ME Research UK

As a reminder, Symptom Saturday is our ongoing series that has been running over the past two months, dedicated to exploring core and additional symptoms of ME/CFS to help further understanding of this profoundly debilitating disease. Keep up to date with the series: tinyurl.com/symptomsatur...

ME/CFS-related fatigue is not everyday tiredness, nor is it normal fatigue experienced by healthy people. It is a crushing symptom felt throughout the entire body. For Symptom Saturday, we drew together some of the common themes about the experience of fatigue: tinyurl.com/fatigueimpac...

ME Research UK Christmas cards are now on sale. All profits aid our work. Full Details - tinyurl.com/3fdu9xac

ME Research UK has published articles reflecting on ISLC-PAIS 2026. 1: Highlights from ME Research UK–funded projects (tinyurl.com/246rj47b) 2: Systems thinking, terminology, and negative trials (tinyurl.com/2fw5rt95) 3: What worked well and areas for further consideration. (bit.ly/4dgOAU6)

@bsky.app ME Research UK's September e-newsletter has been sent to all on our mailing list. Also available on our website - tinyurl.com/yvnety7y - but why not sign-up to receive new issues directly? - tinyurl.com/mr45azsf

October is Dysautonomia Awareness Month. Dysautonomia encompasses conditions that affect the autonomic nervous system, e.g. orthostatic intolerance (including PoTS), and can significantly impact quality of life. People with ME/CFS often report related symptoms. tinyurl.com/dysauto2026

In the fourth deep-dive of our weekly Symptom Saturday series, we explored debilitating fatigue in ME/CFS – including lived experience, research insights, related diagnostic delays, and management. Read more: tinyurl.com/fatiguesympt... Survey: tinyurl.com/fatiguesurve...

In case you missed it - Sleep dysfunction can feel like a heavy weight on top of an already debilitating condition. We have drawn together some of the common themes about the experience of sleep dysfunction from our recent survey. tinyurl.com/sleepdysmeim...

In the third deep-dive of our Symptom Saturday series, we explored sleep dysfunction in ME/CFS – including lived experience, patterns of sleep disruption, and research suggesting challenges across the brain and nervous system. tinyurl.com/sleepdyssymp... Survey: tinyurl.com/sleepdyssurv...

Cognitive dysfunction is an intense, deeply distressing symptom that can erode many aspects of life. Careers are impacted, hobbies become exhausting or impossible, and relationships grow strained under the weight of this symptom. tinyurl.com/brainfogimpa...

In the second deep-dive of our weekly Symptom Saturday series, we unpacked the reality of cognitive dysfunction in ME/CFS – including lived experience, key insights from research spanning interconnected body systems, and comorbidities. tinyurl.com/brainfogsymp... Survey: tinyurl.com/brainfogsurv...

Whilst every individual’s experience is unique, it is striking how many shared themes emerge across the PEM survey responses. When people from all walks of life describe similar physical experiences, it offers a powerful insights into ME/CFS. tinyurl.com/PEMimpactME

Tomorrow, we’re kicking off Symptom Saturday – an ongoing series dedicated to taking an in-depth look at one core or additional symptom of ME/CFS at a time. Weekly, we will explore relevant research, guidelines, lived experiences, and management. Keep an eye out on our website: www.meresearch.org.uk

A team of researchers recently published a manuscript in Nature Communications highlighting that muscle problems in long COVID and ME/CFS cannot be explained by prolonged inactivity. Press release: tinyurl.com/3zrppbuw ME Research UK is acknowledged as one of the funders.

For ME Research Day 2026, ME Research UK have highlighted how collaboration and knowledge sharing are vital for accelerating discovery in ME/CFS research. Find out more: bit.ly/4p0oKZ1 #MEResearchDay2026

Knowledge sharing is essential at all stages of ME/CFS research, spanning both career progression and the full scope of a project. Find out more: tinyurl.com/bdeefnz9 #MEResearchDay2026

Collaboration plays a key role in many ME/CFS research projects, and is widely recognised for boosting productivity, accelerating innovation, and improving problem-solving. Learn more: tinyurl.com/ym4h9nyx #MEResearchDay2026

For ME Research Day 2026, ME Research UK asked researchers working on projects funded by the charity for their experience of working collaboratively. Here is what they had to say: #MEResearchDay2026

Yesterday marked the second ME Research Day, a day which was launched by ME Research UK in 2025 to mark 25 years since the foundation of the charity. This year, the focus of ME Research Day is ‘knowledge sharing and collaboration in ME/CFS research’. Find out more: bit.ly/3QdkJ6O #MEResearchDay2026

For Research Appreciation Day 2026, ME Research UK's Researcher Circle is being opened up to all PhD students and early career researchers working on biomedical ME/CFS research projects. Find out more: tinyurl.com/2armp77c

The 5th July 2026 marked Research Appreciation Day and ME Research UK would like to again extend a well done to all those working on ME Research UK-funded studies who have made great strides in their work: bit.ly/4olqfAF #ResearchAppreciationDay

Yesterday marked Research Appreciation Day, celebrating the hard work of health researchers around the world. Therefore, we highlight the work ME Research UK is currently funding and celebrate the hard work of all researchers involved. tinyurl.com/28275z5y #ResearchAppreciationDay

On securing major EU Horizon funding co-lead Prof Simon Carding says "My ME Research UK grant played no small part in developing and validating experimental protocols and bioinformatic pipelines that underpin studies proposed in DISCOVER-ME..." More - tinyurl.com/8spcke28

For ME Awareness Week 2026, we discussed ME/CFS symptoms, impact, and research. For ease of access, these are links to our overview articles: ME/CFS symptoms and impact - tinyurl.com/MEAW26impact ME/CFS research - tinyurl.com/MEAW26research

Many congratulations to Hollie Byrne, Sarah Knight and the team at Murdoch Children's Research Institute, whose research paper on hypothalamus connectivity in adolescent ME/CFS was recognised as a top viewed article for 2025 in the Journal of Neuroscience Research. bit.ly/4erLnPk

In 2024, @MEResearchUK initiated the “Founders’ Science Writing Award”. This year, early career scientists are invited to discuss heterogeneity in ME/CFS research populations. Cash prizes for winning entries. More info: bit.ly/4tHXlwr #MECFS #MEresearch

This week is ME Awareness Week (11th - 17th May 2026). ME/CFS is a complex and debilitating disease that significantly impacts the lives of affected individuals. Read more about the symptoms and impact of ME/CFS: tinyurl.com/MEAW2026

ME Research UK currently has more than £2 million invested in 14 ME/CFS research projects across the globe. These cover a range of different scientific areas, and you can read more about them – and other recent studies – on our website: meres.uk/current.

ME Research UK's April e-newsletter highlighting our activities this month has been sent to all on our e-mailing list and is now available on-line - tinyurl.com/mvyyrefy

Considering the prevalence of long COVID is a complex issue. In a series of articles, ME Research UK will take a closer, unbiased look at existing estimates, and, most importantly, the limitations of the studies that calculated them. Read more: tinyurl.com/2d67m2mu

ME Research UK's charity year ended on 31 October and we want to take this opportunity to review what the last year has meant for us, focusing on our three key activities of Investing, Informing and Influencing. Thank you so much for your continued support bit.ly/3VmbD6W

ME Research UK currently has £1.9m invested in 16 ME/CFS projects around the world, and in 6 areas. This work wouldn't be possible without the generosity of our supporters, including via the Big Give Christmas Challenge which runs until tomorrow bit.ly/biggivemeresearch24