Little Lobbyists

Little Lobbyists

@littlelobbyists.com

Family-led group advocating for our kids with complex medical needs and disabilities. Little Lobbyists Action Network is a 501(c)(4) org.

52.9K followers177 following552 posts

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Today, Little Lobbyists honors #AliceWong, a ferocious advocate for disability justice and disability culture-maker who died on November 14 at the age of 51. Alice was a larger-than-life figure in the disability community and a friend to Little Lobbyists 1/🧵

Little Lobbyists reposted

I spend a lot of time in hospital emergency. This affects me pretty badly.

Little Lobbyists@littlelobbyists.com

“The state expects for individuals who lose coverage that they will delay care, and when they delay care their only line of access, at times, can be a hospital emergency department. Loss of coverage doesn’t just impact those individuals." www.seattletimes.com/opinion/edit...

“The state expects for individuals who lose coverage that they will delay care, and when they delay care their only line of access, at times, can be a hospital emergency department. Loss of coverage doesn’t just impact those individuals." www.seattletimes.com/opinion/edit...

seattletimes.comMedicaid cuts will stress WA patients, providers; voters must remember | EditorialThe loss of medical care coverage will have a ripple effect across the healthcare system in Washington.

There are no words to describe the cruelty this administration is willingly unleashing on communities across the nation…

ProPublica@propublica.org

NEW: A new White House rule would prohibit anyone from using federal grant money for voter registration drives, including ones that help disabled Americans vote. It’s part of the Trump administration’s broader effort to restrict voting access.

Rest in power, Gloria ❤️‍🩹 Thank you for your fight for equality, reproductive freedom, and the belief that every person deserves dignity and a voice in their own life. Your work lives on in every parent, advocate, and kid who refuses to be told "no."

This was an incredibly difficult read on the impact #immigration enforcement is having on children, teens, and families across the country... Our well wishes to Pierre's family 💙❤️

Juan Escalante@juanescalante.com

"Pierre Damas Bel’s family said he took his own life on a busy highway after the Trump administration canceled protections for thousands of Haitian immigrants and ICE officers placed him in an ankle monitor." www.washingtonpost.com/immigration/...

On Thursday, Sep 3rd @ 7:00 p.m. ET, the Haitian community will come together for a national prayer service in honor of Pierre Damas Bel REGISTER HERE —> bit.ly/4xA9tSl If you or someone you love is struggling, the 988 Suicide & Crisis Lifeline is available 24/7 by call or text, in ENG & SPA

Little Lobbyists reposted

For 25 years, the Supreme Court’s Olmstead decision has protected people with disabilities' right to live in community. In June, the DOJ put that right — for 40 million adults and 5 million children — at risk. In a craven move, DOJ is attacking the rights and dignity of millions.

Little Lobbyists reposted

Replying to @governor.pa.gov

Today’s order stands up to the Trump Administration’s cruelty, which would have made it harder for Pennsylvanians to find safe, stable housing — even putting some at risk of returning to homelessness.

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@justiceinaging.org: The HCBS Access Act would address many gaps and inequities in the current aging and disability care system by making home and community-based services a comprehensive and universally covered #Medicaid benefit and by investing in the direct care workforce and infrastructure.

“The Trump administration has effectively shut down most of the Agency for Healthcare Research and Quality’s activities, closing the spigot on federal funding estimated to have saved thousands of lives and billions of dollars over the past 27 years by improving medical practice.”

Families are drowning in health care costs — rising premiums, sky-high hospital bills, and drug prices that force people to choose between care and rent. Congress has real, bipartisan solutions on the table right now. #LowerHealthCareCostsNow Take action: ow.ly/aJA550Zp4fU

THEY TOLD US THERE IS NO MONEY FOR MEDICAID but somehow there is money for Pete Hegseth

Chicago Tribune@chicagotribune.com

The House adopted a Republican-only $95 billion budget proposal Wednesday, a long-shot effort to fund the Iran war and other White House priorities over objections from Democrats and a few GOP holdouts in a final push before the midterm elections.

Sen. @kim.senate.gov (D-N.J.) on Tuesday unveiled a proposal for all American children to receive #Medicare, a program he’s dubbed MediKids, saying Democrats must bring new ideas to move the conversation on healthcare forward.

thehill.comSenate Democrat proposes universal health care for childrenSen. Andy Kim (D-N.J.) on Tuesday unveiled a proposal for all American children to receive Medicare, a program he’s dubbed MediKids, saying Democrats must bring new ideas to move the conversa…

Little Lobbyists reposted

Despite being eligible for #Medicaid, Marie was denied coverage in 2025 because of an error with the state's benefits system. It took months of pushback before the state reversed its mistake. Even as a "tech-savvy" former bank manager, Marie she wanted to give up several times along the way.

npr.orgDeloitte-run systems denied Medicaid to disabled people. New laws could make it worseComplex computer systems that decide whether people get Medicaid benefits have a history of errors. Now, changes to comply with Trump's tax and domestic policy law are inundating those systems.