ME/CFS San Diego

x.comAdam (@ABrokenBattery) on XShort #MECFS explainer for children from German TV. Includes an explanation of post-exertional malaise (PEM), the worsening of symptoms after activity. Note: People can recover. Older studies suggest...

ME/CFS Explainers for Kids: from German TV (English subtitles) x.com/ABrokenBatte...

kff.orgWhat Could Medicaid Work Requirements Mean for People with Disabilities Waiting for Medicare Coverage? | KFFThis analysis finds that Medicaid through the expansion pathway covered over 1 in 4 SSDI applicants and beneficiaries waiting to become eligible for Medicare (120,300 people out of a total 415,300 in ...

Medicaid for SSDI: ACA expansion covered 120,300 people awaiting Medicare in 2023. New work rules could jeopardize coverage. www.kff.org/medicaid/wha...

Medicaid for SSDI: ACA expansion covered 120,300 people awaiting Medicare in 2023. New work rules could jeopardize coverage. www.kff.org/medicaid/wha...

menshealth.nlBij deze ziekte kan zelfs een gesprek je dagenlang zieker makenSprintster Beth Dobbin ligt door ME vrijwel de hele dag in bed. Rob Wüst legt uit wat de ziekte met je doet en waarom harder trainen niet de oplossing is.

Dutch ME/CFS Article with Rob Wüst: Why minor exertion can trigger prolonged symptom worsening, why fixed-increment exercise plans can backfire, and how muscle abnormalities in ME/CFS differ from bed-rest deconditioning. www.menshealth.nl/nieuws/wat-i...

youtube.comME/CFS Exchange Webinar: Post-Acute Infection Symptoms | October 8, 2026YouTube video by MECFS Research Network

NINDS & MECFSnet Post-Infection Symptoms Webinar 10/8 Recording available: explores what causes post-infection symptoms and why they persist, connecting ME/CFS to experimental research investigating the biological mechanisms involved. www.youtube.com/watch?v=_qMl...

sciencedirect.comsciencedirect.com

CD8 T Cell Activation In WHO Defined LC: New preprint finds chronic spike and EBV antigen stimulation in 40% of patients, but fails to analyze clinical subtypes within that group doi.org/10.64898/202...

Fatigue Across Diseases Study: ME/CFS/LC had the greatest quality-of-life impairment. DSQ-PEM scores correlate with PEM but don't assess PEM criteria, so diseases without PEM also had high scores. www.sciencedirect.com/science/arti...

npr.orgThe dormant viruses in all of us may help explain long COVID : Short WaveVirtually every human on Earth has a slew of different types of dormant viruses in our bodies. They are remnants of past infections and are—generally—harmless. Unless they wake up, which can be trigge...

17h

Dormant Viruses & Long COVID: NPR explores how stress and immune changes may reactivate dormant viruses, using research on astronauts to investigate possible links to LC. www.npr.org/2026/10/23/n...

jamanetwork.comPatient Experiences of Disrespectful or Judgmental Language in Medical RecordsThis survey study evaluates the frequency of participant-reported disrespectful or judgmental language in medical records, characterizes patient-anticipated consequences, and examines factors associat...

17h

Medical Record Stigma: US survey: 1 in 6 reported judgmental language in records or care. Chronic pain linked to 3.25x adjusted odds of reporting disrespectful language. jamanetwork.com/journals/jam...

x.comBeth Dobbin (@BethDobbin) on XBBC Sport approached @number10gov for a response to my letter to @andyburnham . The @DHSCgovuk responded and unfortunately this statement isn’t anything we didn’t already know. There are also fundamen...

17h

DHSC Response to @bethdobbin.bsky.social Letter: offered familiar assurances about research and its ME plan, but Dobbin challenges the claims, highlighting inadequate funding & a £15.3m shortfall for Sequence ME. x.com/BethDobbin/s...

spoonquill.comSpoonquillA virtual residency for writers with chronic illness

Spoonquill Chronic Illness Writers Residency Applications through 11/30 5 PM PT: Free online speculative fiction residency for writers w/ chronic illness, 10 sessions over 3 months. spoonquill.com

scientificamerican.comA provocative new theory of mitochondria could explain aging and diseaseCould disruptions in the flow of energy through mitochondria cause everything from type 2 diabetes to Alzheimer’s?

Cellular Energy & Chronic Disease: @sciam.bsky.social explores how mitochondrial dysfunction may contribute to aging & disease. Much is relevant to ME/CFS, yet not mentioned. Incl. exercise advice problematic for ME/CFS. www.scientificamerican.com/article/the-...

pubmed.ncbi.nlm.nih.govChecking your browser - reCAPTCHA

ME/CFS & FM DNA Methylation: In 188 women, researchers found blood methylation patterns associated w/ PEM & cognitive symptoms in a preliminary study. pubmed.ncbi.nlm.nih.gov/42811334/

emerge.org.auDiagnosis PathwayHow a diagnosis of myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS) is made, the severity scale of ME/CFS, and the importance of early and accurate diagnosis

ME/CFS @emergeaustralia.bsky.social Diagnosis Guide: covers NAM criteria, ruling out other causes, symptom tracking, relevant tests, & resources emerge.org.au/diagnosis/

biorxiv.orgMechanisms of sex differences in acute and long COVID sequelae in miceMales suffer more severe outcomes during acute COVID-19 and a greater proportion of females develop post-acute sequalae of COVID-19 (PASC). To identify mechanisms of PASC, mice were infected with SARS...

LC Mouse Preprint: Blocking TLR7 prevented brain inflammation & memory problems in mice. ME/CFS research has also suggested a possible TLR7 link. www.biorxiv.org/content/10.1...

nih.govStatement from NIH Director Jay Bhattacharya and NIAID Acting Director John H. Powers III on the New NIH Vaccinology and Immunology CenterThe center will bring together patients, physician-scientists, and laboratory researchers to investigate health problems following vaccination and infections, and turn discoveries into better care and...

NIH Vaccinology & Immunology Center Update: Research to investigate serious post-vaccination health problems & persistent symptoms after infections, incl. LC but ME/CFS eligibility not clear. www.nih.gov/about-nih/ni...

ybca.org2026 World Deaf & Disabled Dance Film Festival - YBCAThis groundbreaking festival celebrates the creativity, cultural perspectives, and artistic visions of Deaf and Disabled dance filmmakers from around the world.

San Francisco Unbound ME/CFS/LC Dance Film Screening: 11/6-7 at YBCA inaugural World Deaf & Disabled Dance Film Festival ybca.org/event/2026-w...

meaction.netHalloween Activities to Enjoy from Home!Happy Halloween! Are you into the spooky season? More of a cozy vibe person? Love it all? Then we have some treats for you! We know it can be hard to join in when living with ME or when a lot of your ...

Spooky Season Readings @meactnet.bsky.social List: Join CoRy Oct 30 at 7pm PT on Twitch for a live dramatic reading of H.G. Wells' The Invisible Man. OR hear Steven Molony's spooky readings anytime, like Poe's The Tell-Tale Heart: www.meaction.net/post/hallowe...

hcpf.colorado.govH.R. 1 Medicaid Partner Frequently Asked Questions | Department of Health Care Policy and Financing

Submit CO Medicaid feedback by Oct 31: Federal rules mandate verifying Medicaid work exemptions, but self-attestation ok. CO chose a form-heavy caregiver verification. Comment: hcpf.colorado.gov/hr1-faqs

science.orgCOVID-19 can wake up dormant viruses in the body, large study confirmsVirus reactivations by SARS-CoV-2 could worsen initial symptoms and increase risk of Long Covid

COVID-19 and Dormant Viruses: A study of 1,154 hospitalized patients linked reactivation of dormant viruses to greater illness severity and persistent disability after COVID-19, suggesting viral reactivation may help explain some LC symptoms. www.science.org/content/arti...

youtube.comMAESTRO Health Innovators TOPx HHS MVPYouTube video by MIT Tal Research Group

CODA's (Complex Disorders Alliance) MAESTRO Health Innovators: Team developing AI to improve assessment of complex chronic illnesses advances to Phase 2 of an HHS/NIH tech competition for AI and invisible illness. www.youtube.com/watch?v=53zp... VOTE HERE: invisibleillness.crowdicity.com/post/896951

polybio.orgUltrahigh resolution 7-Tesla imaging of structural abnormalities, cerebrospinal fluid flow, and other symptom mechanisms in patients with infection-associated chronic disease - PolyBio Research Founda...Project summary:A carefully conceptualized series of MRI brain scans using ultrahigh resolution 7-Tesla imaging in patients with infection-associated chronic disease (eg:...

7T fMRI of CSF Flow and Brainstem Dysfunction in ME/CFS/LC: @polybiorf.bsky.social funded research at the Martinos Center investigating CSF flow, brainstem and craniocervical abnormalities, cerebral blood flow and autonomic dysfunction. polybio.org/projects/cas... polybio.org/2026-spring-...

youtube.comDay 1 – The Future of MECFS GeneticsYouTube video by Action For ME

ME/CFS Genetics Meta-Analysis: Dr. Hanna Ollila presented findings from 60,542 cases and 2.77M controls, including 11 genetic loci, pituitary tissue signals and strong genetic correlations between ME/CFS, LC & FM. Cases included self-reported chronic fatigue. www.youtube.com/watch?v=47EE...

mefelag.isNew Report from the Icelandic Directorate of Health - The ME Society of Iceland demands improvements and calls on the government to take actionThe Board of the ME Society of Iceland welcomes and endorses the recommendations presented in the newly published report of the Directorate of Health's working group concerning the provision of health...

Iceland Health Directorate Report on ME/CFS/LC, POTS & Environmental Illness: minister-requested group calls for better care, social support, research & training, & an end to harmful rehabilitation. mefelag.is/report-direc...

oc10.meduniwien.ac.atCurrent PhD vacancies | Medizinische Universität Wien

ME/CFS PhD Positions at the Medical University of Vienna: Two fully funded projects on genetic and clinical endotypes, using genomic analysis and electronic health records. Applicants with ME/CFS are welcome. Apply by 22 Nov 2026: oc10.meduniwien.ac.at/open-phd-pos...

zoom.usWelcome! You are invited to join a webinar: Inflammation and Hypermobility in Long COVID, ME/CFS and MCAS. After registering, you will receive a confirmation email about joining the webinar.Featuring: Jeannie Di Bon, Dr. Megan Fitzgerald and Dr. Matthew Menendez

Brain Inflammation Collaborative Webinar 10/29, 12pm PT: Free webinar on inflammation and hypermobility in ME/CFS/LC and MCAS zoom.us/webinar/regi...

actionforme.org.ukRegister for the 4th PRIME webinar: The Neurology of ME/CFSRegister for the 4th PRIME webinar about neurology in ME/CFS. The webinar is part of the PRIME research project and is online.

PRIME Neurology Webinar Reminder: International researchers explore ME/CFS neurology on 28 October, 2-5 pm GMT. Online via Zoom. Register: www.actionforme.org.uk/register-for...

kpbs.org'Nobody knows what to do': How Long COVID left Physics Girl searching for answersSan Diego's Dianna Cowern, also known as Physics Girl, was one of the internet's most popular science communicators. Long COVID left her bedbound and facing a medical mystery with life-and-death stak...

@physicsgirl.bsky.social Long COVID/ME/CFS Article: Dianna Cowern describes severe illness and partial gains with experimental treatments. www.kpbs.org/news/arts-cu...

salzburg.orf.atWallersee-Spendenwanderung für ME/CFS-Patienten80.000 Menschen sind österreichweit an Myalgischer Enzephalomyelitis (ME/CFS) erkrankt, mehr als 4.000 davon in Salzburg. Um für die Erforschung der auch als „Chronisches Fatigue-Syndrom“ bekannten Kr...

Wallersee ME/CFS Charity Hike: 1,250 Austrian students raised funds for WE&ME Foundation research into ME/CFS and post-viral illness, while raising awareness salzburg.orf.at/stories/3376...

cbsnews.comNo Surprises Act shielded patients from big medical bills. Now its arbitration system may be raising costs.Healthcare providers and middlemen are exploiting a loophole in a 2020 law designed to shield consumers from surprise medical bills.

No Surprises Act Arbitration Profits: The law protects patients from surprise out-of-network bills, but created a lucrative industry of paid arbitrators & billing middlemen. The fees & inflated provider payouts add to healthcare costs. www.cbsnews.com/news/no-surp...

coresinai.orgManual — The Cohen Center for Recovery from Complex Chronic Illness

ATLAS Dysautonomia Manual Safety Concerns: David Putrino’s lab endorses this progressive POTS rehabilitation protocol for ME/CFS but patient safety concerns include delayed PEM, cumulative overexertion and suitability across severity levels. www.coresinai.org/manual

biospace.comBMS reveals death from septic pneumonia of multiple sclerosis patient in CAR T trialThe disclosure—which came ahead of a presentation of data from the Phase 1 Breakfree-2 study at the ACTRIMS-ECTRIMS meeting—follows Bristol Myers Squibb’s late summer revelation that it had paused cer...

CAR-T & Autoimmune Disease Safety: A patient died during a MS CAR-T study previous trials were paused after fatal immune complications. Experts are questioning the risk-benefit balance of CAR-T for nonfatal diseases. www.biospace.com/drug-develop...

action.aclu.orgStop Censorship and Termination of Scientific ResearchThe Trump administration is unlawfully censoring medical research - cutting off funding for studies on Alzheimer's, cancer, HIV, and other serious conditions to censor views it disagrees with. Science...

Take Action NIH Research Censorship: Urge Congress to restore terminated grants & stop political interference in research, including studies of chronic diseases. action.aclu.org/send-message...

frontiersin.orgFrontiers | A novel model demonstrating that human immune cells promote multiorgan SARS-CoV-2 dissemination and human T cells limit anti-viral innate immunityIntroductionDespite extensive studies, many questions remain regarding the pathology and mechanisms behind Coronavirus disease 2019 (COVID-19), and particula...

Humanized Mouse SARS-CoV-2 Persistence Model: In mice, human immune cells increased viral RNA across organs; T cells dampened antiviral responses. Viral RNA persisted 8 weeks. www.frontiersin.org/journals/imm...

cell.comGut-derived glucagon-like peptides attenuate T cell-induced intestinal injuryKoehler et al. demonstrate distinct physiological roles for GLP-1R and GLP-2R signaling in protecting the intestine from αCD3-induced enteropathy. Conversely, GLP-1R/GLP-2R agonists, administered sepa...

GLP-1 and GLP-2 in Gut Injury: In mice, both hormones helped limit T-cell-induced intestinal damage, highlighting their potential to reduce inflammation and restore mucosal integrity. www.cell.com/cell-reports...

bbc.comBeth Dobbin writes to Andy Burnham calling for increased funding into ME researchFormer British sprinter Beth Dobbin calls on Prime Minister Andy Burnham to fund more research into "life-decimating" ME.

Olympian Beth Dobbin Calls for ME Research Funding: After revealing her ME diagnosis, the former Team GB athlete wrote to Andy Burnham urging the UK government to invest more in research. www.bbc.com/sport/athlet...

kffhealthnews.orgCMS' Authority To Kick Providers Out Of Medicare And Medicaid May Cost Hospitals - KFF Health NewsHospitals could be saddled with higher administrative and legal costs as CMS expands its fraud oversight authority without clearly detailing how providers could challenge any decisions, Modern Healthc...

CMS Medicare/Medicaid Exclusions: Expanded authority to bar healthcare organizations could raise hospitals’ legal and administrative costs, while leaving unclear how providers can challenge decisions. kffhealthnews.org/morning-brea...

cell.comLong COVID is associated with lipoxygenase-catalyzed metabolism of essential polyunsaturated fatty acidsHealth sciences; Medicine; Medical biochemistry

Resolvin D1 in ME/CFS/LC: In 106 participants from a RECOVER symptom-defined WHO-LC cohort, researchers found altered lipoxygenase activity and reduced RvD1. Reduced RvD1 has also been reported in ME/CFS research. www.cell.com/iscience/ful...

painnewsnetwork.orgCongress Needs to Fund Solutions to America's Most Neglected Disease — Pain News NetworkBy Dr. Ilene Ruhoy  Twelve years ago, I got sick — and no one believed me. Doctor after doctor dismissed my symptoms, writing them off as everything from chronic sinus infections to perimenopaus...

ME/CFS Research Roadmap: Neurologist Ilene Ruhoy urges Congress to fund it with $50 million, saying promising research is stalled by lack of funding. www.painnewsnetwork.org/stories/2026...

youtube.com2026 Solve M.E. Community AddressYouTube video by SolveME

@solveme.bsky.social State of the ME/CFS Union Recording : Emily Taylor outlines shift from defending research funding/federal programs toward funding promising science, translating discoveries into treatments, & building advocacy power. www.youtube.com/watch?v=IQIE...

meaction.netThings We Caregivers Wish We Had Known | #MEActionJoin us for the roundtable discussion facilitated by Denise Lopez-Majana on Sunday, November 1st at 3pm ET. Click for details.

@meactnet.bsky.social Nat'l Caregiver Month Roundtable: Nov 1 at 3 pm ET. Caregivers share practical strategies, resources, & support for ME/CFS caregiving challenges. Submit Questions by 10/31 www.meaction.net/event-detail...

hillaryjohnson.substack.comDefining MEHow the NIH hamstrung early ME researchers

Hillary Johnson’s Defining ME: Examines how NIH decisions constrained early ME research and shaped the field’s understanding of the disease. hillaryjohnson.substack.com/p/defining-me

heute.at5.000 Patienten pro Jahr – Wien eröffnet neue Ambulanz | Heute.atME/CFS und Long Covid: Wien eröffnet 2027 erste Spezialambulanz für postakute Infektionssyndrome und verbessert damit die Versorgung Betroffener.

Vienna ME/CFS/LC Clinic: A new public-insurance outpatient clinic for moderate to severe cases is planned for summer 2027, with low-stimulation rooms, beds and telemedicine. €3.8m annual operating budget. www.heute.at/s/5000-patie...

gofundme.comDonate to Treatment for James, organized by Galen WardenJames Strazza has very severe ME/CFS and has been 100% bed bound and unable to care for himself since… Galen Warden needs your support for Treatment for James

James Strazza’s Book, Lowcountry: His posthumous book brings together poetry, reflections on severe ME/CFS, and his final diary. @galen2.bsky.social has repurposed James’s treatment GoFundMe to fund publication. See the latest update for details: www.gofundme.com/f/treatment-...

@openmedf.bsky.social CTN-Lite PEM Survey Webinar Recording Available: Dr. Danielle Meadows shares survey findings on PEM patterns, triggers, symptoms and trial outcome measures, and how patient feedback is shaping decentralized, patient-centered

emerge.org.auDisability Support Pension - Emerge AustraliaThe Disability Support Pension (DSP) is a Centrelink payment providing financial support if you have a physical, intellectual or psychiatric condition that stops you from working. Click here to access

Australia DSP Q&A Nov 10 2pm AEDT: @emergeaustralia.bsky.social is hosting a live session for people with ME/CFS/LC applying for the Disability Support Pension. Free self-paced module, recorded video and doctor’s letter template also available. emerge.org.au/disability-s...

docs.google.comDisability Voting Rights Week 20206Disability Voting Rights Week 2026 Voter Resources We have compiled a list of voting resources to support our community’s access to vote. Plain language guide: https://autisticadvocacy.org/policy/t...

Disability Voting Rights Week Resources: Two weeks until Election Day! @meactnet.bsky.social shares nonpartisan resources to help people with ME/CFS prepare to vote, understand their rights and navigate voting access. docs.google.com/document/d/1...

x.comS Blitshteyn MD, FAAN, FANA, Dysautonomia Clinic (@dysclinic) on XPeople may not know this, but I started my neurology career at a large practice dedicated to #multiplesclerosis. As a young neurologist at the time, freshly out of my Mayo Clinic neurology training, I...

Svetlana Blitshteyn Responds to Applegate’s MS Misdiagnosis: A neurologist specializing in autonomic disorders, notes that some patients diagnosed with MS instead have small fiber neuropathy, dysautonomia or autoimmunity, conditions also seen in ME/CFS. x.com/dysclinic/st...

variety.comChristina Applegate Reveals She Was Misdiagnosed With MS: ‘I’m Back at Square One’ and It’s a ‘Mindf—’Christina Applegate returned to her podcast, "MeSsy," on Tuesday with some shocking news: She was misdiagnosed with MS.

Misdiagnosis and Undiagnosed Illness: Christina Applegate learned she doesn't have MS, but her disabling symptoms remain unexplained. Her experience highlights the toll of losing a diagnosis without getting answers. variety.com/2026/tv/news...