@esidsociety.bsky.social Registry ROCKS - come to the Educational Session and the Working party morning session in Maastricht this week
Markus Seidel Lab
Markus Seidel Lab
@seidellab.bsky.social
pediatric hematology oncology immunology | knowledge gain and improvement for patients through collaboration, teaching and research | ideas are bulletproof, and my own | @MedUniGraz.at @esid.org #ResearchMatters #PrecisionMedicine #WissenSchafft
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See what can be learned from real-world documentation in the @esidsociety.bsky.social patient registry baseline dataset about #cvid the most common #iei - Thanks to all contributors and Antonios Gkantaras:
Does CVID exist in children? @esidsociety.bsky.social registry analysis of 7,525 CVID patients shows age-dependent enrichment of monogenic #IEI in pediatric & early-onset CVID-like disease, supporting genetic testing and longitudinal reassessment. rupress.org/jhi/article/... @seidellab.bsky.social
… and see what can be done at @medunigraz.at 😎 through international collaboration: collect data from 7,525 patients with CVID
We’re getting closer to #ESID2026! Can’t wait to see you all in Maastricht. One #immunodeficiency community to learn from each other in order to shape the next #IEI research and care. So, what are you waiting for? 👉 Register by 13 July to save up to €200 invt.io/1bxbonkc7qj
Standort Österreich kann es sich nicht leisten, an Bildung, Forschung und Entwicklung zu sparen ! #wissenSchafft @standupforscience.net #researchmatters #noncecurasenzaricerca
❌️ Die geplanten Kürzungen der Universitätsbudgets hätten massive Auswirkungen auf Forschung, Lehre und medizinische Versorgung in Österreich. 📉 Betroffen wären Studienqualität, wissenschaftlicher Nachwuchs und die Wettbewerbsfähigkeit des Standorts, wie die uniko heute betonte. Mehr erfahren! ⬇️
The time has come to choose what principle will guide our common future in this century: the rule of force, or the force of rules. You’ve been given free access by The Economist. You can open the link five times within seven days. Pedro Sánchez: No to war economist.com/by-invitatio...
Markus Seidel Lab reposted
Markus Seidel Lab reposted
Replying to @jhumimmunity.org
See Reply to the Letter from Markus G. Seidel @seidellab.bsky.social: rupress.org/jhi/article/... See recent article on the ESID registry from Kindle and Alligon et al. rupress.org/jhi/article/...
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ASH has joined more than 230 organizations in supporting the American Academy of Pediatrics’ 2026 Recommended Child and Adolescent Immunization Schedule. Vaccines protect children, families, and communities from preventable diseases. 🔗 www.hematology.org/a... #Fight4Hematology #HemeSky #MedSky
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Researchers are using cutting-edge visual tools to understand how the immune system behaves in tumors. Learn more about how what they are learning could shape the future of cancer treatment: bit.ly/46tEBXX
Markus Seidel Lab reposted
Replying to @jhumimmunity.org
Reply to Paganelli's letter, from Markus Seidel @seidellab.bsky.social: rupress.org/jhi/article/...
Markus Seidel Lab reposted
No joke: I got angry hate mail today for writing an obituary of a Black woman scientist—because the person felt she did didn’t deserve the recognition. Which just makes me want to share it again: www.nature.com/articles/d41...
Challenge no.x after an enlightening conference: back to sobering daily routine work… I prefer to take 2-3 days off to let all the impressions sink in;) #interplay2025 @esidsociety.bsky.social
I love @economist.com quote of the day - has nothing to do with the conference I mentioned in the post, though 🤓
Finally out last Friday doi.org/10.1016/j.ja... and presented yesterday already in front of 801 attendees at #interplay2025 an @esidsociety.bsky.social focus meeting
B-NHL is the most frequent malignancy in patients with #IEI #PID ,new ESID registry study on epidemiology & management of malignancies confirms -preprint at www.medrxiv.org/content/10.1... in time for the ESID-EHA-SIOPe interplay meeting bit.ly/4nCiuWb @esidsociety.bsky.social ehaweb.org siope.eu
🚂 A peine lancés et déjà supprimés ? Sauvons les trains de nuit Paris-Berlin et Paris-Vienne, un voyage bas-carbone largement plébiscité par ses utilisateurs agir.greenvoice.fr/petitions/sa...
#interplay2025 challenge#1 : where is the room? @esidsociety.bsky.social
Yesterday in Ö1 radio, today at Vienna International Center, we are looking forward to a great educational day 1 and fantastic keynote lectures on #cancer in patients with #IEI and the #interplay2025 of the #immune system and #hematology @esidsociety.bsky.social interplay.kenes.com/scientific-p....
An @esidsociety.bsky.social registry study…!
Happy to confirm the validity and utility of the IDDA score congrats and thanks to Malte Schwitzkowski, Sai Verranki, and Ben Seidel, see www.jacionline.org/article/S009... for #AI in #IEI #PID #immunedysregulation
Happy to confirm the validity and utility of the IDDA score congrats and thanks to Malte Schwitzkowski, Sai Verranki, and Ben Seidel, see www.jacionline.org/article/S009... for #AI in #IEI #PID #immunedysregulation
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TODAY IS THE DAY. We’re gathering with science organizations to call for RFK Jr to be impeached and removed — with boxes of 150,000 petition signatures in tow. Join us for our march in half an hour! www.youtube.com/live/3Hi18Fv...
Excited to present at #ESID #EHA #SIOPE 2025 this Nov in Vienna - a rare chance for #immunologists, #haematologists & #paediatriconcologists to connect across fields. Join us and earn up to 14 CME Credits: Register before 29 Oct & save: invt.io/1bxbjuwsiwy #interplay2025
Looking for platelet count’s normal ranges in a preemie of 23w gestational age? WBC, Hb, ANC, ALC… CBC percentiles? See the new paper by Wolfsberger & Seidel et al in Eur J Pediatrics link.springer.com/article/10.1... #neonatology #hematology #neonatalhematology #fetalhematopoiesis #fetalimmunity
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🧬A new Science Immunology study by CeMM, @stanna-ccri.bsky.social, @meduniwien.ac.at, @medunigraz.at & @unibonn.bsky.social uncovers a surprising link between lipid biology & immune defense, with insights for rare immune disorders & cancer immunotherapy. ➡️ tinyurl.com/2ant228p 📄 tinyurl.com/yrbzt7st
See 2 positions: we provide full spectrum pediatric hem-onc-SCT, focus neuro-oncology, retinoblastoma, immunological disorders, cytopenias. clinical trials, translational research, extensive opportunities for individual profess. development & engagement @medunigraz.at #pediatrics #pediatriconcology
Markus Seidel Lab reposted
Thanks for the amazing, inspiring #IEWP #EBMT meeting in a family-like atmosphere among friends in Freiburg @esidsociety.bsky.social #IEI #PID with a fantastic Photo award for the biggest participants’ age difference =52 years!!! Imagine the experience transfer. See you in Vienna #interplay2025
Early bird registration for the ESID EHA SIOPE Focused Symposium 2025 ends 9 September! Join us in Vienna, 18-20 November to explore the connections between #immunology, #haematology, and #paediatriconcology. Special rates for members! invt.io/1bxbfevw4na #interplay2025
B-NHL is the most frequent malignancy in patients with #IEI #PID ,new ESID registry study on epidemiology & management of malignancies confirms -preprint at www.medrxiv.org/content/10.1... in time for the ESID-EHA-SIOPe interplay meeting bit.ly/4nCiuWb @esidsociety.bsky.social ehaweb.org siope.eu
Which malignancies occur in which IEI/PID, and vice versa: basis for future specific screening guidelines, clinical and translational studies in the overlap between human primary immune disorders #PID and #oncology esid.org/html-pages/S...
Markus Seidel Lab reposted
B-NHL is the most frequent malignancy in patients with #IEI #PID ,new ESID registry study on epidemiology & management of malignancies confirms -preprint at www.medrxiv.org/content/10.1... in time for the ESID-EHA-SIOPe interplay meeting bit.ly/4nCiuWb @esidsociety.bsky.social ehaweb.org siope.eu
Markus Seidel Lab reposted
Epidemiology and Management of Malignancies in Patients with Inborn Errors of Immunity - An ESID Registry Study of 19,959 Patients https://www.medrxiv.org/content/10.1101/2025.08.26.25334420v1
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The week beginning Aug 4 was the most dangerous, tragic week of RFK Jr’s tenure yet. A Lancet Editorial outlines why—unpacking a movement that seeks to discredit mainstream medicine and portray institutions and experts as enemies, not partners. tinyurl.com/4zppw6ay
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Wrong target audience, but anyway: a VERY recommended exhibition by www.gittaseidel.com
Markus Seidel Lab reposted
Very proud of this new paper describing a novel human immune defect caused by ASXL1 deficiency. We really had to open the genomics tool box to solve this one, including neat tricks like calculating the epigenetic age. All led by Dr. Catherine Biggs!
Fu et al. identify biallelic germline ASXL1 variants as the cause of a novel #InbornErrorOfImmunity, linking ASXL1 deficiency to epigenetic dysregulation, combined immune deficiency, chronic viral infections, & malignancy rupress.org/jem/article/...
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Viewpoint: To effectively reduce drug costs, the US needs its own price negotiation framework rather than relying on international benchmarks, as proposed by the Trump administration. ja.ma/4o0PF66
Markus Seidel Lab reposted
Markus Seidel Lab reposted
30-year @esidsociety.bsky.social registry analysis of 30,628 patients' longitudinal datasets show results of robust epidemiological studies on natural courses including diagnosis, treatment, and survival, supporting newborn screening and future AI applications in IEI. rupress.org/jhi/article/...
Here it is: Proudly presenting our great collaboration report of the @esidsociety.bsky.social registry at @jhumimmunity.org on #IEI #PID THANKS to all contributors and untiring coauthors :) !! rupress.org/jhi/article/...
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Pam Bondi has hailed as a hero and dismissed charges against a doctor who: Injected children with placebo instead of COVID19 vaccine Destroyed $28,000 worth of taxpayer-funded COVID19 vaccines Sold fake vaccination cards so people could avoid the vaccine His license is still active in Utah.
Registration is open for ESID EHA SIOPE 2025 in Vienna (18-20 Nov)! Join us to explore the intersection of #immunology, #haematology, and #paediatriconcology. Excited to collaborate with colleagues across fields. 👉 Register: invt.io/1bxbhmwedno #Interplay2025
Markus Seidel Lab reposted
📅 Save the Date: ESID 2026 is coming to Maastricht! Join us 14–17 October 2026 for four days of learning, discovery & connection across immunology. Theme: Translational Immunology Beyond Boundaries More soon! 👇 esidmeeting.org #ESID2026 #Immunodeficiencies