IKCC #KidneyCancer #PatientAdvocacy

🌐 Have you visited the new IKCC website? The new IKCC website is here, making it easier than ever to explore the information, resources and support available to the kidney cancer community. 🔗 Explore the website: ikcc.org

🔎 Looking for patient resources? Want to learn more about kidney cancer? Interested in IKCC programmes or the latest news and updates? You'll find it all in one place, with an improved experience to help you get where you need to go. 🔗 Explore the website: ikcc.org

Dr André Ilbawi, Cancer Lead at the World Health Organization (WHO) headquarters, delivered the keynote address at the 2026 IKCC Global Kidney Cancer Summit in Prague.

Bringing global health perspectives into conversations with patient advocates is an important part of strengthening the kidney cancer community and ensuring that patient needs remain central to cancer policy and decision-making.

Thank you, Dr Ilbawi, for sharing your expertise and contributing to the Summit. #IKCC #KidneyCancer #WHO #CancerControl #PatientAdvocacy

Dr André Ilbawi, Cancer Lead at the World Health Organization (WHO) headquarters, delivered the keynote address at the 2026 IKCC Global Kidney Cancer Summit in Prague.

His keynote, “Global Ambition, Local Impact: Kidney Cancer and the Cancer Control Agenda”, explored the place of kidney cancer within global cancer control efforts and the importance of translating international priorities into meaningful action at national and local levels.

Dr Ilbawi also contributed to discussions on improving access to essential medicines and treatments, highlighting the importance of addressing inequalities in cancer care.

The 2026 IKCC Global Kidney Cancer Summit was honoured to welcome Adam Vojtěch, Minister of Health of the Czech Republic, who officially opened the Summit in Prague on 10 October.

Engagement with health policymakers is essential to advancing patient advocacy, addressing inequalities in access to treatment and supporting improvements in kidney cancer care.

We are grateful to Minister Vojtěch for joining us and helping open this important gathering of the international kidney cancer community. #IKCC #KidneyCancer #PatientAdvocacy

The 2026 IKCC Global Kidney Cancer Summit was honoured to welcome Adam Vojtěch, Minister of Health of the Czech Republic, who officially opened the Summit in Prague on 10 October.

His participation highlighted the importance of bringing kidney cancer and the needs of people affected by the disease into wider healthcare discussions.

🌍 Two days of connection, learning and collaboration! The 2026 IKCC Global Kidney Cancer Summit brought together more than 50 patient advocates, healthcare professionals and kidney cancer experts from around the world in Prague, Czech Republic, on 10–11 October.

Just as importantly, the event strengthened relationships across the international network, creating opportunities for new partnerships, shared learning and future collaboration.

A big thank you to everyone who participated, shared their knowledge and helped make the 2026 Summit a success. #IKCC #KidneyCancer #PatientAdvocacy #GlobalHealth

The Summit provided an opportunity for the global kidney cancer community to come together, exchange experiences and explore how patient organisations can make an even greater impact.