SEDSConnective

SEDSConnective

@sedsconnective.org

The 1st charity for Hypermobility and Neurodivergence est.2018 Chair @JGjanegreenmbe.bsky.social Patrons: Dr Eccles Dr Spiritos Web: www.sedsconnective.org Link: https://linktr.ee/SEDSConnective

1.9K followers183 following868 posts

Dysautonomia month or dysfunction of the autonomic nervous system includes orthostatic intolerance, POTS and OH. Often with hypermobility and more!

This week is Invisible Disabilities Week! What's your invisible disability? #invisibledisabilitiesweek #iaminvisiblenomoreon #SEDSConnective #Hypermobility

SEDSConnective reposted

#Throwback 2018 Us & BBC start of SEDSConnective & the #BBC. hypermobility (common types) are not rare, just rarely diagnosed, neurodivergence (ADHD Autism Dyspraxia Dyslexia TS ) common to #SEDSConnective #hypermobility #neurodivergence #EDS

SEDSConnective reposted

Against the current discourse we have of denial, disbelief or delay it’s great to hear more supporting embodiment.

Autistic Systems Change@autisticsyschange.bsky.social

I only recently became aware of SEDS & other related conditions through researching my own physical issues, which I had been led to believe where all in my head. But I have long been against the mind body dualism prevalent in our society and I'm very interested in any research on embodied cognition.

Are you passionate about autism, ADHD, dyslexia, hypermobility & related health issues like gut pain, migraines, anxiety and allergies? Would you like to help us raise funds locally & nationally? Get involved! - recruitment@sedsconnective.org to get involved/find out more.

Just because you can’t see it doesn’t mean it isn’t there. What’s one thing you wish people understood about invisible disabilities? #invisibledisabilitiesweek #iaminvisiblenomoreon #SEDSConnective #HypermobilityNeurodivergence

An amazing finale to the 2 day AuDHD summit hosted by ADHD clinics& Dr Chaudhary with Dr Dakin, Dr Nicholson, Dr Saadiq & our chair/founder @JGjanegreenMBE speaking on disbelief, denial and delay in #hypermobility #neurodivergence

Join the AUTUSM ADHD summit with many big names psychiatrists clinicians educationalists entrepreneurs and lived experience all in one. Our chair and founder Jane Green MBE on the 18 October. Open panel discussion you don’t often find this expertise. Tickets in comments @jgjanegreenmbe.bsky.social

📮We, SEDSConnective the hypermobility #neurodivergence charity, are waiting to assess all the implications before rushing to post on the independent review on #Autism #ADHD and mental health

Body and brain are not separate. Our language should not separate them either. That is what neuro-affirmative means to us #SEDSConnective

New research in equine based learning. For - Children and young people under 25 in the UK. Have you taken part in equine-based learning programme in the last 12 months? What's involved? A 15-min anonymous online survey. Take part here: https://bit.ly/3VraQob

October is about more than one condition or diagnosis At SEDSConnective, we’ve always been connecting them Because people don't experience their health in neat little boxes. #hypermobility #neurodivergence

Are you passionate about making a difference for neurodivergent & hypermobile people and the parents and carers who support them? - Make a meaningful difference - Bring your skills, time & enthusiasm Email Recruitment@sedsconnective.org to find out more & apply.

Stability Over Flexibility 🧱 But hypermobile people can also become very stiff and rigid It’s about a safety, stability, strength, control and maintaining useful mobility 🧷 #SEDSConnective #Hypermobility #Neurodivergence

Language matters and evolves. Our terminology card sets out short plain definitions of the terms we use, from neurodivergence and neurodivergent through to neuro-affirmative. We connect and neuro-affirmative language recognises hypermobility and neurodivergence as interconnected aspects

of the whole person. Not two separate things. One person but not all are symptomatic. Free to use and share. #Hypermobility #Neurodivergence #neurodivergent #EDS #ADHD #Autism #Connective #neurodiverse #neurodiversity #NeuroAffirmative #neuroaffirmative #BodyBrain

Did you know there is more under the skin to eczema? Inflammation, anxiety, pain, brain fog and fatigue can all be part of the picture. We are SEDSConnective, the hypermobility neurodivergence charity. #EczemaAwarenessWeek #Hypermobility #Neurodivergence

SEDSConnective reposted

We exist! Hypermobility and Neurodivergence does not disappear by saying it does not exist www.sedsconnective.org the community charity formed from unmet needs changing systems and laying the path for others to follow #hypermobility #neurodivergence

Acceptance and reciprocity ?

MQ Mental Health Research@mqmentalhealth.bsky.social

Joy doesn’t have to be complicated. A global study found that even low-effort, 5-minute acts of kindness or reflection improved stress, mood, and emotional health, especially for people facing greater hardship. https://www.mqmentalhealth.org/small-daily-habits-improve-mental-health/

We exist! Hypermobility and Neurodivergence does not disappear by saying it does not exist www.sedsconnective.org the community charity formed from unmet needs changing systems and laying the path for others to follow #hypermobility #neurodivergence

🪣 Some days you wake up and the bucket is already filling. Heart pounding. Dizzy. Exhausted. Anxious. Then the day begins and the little things start adding up. Dysautonomia. Hypermobility. Neurodivergence. You don't always get to start the day with an empty bucket.

SEDSConnective has joined 50+ organisations calling on the Prime Minister to act on disabled children’s social care. The recommendations are here. We’ve signed the open letter. Will you back the call to sign? ⬇️

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SEDSConnective has joined 50+ organisations calling on the Prime Minister to act on disabled children’s social care. The recommendations are here. We’ve signed the open letter. Will you back the call to sign? ⬇️

'SEDSConnective signed because too many children with hypermobility and neurodivergence are overlooked by social care, health and education affecting them and their families as their carers' - Jane Green MBE Chair SEDSConnective.

Body and head are connected. Let’s stop the silos even if you are affected or perhaps realise this. We’re the 1st charity for hypermobility neurodivergence (2018)

📢The time to act is NOW. For too many years, people living with hypermobility & neurodivergence have been disbelieved & not counted. We’ve been adding our voices 4 global call for change. It’s #TimeToLead #TimeToAct community charity #ncdalliance