This week, my inbox has been filled with celebrations about the reauthorization of #ACTforALS and messages remembering those we've lost. Thank you, @neguse.house.gov for your leadership in the Congressional ALS Caucus, and for standing with families like mine. @iamals.bsky.social
Maggie Tassi
Maggie Tassi
@maggietassi.bsky.social
🧯Ret. Safety Patrol Captain (6th grade) 💚💛🐏 Vintage Colorado State Ram 📍Denver, CO
51 followers116 following42 posts
ALS still has no cure, and families like ours keep fighting - for awareness, research, and better treatments. Join the @iamals.bsky.social movement. Donate. Advocate. Get involved at iamals.org/progress/
Recreating a childhood photo + the Ice Bucket Challenge for our dad, who’s living with ALS. Awareness matters but actions get us closer to world without ALS. Join the @iamals.bsky.social movement to end ALS.
Help us reauthorize the ACT for ALS. Use this @iamals.bsky.social link to take action: www.iamals.org/reauthorize-...
incredibly sad stuff on Good Morning America as former NFL running back Chris Johnson shares his ALS diagnosis
✈️ Rolling Ron has been cleared for takeoff!! #RonRollsOverALS @iamals.bsky.social
Thank you, Colorado Rockies, for helping us celebrate #LouGehrigDay this weekend! My brother and I were grateful to represent our family and the @iamals.bsky.social community as part of this special day. Learn more about the movement to end ALS here: www.iamals.org
👋 @iamals.bsky.social - Rolling Ron made it all the way to Red Rocks this weekend! #RonRollsOverALS #PushForProgress
Hey, @iamals.bsky.social, look who rolled into Denver ahead of our #LouGehrigDay celebration on Sunday!! #RonRollsOverALS #PushForProgress
My birthday wish, please use the @iamals.bsky.social link below to ask Congress to reauthorize the ACT for ALS. This bipartisan legislation is critical to research, treatment, care, and providing hope for those living with ALS. Thank you!
Maggie has one wish for her birthday—a world where ALS is history. Wish Maggie a happy birthday by pushing for ACT for ALS reauthorization TODAY @ bit.ly/fundALS
This is amazing, thanks @iamals.bsky.social!
You may remember Maggie from our #PushforProgress campaign back in September. She filmed hilarious videos from her favorite spots in Denver, and even introduced us to her hairdresser to help us reach our fundraising goal! She's funny and relatable, and a fierce ALS advocate.
Watch for @iamals.bsky.social at the end of Brilliant Minds next week, Monday, 11/24. Big things are coming for ALS awareness! Learn more about the movement at iamals.org
Eric Dane is on Brilliant Minds NEXT MONDAY 11/24 at 10pm EST/9pm CST! Don’t miss it—tune into @nbc next Monday!
If you enjoy baseball check out the @iamals.bsky.social Lou Gehrig Day Team! Last season, we partnered with every MLB Club to host Lou Gehrig Day events across the country. We’d love for you to be part of this movement.
What do volunteers at I AM ALS *actually* do? We're glad you asked! Each team is different, but there are lots of fun opportunities no matter what team you join! Hear from co-chair Pete Spencer about what the Lou Gehrig Team gets up to… and sign up to join them: https://bit.ly/4qfmUne
Gratitude to the community of advocates for the HEART and HUSTLE that went into launching this campaign!
Our #PushforProgress campaign kickoff has been a HUGE success so far—and while our work isn’t done yet, we couldn’t have made it this far without you. THANK YOU, Ron, Maggie, Linda, Jake, Dr. Bedlack, Tim, and everyone else for everything you do to make this work possible.
This is the Can’t Stop, Won’t Stop #PushforProgess collab we need! @iamals.bsky.social and @bsw5020.bsky.social x Alex Toussaint and Peloton ♥️
What an unforgettable experience partnering with Alex Toussaint for this amazing event in support of @iamals.bsky.social! So much gratitude for the chance to be part of it.
Maggie Tassi reposted
We're launching our Push for Progress campaign to accelerate ALS research, expand treatment access, & secure $1BN in federal funding over 3 years. ALS is at a tipping point CLOSE to new treatments, but thousands will lose access unless we TAKE ACTION @ iamals.org/progress
Do you have a tee time this weekend? Can you donate the cost of a round of golf to the @iamals.bsky.social #PushforProgess campaign? How about the cost of a round of drinks? iamals.donordrive.com/participant/...
We honor our loved ones living with ALS in different ways. Maggie’s is by wearing her high school golf uniform, and ours is by creating this #PushforProgress campaign. BUT we can’t do this critical work without YOUR support. DONATE $7 or more today @ bit.ly/give2P4P
ALS research has moved at a glacial pace, but glaciers also change landscapes. Can you join the @iamals.bsky.social #PushforProgress campaign and help us change the landscape of ALS? Join me here: iamals.donordrive.com/participant/...
Maggie’s right – ALS research has moved at a glacial pace. But the good news is, your #PushforProgress could change that. CLICK HERE for tools to push for REAL progress TODAY → tinyurl.com/hostP4P
This one’s for all my fantasy football managers… can you donate the cost of your league buy-in to support ALS research and @iamals.bsky.social? (And don’t forget to set your line up for Thursday’s game!) Donate here: iamals.donordrive.com/participant/...
Fantasy Football? The Sims? Minecraft? 👾 Whatever your game of choice, DONATE the cost of an $8 add-on or more TODAY to bring us closer to a cure → bit.ly/give2P4P
We’re halfway through our Week of Action! The @iamals.bsky.social community and I want to say THANK YOU for your contributions, advocacy, and for following my adventures! iamals.donordrive.com/participant/...
Happy Wednesday! A quick word from our ally and partner Maggie. THANK YOU for standing with us in this movement to cure ALS.
Thank you, @neguse.house.gov for singing on to the ALS Caucus, supporting our @iamals.bsky.social movement, and representing Colorado's 2nd District where I grew up and where my dad is living with ALS. Donate here: iamals.donordrive.com/participant/...
HUGE shoutout to Rep. Neguse (CO-2), who just joined our ALS Caucus, for being a leader & voice for ALS research & funding. We're grateful for support from him & our Congressional allies! Ready to join Maggie & @neguse.house.gov on Team #PushforProgress? → tinyurl.com/ALSP4P
Can you donate the cost of a haircut to help us end ALS?! Donate here: iamals.donordrive.com/participant/...
$7. $10. $15. Or more! The cost of a haircut could be enough to unlock billions in funding and open access to treatments for thousands. DONATE today to help cure ALS → bit.ly/give2P4P
Please join me and our #PushforProgress campaign as I raise $2025 to help accelerate ALS research, expand access to treatments, and secure more critical funding for ALS research. More video adventures to come. Thank you for your contributions! Donate here: iamals.donordrive.com/participant/...
Meet our longtime ally and community partner Maggie, who will be taking us around Denver, CO, and telling us why she’s on the #PushforProgress train all week long!
An enormous THANK YOU to the Colorado Rockies for celebrating #LouGehrigDay with @iamals.bsky.social and calling attention to the fight against ALS. Gratitude to everyone who volunteers, donates, and advocates. Iamals.org #ALSisHere #SoAreWe
We celebrate Lou Gehrig Day with the Colorado Rockies and @iamals.bsky.social on Friday, June 6th. Grab a ticket and join us! www.mlb.com/rockies/tick...
One hundred years ago today, Lou Gehrig stepped into the Yankees’ starting lineup. We celebrate his enduring legacy on this #LouGehrigDay and every day at the Hall of Fame.
Lou Gehrig Day is right around the corner! Join me and @iamals.bsky.social as we celebrate with the Colorado Rockies and our friends at @alsunitedrm.bsky.social and @alsassociation.bsky.social on June 6th! Information here: www.iamals.org/lou-gehrig-d...
🚨 Collaboration alert!! @iamals.bsky.social and @alsunitedrm.bsky.social are teaming up to celebrate Lou Gehrig Day with the Colorado Rockies on June 6th. Event details here! #IAMALS4Lou www.iamals.org/lou-gehrig-d...
The Rockies may be snowed out today, but we’re forecasting nothing but fun and celebration 🎉 for the @iamals.bsky.social Lou Gehrig Day event on June 6th. 🧢⚾️ Tickets and details here: www.iamals.org/lou-gehrig-d...
Getting excited for Lou Gehrig Day? We sure are! Head to our landing page to see how your local MLB team is participating, and sign up to learn more about the I AM ALS meetups at each location! www.iamals.org/lou-gehrig-d...
Your last sock post inspired me to add a “someone wearing fun socks” square to our @iamals.bsky.social 🧊Icebreaker BINGO game for our LGD meetup!! 🧢⚾️
On our way home from spring break, my friends and I left Tahoe at 3am to race this storm back to Ft. Collins. Got home just in time for a bonus week off from CSU!
Happy 22-year anniversary of the March '03 blizzard! 31.2" fell in Denver, the city's 2nd-biggest storm on record. Over 60" (!) fell in the foothills. DIA closed, 135k people lost power, and the snow created a huge gash on the @DENAirport roof. What are your memories? #COwx #denver
@denverphilorch.bsky.social Thank you for a fun Sunday afternoon!! 🎻
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