Carrie Marshall - MySeveralWorlds.com

After a difficult period that took everything from me, I left #Taiwan on Dec 28 and returned to #Canada for support & #MedicalStability. I started a #GoFundMe to cover essentials for my health & treatments which are weighing heavily on me. Chronically yours, Carrie 🙏 🔗 gofund.me/1461d308d

The Surprising Thing About Chronic Pain buff.ly/2Lvfo5n I’ve lived w. #ChronicIllness for 20 years & have gone through flares that are so disabling that I imagine this is what hell feels like. IMO, one cannot deal w. #ChronicPain when they’re defeated mentally. @achronicvoice.com

"Disabled people & 'being controlling' "When you interact w. a disabled person who is 'being demanding' look again. Maybe all they are asking for is basics that will allow them to function, to be part of society, & to not get worse." 🔗 www.stickmancommunications.co.uk/post/disable... #disability

We rarely see #fibromyalgia in the news here: #Singapore "No two patients are the same. Clara likened her #pain to numbness crawling from her neck. Daisy struggles with #BrainFog. Jin Jie endures a deep-seated ache. Rina, a stabbing sensation. www.channelnewsasia.com/cna-insider/...

The key for me here is IF I ASK because after 19 years, I don't want to hear suggestions anymore. Last week someone suggested weight training while having zero understanding that my spine and joints are ruined or that I suffer from extreme PEM. Credit: skyepolk #MySeveralWorlds #UnsolicitedAdvice

Today is a #HIPDayHigh intensity #ChronicPain feels like being wrapped in barbed wire. When symptoms such as stabbing and electric pain start hitting at high intensity, #depression follows fast and your #MentalHealth spirals. It really feels like you are dying. ~Carrie, MySeveralWorlds.com

When I get 'snakes in my brain', I know my fibromyalgia is going bonkers. It literally sounds like hissing snakes and I actually put snake emojis on my pain trackers to track it. ~ Carrie Marshall #MySeveralWorlds #TeamFibro #SupportFibro #FibroNerds #FibromyalgiaAwareness 🐍🐍🐍

A summary of nights this week... "They knew I'd be too powerful if I could sleep at night." Credit Unknown #MySeveralWorlds #SleeplessNights #PrimaryInsomnia

The Surprising Thing About Chronic Pain buff.ly/2Lvfo5n I’ve lived w. #ChronicIllness for 20 years & have gone through flares that are so disabling that I imagine this is what hell feels like. IMO, one cannot deal w. #ChronicPain when they’re defeated mentally. Via @achronicvoice.com

A brief story of what happened to me at the CP Chamber Mixer and the event I attended on Tuesday with my bestie. I paced, I sat, I stayed within two hours. I still suffered after! #SpoonieLife #ChronicPainAwareness #ChronicIllnessAwareness #MySeveralWorlds

"Most don't understand with chronic illness how symptoms stack. You're dealing with 10 things that pile on each other. It's never one symptom that destroys you. Most of us can tolerate one. It's the combination that breaks us." @thepotspostman.bsky.social #ChronicTruths #MySeveralWorlds

Driving at Golden Hour out in the country. I had an event at a winery. (I don't drink.) I wore my autumn qipao and it was my first time driving so far. Driving home in the pitch black that night was my first time in 23 years in Canada. Blasted The Cult's Fire Woman! It felt appropriate.

Things to Do On Bed Rest: Education #Advocacy & Volunteering ~ @achronicvoice.com "Even if you aren’t a blogger, you can help. Reading & resharing blog posts from other #ChronicIllness & #disabled bloggers helps raise awareness." 🔗 buff.ly/3OGUdPd #StrongerTogether #BloggingCommunity

“Those of us with #ChronicPain wake up every day with pain. This automatically causes a problem with the standard pain scale… Some of us never have a zero… People who don’t have chronic pain often have a hard time understanding that.” buff.ly/DV4J65r

Chronic noise exposure may do more than harm your hearing. New research linked repeated loud sound to dopamine neuron death and movement issues in mice, offering insight into how environmental noise could contribute to Parkinson’s disease. Read more: bit.ly/3Xhya5f

Chronic noise exposure may do more than harm your hearing. New research linked repeated loud sound to dopamine neuron death and movement issues in mice, offering insight into how environmental noise could contribute to Parkinson’s disease. Read more: bit.ly/3Xhya5f

My #AxSpA Story for @spondylitis When I was diagnosed w. #AnkylosingSpondylitis in 2009, we didn’t know the #DelayToDiagnosis meant I had damage that couldn't be fixed. Learn how robotic exoskeletons help patients like me. #disability 🔗 spondylitis.org/patient-stor...

@achronicvoice.com writes about her life w. #ChronicIllness & #disability. "To provide insight into life with #ChronicIllness is to put your vulnerabilities on public display. It means showing fragments of a broken body, and wounds that will never heal." Read it: buff.ly/3C3SVZ7

Only 62% of Canadians with disabilities aged 25 to 64 have jobs, compared to 78% of Canadians without disabilities. Persons with disabilities who are working often have lower paying jobs that have less stability, fewer benefits, and limited chances for career growth. 🔗 www.canada.ca/en/employmen...

"Between 20 to 40% of people with arthritis experience a mental health disorder." Image Credit Unknown Stat from Arthritis Research Canada #MySeveralWorlds #ArthritisAwareness #MentalHealthMatters #Depression

I chose two hours of joy to support my best friend at his event. I drove into the country, unloaded my wheelchair and had a fab time. The cost of living always comes with harsh consequences? "You overdid it & made me flare, b-tch Me Me" Unkown #MySeveralWorlds #FlareDay #ChronicPainAwareness

"Before I say yes, I calculate: Will one moment of living cost me a day, a week or more? Some people call it overthinking. But this is the math of chronic illness. Every yes comes with a price only your body can see." Credit: @cfshealth #MySeveralWorlds #pwME #ChronicTruths

"When I think about what will be presented at healthcare conferences, I am frustrated. I don’t want an app to tell me how to track my fitness goal, but that’s what is popular. Digital med reminders are not what I need when I’m poor & can’t afford meds."  🔗 myheartsisters.org/2014/07/13/e...

“A lot of people think that #RheumatoidArthritis is just bad #arthritis, and it’s not. It’s systemic. It can attack your lungs and kidneys and you can get vasculitis. The chances of going into remission are very low, probably less than 5%." 🔗 www.ama-assn.org/delivering-c...

"I presumed I was fine since I did not experience pain, & continued to eat, drink & play sports as usual until I developed multiple #DVTs & a #PulmonaryEmbolism that nearly cost me my life. It also activated #AutoimmuneDiseases." 🔗 www.achronicvoice.com/antiphosphol... #APS @achronicvoice.com

In this week's episode of Oh, I Didn't Know That, Amber talks with Carrie about her journey navigating Taiwan's healthcare system as a foreigner with autoimmune disease. This is part 2. Part 1 is an intro to Carrie and #axSpA, a type of inflammatory arthritis. 🔗 www.rti.org.tw/en/programne...

"Some days my #legs would puff up and become hot & red. Other days they ached non stop like I’d been running or dancing for hours on end. I am amazed at how much I normalized my extreme #LegPain.": buff.ly/IT2jvkM by @myseveralworlds.com #ChronicPain #RA #fibromyalgia #ChronicIllness #arthritis

"my current #rheumatologist, I call him Dr. Badass & he loves that. He’s a total boss. I really love him. He is #supportive. He educates me. He encourages me. Like he’s everything u want in a rheumatologist.": buff.ly/jhKgDQc via realcc @myseveralworlds.com #doctor #ChronicIllness #advocacy #AxSPA

A nice play on a familiar graphic... I turned it up a notch for us chronic folks! Why you should never offer health advice... Someone's health (illustrated as large circle) What you know about it! (The tiny dot in the circle.) Credit: Carrie Marshall #MySeveralWorlds #ChronicallyIconic

"I am #grateful that I can..Do the household #chores or #exercise until it aches, because it means that the #pain in my joints & muscles are well behaved & my fatigue levels are at bay. It is a treat to be able to swap a bad #ache for a good one!": buff.ly/3wPvQ4j #disabled #ChronicPain #spoonie

“Nobody knows what it takes for someone to get out of bed in the morning and function… Nobody fakes being unwell or #disabled… Be kind. Don’t be so quick to judge.” https://orkneyfibromyalgiasufferer.com/2024/08/13/we-dont-fake-being-sick-we-fake-being-well/ #ChronicIllness #ChronicPain

❓How does hypervigilance manifest in you with fibromyalgia? We'd love to hear from you. HYPERVIGILANCE in FIBROMYALGIA Learn more... Image @dearfibromyalgia #MySeveralWorlds #TeamFibro #SupportFibro #hypervigilance #FibromyalgiaAwareness

Elisabeth Kübler-Ross' work helped helped change attitudes toward pain control and death. She identified the five stages of grief experienced by people who are chronically ill: #Denial, anger, bargaining, depression & #Acceptance #Grief #Disability #ChronicIllness

"A light bump, pinch or punch can add a new bruise to the endless collection. I’m often surprised to find a new one hidden somewhere on my body" 🔗 www.achronicvoice.com/2021/07/14/b... @achronicvoice.com #AntiphospholipidSyndrome #PulmonaryEmbolism #ChronicPain #APS #MedTwitter

"Everyone is fighting a battle you don't know about. Except for me. I am complaining loudly about my battle. Everybody knows about it." Credit Unknown #MySeveralWorlds #Spoonie #ChronicMeme

Top 5 barriers disabled people experience walking and wheeling Quality of pavements 77% Street clutter (A boards, ebikes, bins) 65% Pavement parking 57% Ebikes or scooters ridden on pavement 50% Lack of dropped kerbs 50% Credit Unknown #MySeveralWorlds #DisabilityAwareness #DisabilityInclusion

"We often tell ourselves or others to be strong. Instead of instilling inspiration... it becomes another standard we have to meet. You don’t have to be strong all the time. One small step forward is still a powerful act." Via @achronicvoice.com 🔗 www.achronicvoice.com/2018/05/13/y... #ChronicPain

“The whole thought process of a #chronicallyill person is vastly different from a “healthy” person… they have no idea what it’s like—there may be 20 or more decisions you need to process before you can walk out your door.” 🔗 buff.ly/46vXYyv @KimberlyJPenix #Spoonie

How our noisy world is seriously damaging our health "In Barcelona there are an estimated 300 #HeartAttacks and 30 deaths a year just from traffic noise, according to researcher Dr Maria Foraster, who has reviewed evidence on noise for the WHO." 🔗 www.bbc.com/news/article...

Their Own Words: #MECFS & #Fibromyalgia Patients Describe Their Symptoms @cortjohnson.bsky.social "I would not wish this illness on my worst enemy (if I had one)... sometimes I wish the naysayers could live in our bodies." 🔗 www.healthrising.org/forums/resou... #MEAwareness #FibromyalgiaAwareness

When you live with #ChronicAnxiety, sometimes you want to switch your brain off. "It’d be nice if I could switch my brain off for a couple hours. No #anxiety, no panic attacks, no #depression, no worries, no pain." 🔗 buff.ly/37pXrBD #MentalHealthAwareness @achronicvoice.com

Especially true and often so appreciated by those of us living with chronic illness and/or disability. What would you like to see on this list? "When someone you know is going through a hard time... (text in ALT) UNKNOWN #FriendsGiving #MySeveralWorlds #FriendsGivingVibes

"There is a severe shortage of pain specialists with approximately 30,000 Americans in pain for every board certified pain specialist. This shortage is caused by a difficult path to specializing in pain treatment plus negative public scrutiny." 🔗 www.practicalpainmanagement.com/resources/et...

Warning signs your #InflammatoryArthritis may be out of control again: 🚩 Hot, red swollen joints 🚩 Bilateral joint swelling 🚩 Increased fatigue & pain 🚩 Stiff everywhere 🚩 Fever 🚩 Mouth ulcers 🚩 Dry eyes and mouth 🚩 Uveitis If these symptoms pop up, let your doc know! #WorldArthritisDay

"I gave up trying to get this sports bra off. It's a hat now." Credit Unknown #MySeveralWorlds #SpoonieHumor

The Freedom to Move with #Spondylitis. The last time I wrote for @spondylitis I was testing an exoskeleton. Now I’m cruising in a Robooter X40. Let's learn about life in a #PowerWheelchair 🔗 spondylitis.org/patient-stor... #SeeTheInvisible #MySeveralWorlds #InvisibleDisabilitiesWeek

My #insomnia was diagnosed in uni. "Primary insomnia is a type of chronic insomnia as defined by the ICSD-III. It tends to recur for many years throughout a person’s life. This type of insomnia is usually idiopathic... It can be impacted by stress." 🔗 www.psychiatrictimes.com/view/primary...

If a patient tells you that they are in pain, believe them. If a patient tells you they cannot take a certain med, believe them. If a patient discloses their personal health info to you in hopes that you can help them, BELIEVE THEM. @misaonwheels.bsky.social #MySeveralWorlds #DisabilityAwareness