Long COVID Justice

Join us to learn the basics of Long COVID and associated conditions, and to examine the lasting chronic effects of the HIV and COVID-19 pandemics through the latest data. Multilingual webinar in Spanish, English, LSM & ASL! Learn more & register: longcovidjustice.org/hcp-event

Acompáñanos para conocer los conceptos básicos del COVID prolongado y las afecciones asociadas, y para examinar los efectos crónicos de las pandemias del VIH y del COVID-19 según los datos recientes. Una presentación multilingüe - español, LSM, inglés, y ASL Regístrate: tiny.cc/hcp-evento

3 Sept

Quick vaccine update: Appointments are now available at some locations in the U.S. — check Vax Assist for pharmacies in your area: vaxassist.com/find-covid/schedule

longcovidjustice.orgVaccine news: FDA approves updated COVID vax - Long COVID JusticeLast updated: 9/2/26 The U.S. Food and Drug Administration (FDA) has approved Novavax-Sanofi, Pfizer-BioNTech and Moderna’s updated COVID vaccines. Here’s a quick summary of what we know now, and we’...

3 Sept

And get lots more info in our latest news post! longcovidjustice.org/vaccines-new...

Long COVID Justice reposted

The Sick Times

@thesicktimes.org

11 June

New study: more evidence of alterations associated with Alzheimer’s disease in people with Long COVID NIH recently launched the second phase of their adult observational study within RECOVER Veteran Affairs is leading a potentially harmful trial of dieting and exercise for LC shorturl.at/d5mco

5 June

Today is HIV Long-Term Survivors Awareness Day, and we’re honoring the wisdom of our illders. In this clip you’ll hear from Tori Cooper & Sylvester Askins, Jr. on what’s working to support our long-term HIV survivors. #HLTSAD

longcovidjustice.orgHIV Complexities Project - Long COVID JusticeThe HIV Complexities Project is led by and for people living with HIV (PLHIV) and complex chronic conditions. The project has a broad reach, and includes: An online support group for PLHIV with comple...

5 June

(Illder = elders who are chronically ill & disabled. This term was coined by our co-founder @crankyqueer.bsky.social This reel features clips from our recent webinar on HIV Complexities, disability justice, and mutual aid. Learn more & get the link to the full video at longcovidjustice.org/hcp

Long COVID Justice reposted

The Sick Times

@thesicktimes.org

29 Apr

Patients have an expectation that when they visit a healthcare setting, they will leave in better shape than when they came in. However, many people end up with healthcare-associated infections. bit.ly/4eRAz0B

28 Apr

Join us on May 6 to hear from powerful organizers like Tracey Thompson, founder of BIRCH: Black Indigenous Racialized Covid Health. Tracey was a participant in our Long COVID oral history project - join us for the launch event next week! Learn more & register: longcovidjustice.org/lflh-launch

28 Apr

We hope our Long COVID stories can offer a point of connection and solace for anyone living with this disease. They also serve as sources of education & challenge for anyone who is engaged in COVID denialism. We're building a living history of Long COVID - join us! tiny.cc/LFLH

Join us on May 6 to celebrate the launch of Listening for the Long Haul, our new Long COVID oral history website! WEDS MAY 6 4:30-6:00pm ET Zoom Register: tiny.cc/lflh-launch

FEATURED SPEAKERS for May 6 Project coordinators: • Jennie Brier, UIC professor & LFLH project lead • Kaimara Herron, UIC PhD student & LFLH project manager • Gabriel San Emeterio, Long COVID Justice senior fellow, @gabrielhse.bsky.social

tiny.ccListening for the Long Haul: Join us to launch a new Long COVID oral history websiteJoin us to celebrate the launch of our new Long COVID oral history website! Listening for the Long Haul (LFLH) is an oral history project grounded in disability justice that features 20+ interviews with people living with Long COVID and associated conditions (LCAC). At the launch, you’ll hear from project organizers and participants about their experience in creating a community-centered, people’s history of Long COVID. We’ll share the story behind the project, highlights from the interviews, and more.

See you on May 6! Learn more & register: tiny.cc/lflh-launch

Join us on May 6 to celebrate the launch of Listening for the Long Haul, our new Long COVID oral history website! WEDS MAY 6 4:30-6:00pm ET Zoom Register: tiny.cc/lflh-launch

blacklongcovidexperience.comThe Black Long Covid Experience - HomeJoin Chimére L. Sweeney, the #1 Activist, Writer, and Speaker in Black Long Covid communities. Sweeney empowers Black Americans and other marginalized communities affected by long COVID with essential resources, expert guidance, and community support.

FEATURED SPEAKERS for May 6 Project participants: • Chimére L. Sweeney, Founder of The Black Long COVID Experience, www.blacklongcovidexperience.com/

linktr.eeHazie Thompson | Instagram, TikTok | LinktreeLinktree. Make your link do more.

FEATURED SPEAKERS for May 6 Project participants: • Jacquie Luciano, Patient advocate & Long COVID Advisor for National Organization for Nurses with Disabilities • Tracey Thompson, BIRCH (Black Indigenous Racialized Covid Health), linktr.ee/haziethompson • Una Osato, Artist & patient advocate

Join us on May 6 to celebrate the launch of Listening for the Long Haul, our new Long COVID oral history website! WEDS MAY 6 4:30-6:00pm ET Zoom Register: tiny.cc/lflh-launch

This project is an offering to our fellow longhaulers. We're sharing our struggles and joys, moments of connection and isolation, tales of survival and solidarity. We’re building a living history of Long COVID, and pushing back against COVID denialism and ableism.

Our stories are powerful, and our hope is that we can use them to shift the narrative of Long COVID – including educating healthcare providers and creating concrete changes in the care and support that we need and deserve.

Join us on May 6 to celebrate the launch of Listening for the Long Haul, our new Long COVID oral history website! WEDS MAY 6 4:30-6:00pm ET Zoom Register: tiny.cc/lflh-launch

Rather than try to create a singular, mainstreamed account of Long COVID, we collected a variety of stories from a small group of people most impacted by LCAC and its social & economic ripple effects.

This includes many voices from marginalized communities and intersectional identities, including a variety of identities across race, gender, disability, class, immigrant status, location, and more.

Join us on May 6 to celebrate the launch of Listening for the Long Haul, our new Long COVID oral history website! WEDS MAY 6 4:30-6:00pm ET Zoom Register: tiny.cc/lflh-launch

l4lh.orgListening for the Long HaulThis is a test description for the Listening for the Long Haul website.

Listening for the Long Haul is an oral history project grounded in disability justice that features 20+ interviews with people living with Long COVID and associated conditions (LCAC). It was created by Long COVID Justice in collaboration with History Moves / Univ of Illinois Chicago. l4lh.org

At our May 6 launch event, you’ll hear from project organizers and participants about their experience in creating a community-centered, people’s history of Long COVID. We’ll share the story behind the project, highlights from the interviews, and more.

This #LongCOVIDAwarenessMonth, we’re excited to announce that our new oral history website is live! Featuring 100+ hours of interviews of people living with #LongCOVID. We’re building a living history of Long COVID, and bringing voices from the margins to the center. ListeningForTheLongHaul.org

Oral histories can humanize an emergent, unsettling condition: both the illness itself, which manifests in confusing & often contradictory symptoms that don't map neatly onto diagnostic criteria familiar to most healthcare providers; & the many social & economic impacts on longhaulers & caregivers.

Join us for the launch event - sign up now & you'll get an invite in your inbox! actionnetwork.org/forms/s4hi-s...

Instead, LFLH interviewees detail experiences of systemic social, economic, and political conditions that shaped their experience of the pandemic and continue to impact their lives.

Interviewees have also developed life-sustaining forms of disability justice beyond and outside these institutions and systems projecting themselves and their communities into a future built by and for them.

We created this oral history project in partnership with History Moves at University of Illinois-Chicago. Together, we trained and supported a group of people living with Long COVID to interview other longhaulers in their communities, and to tell their own stories.

Listening for this Long Haul (LFLH) does not aim to document a succinct and linear narrative of COVID that began in March 2020 and ended in May 2023 with the official governmental end of the pandemic emergency.

Have you tried "off-label" meds for Long COVID and associated conditions (LCAC)? Learn more in this resource from our Long COVID Essentials series, created in partnership w/ @thesicktimes.org: longcovidjustice.org/off-label-meds

And check out the full Long COVID Essentials resource series at longcovidjustice.org/essentials All infosheets are made by and for people living with Long COVID and associated conditions, and were reviewed by top medical experts who treat and research this disease.

Keep loving, keep fighting! #LongCOVIDAwarenessMonth

longcovidjustice.orgUsing existing medications off-label for Long COVID - Long COVID Justicefrom LONG COVID ESSENTIALSa resources series by The Sick Times x Long COVID Justice There are currently no medications approved by the Food and Drug Administration (FDA) to treat Long COVID. However, ...

This quick guide will help you learn about off-label medications & treatments that might be helpful for different symptoms. longcovidjustice.org/off-label-meds Always talk to your doctor before trying new meds - be sure to ask about side effects & possible interactions with your other meds!

longcovidjustice.orgSupplements & over-the-counter treatments that may help with Long COVID - Long COVID Justicefrom LONG COVID ESSENTIALSa resources series by The Sick Times x Long COVID Justice Though there is no cure for Long COVID, many over-the-counter treatments have helped patients find some relief from ...

Check out our related resource: Supplements & over-the-counter treatments that may help with Long COVID & associated conditions longcovidjustice.org/supplements-otc

There are currently no medications approved by the Food and Drug Administration (FDA) to treat Long COVID. However, there are off-label medications that may help provide some relief for common symptoms.

✨️Jill Kelley (she/they)✨️

“Off-label” means a medication is being used to treat a condition that it wasn’t FDA-approved for. Off-label medications don’t work for everyone. It can also be harder to get insurance to cover off-label treatments.

Long COVID Justice reposted

@justicejoyandjill.bsky.social

2 Mar

March is Long Covid Awareness Month and I got enamel ribbon pins made! Purchase here to support: www.ebay.com/itm/36623394... Wear on your mask, backpack, or shirt 🩵🩶🖤 @c19lap.bsky.social @longcovidkids.bsky.social @longcovidadvoc.com @longcovidjustice.org @longcovidsupport.bsky.social

26 Feb

Thanks everyone who supported this campaign! Shout out to @cleanairla.bsky.social for spearheading these efforts 💜

Bright D Limm 임대중@bdlimm.myatproto.social

#ShareGoodNewsToo: Los Angeles will recognize Long Covid Awareness Day (Mar 15). City Hall will be the color teal around the time of the Academy Awards! 🙏 to the orgs leading the effort, incl. @cleanairla.bsky.social, @togetherwemask.bsky.social, @longcovidjustice.org, and @patientled.bsky.social.

Long COVID Justice reposted

Rob McCarthy

@codbiter.bsky.social

healthcareuncovered.substack.com2025: Big Insurance’s $1.7 Trillion YearAmerica’s big seven health insurers raked in $54 billion in profits in 2025 — as they covered fewer people, raised prices and steered patients into their own subsidiaries and taxpayer-funded programs.

Medical insurers are in the premium collection business, not the claims payment business

More Perfect Union@moreperfectunion.bsky.social

In 2025 the seven biggest health insurance conglomerates made more than $54 billion in profit, despite covering 10 million fewer people than in 2024. These corporate giant collected almost $1.7 trillion in revenue, $175 billion more than in 2024. healthcareuncovered.substack.com/p/2025-big-i...

Long COVID Justice reposted

Pandemic 𓅃. Index

@panaccindex.bsky.social

panaccindex.infoSubscribe to Pandemic Accountability IndexA public registry of pandemic disinformation artists, the latest medical research on COVID-19, and biting commentary. Click to read Pandemic Accountability Index, by JJ Kogburne, a Substack publicatio...

Replying to @panaccindex.bsky.social

More coming soon, don’t miss a thing! www.panaccindex.info/subscribe

Although there is no known cure for Long COVID, there are many over-the-counter treatments that have helped patients find some relief from symptoms! Learn more in this resource from our Long COVID Essentials series, created in partnership w/ @thesicktimes.org: longcovidjustice.org/supplements-otc

We also have a resource on Using existing medications off-label for Long COVID: longcovidjustice.org/off-label-meds

This quick guide will help you learn about over-the-counter (OTC) medications and supplements that might be helpful for different symptoms. Always check with your doctor before trying new treatments, and try just 1-2 at a time. Get more tips on the webpage: longcovidjustice.org/supplements-otc