Simon Etkind

Ok folks, last chance to complete the CURVE study and help us understand more about communicating uncertain recovery in acute care. We now have over 300 responses from across the UK, can you help us get to 350 before the end of the week? cambridge.eu.qualtrics.com/jfe/form/SV_...

Thanks to the 130+ UK doctors who have taken part in the CURVE study so far! There's still time to fill out our short survey so please consider sharing your views on communicating uncertain recovery. cambridge.eu.qualtrics.com/jfe/form/SV_... @rcphysicians.bsky.social @acutemedicine.bsky.social

Calling all UK based doctors! Take part in our survey to improve Communication of Uncertain RecoVEry in acute care. Follow this link to take part and please share widely with colleagues. cambridge.eu.qualtrics.com/jfe/form/SV_... @rcphysicians.bsky.social @acutemedicine.bsky.social

Our new review of patient centred outcome measures in #palliative care is out: link.springer.com/article/10.1... Pulling together evidence since 2013 with info on facilitators and barriers to implementation

Just out in @palliativemedj.bsky.social: Our practice review brings together the latest evidence on managing gastric outflow obstruction in palliative care Available open access here: journals.sagepub.com/doi/full/10....

Bella Madden, our public research partner, shares a heartfelt poem on anticipatory injectable medications in end-of-life care. The poem accompanies a new research paper exploring family carers experiences with these practices. youtu.be/fHoAaiPG6C8 Read more: doi.org/10.1177/1744...

‘This presents a difficult dilemma for clinicians: should they always provide explicit information, even when it may go against patients’ or families’ wishes?’ This week’s #EAPCblog explores this complex topic eapcnet.wordpress.com/2025/07/15/p...

Our prognostic uncertainty communication study is out, see here for details! Please share with colleagues who may find this useful @rcphysicians.bsky.social apmposts.bsky.social @acutemedicine.bsky.social @gerisoc.bsky.social

Stephanie Meddick-Dyson (@drstephmeddickd.bsky.social) is inviting people to share their experiences of care in the Intensive Care Unit through focus groups or interviews. Please see the flyer or get in touch with Stephanie for more details

What does good look like in situations of uncertainty from serious illness? Rachel Chen presenting her framework of desired outcomes #EAPC2025 Finding security in uncertainty together is the key

Sharing the results of this important study at #EAPC2025: Mapping the #PalliativeCare #Research workforce in the UK 🗺️ - thoughts? Led by @annefinucane.bsky.social -with wide collaboration including @simonnoahetkind.bsky.social & @flissmurtagh.bsky.social Funded by @mariecurieeolc.bsky.social

Multimorbidity drives outpatient service use and is every specialties' business. We need more realistic conversations and better communication. Great presentation @spbowers.bsky.social #EAPC2025. Any data on acute care use?

New and extended roles in end of life care: @drbenbowers.bsky.social presenting his study of UK community nurses post-pandemic experiences @arceastofengland.bsky.social @pcucambridge.bsky.social #EAPC2025

#EAPC2025 kicks off with a plenary on #ILD. #Opioids good for #cough, potentially for exertional dyspnoea and use at the very end-of-life - but not for chronic breathlessness. @eapcvzw.bsky.social

Out today. My amazing PhD student, Miki Fujimoto, supervised with @catherineevans.bsky.social publishes her first PhD paper. This systematic review examines readiness for ACP among frail older adults & develops a logic model to inform intervention development linkinghub.elsevier.com/retrieve/pii...

Out today! Walking the fine line with information provision at the end life is highly nuanced and complex but we provide a workable roadmap to minimise harm and promote beneficence.

Community nurses based in the UK? Please help us evidence how much of your work involves end of life care. Take part in our 10-min max survey study here: cambridge.eu.qualtrics.com/jfe/form/SV_... @theqicn.bsky.social @crystaloldman.bsky.social @johnunsworth10.bsky.social @rosyroo.bsky.social

It's #DyingMattersWeek We're all going to do it. Shouldn't we get our minds around what to expect? Here's a 3 min guide. If you like it, please share it. bit.ly/TheosDFB

Community nurses - how much of your work involves end of life care? Does any of this work have to go deferred? Please help with our short anonymous survey & share widely with colleagues 🙂 Take part here: cambridge.eu.qualtrics.com/jfe/form/SV_... @crystaloldman.bsky.social @theqicn.bsky.social

Open access paper just out on The social determinants of where people die: A study of moderators and mediators using linked UK Census and mortality data. Brilliantly led by @joannamdavies.bsky.social www.sciencedirect.com/science/arti...

Yup, this is why we need to respond to Sir Chris Whittys survey request about medical training for the future. We must plan for a workforce who can deliver healthcare aligned to needs of patients, the majority of which have MLTC. Similar, of course, for nursing/AHP @gerisoc.bsky.social

🚨Our new BJGP paper - community nurses providing palliative care find collaborating with GPs harder, where practices have been moved towards remote dialogue & workforce diversification @bjgp.bsky.social Pls Share. Our paper: bjgp.org/content/earl... @theqicn.bsky.social @crystaloldman.bsky.social

Researchers from the University of Cambridge have found that community nurses providing palliative care find collaborating with GPs harder, where practices have been moved towards remote dialogue and workforce diversification. Read more: www.phpc.cam.ac.uk/news/how-do-...

Marie Curie funded research is looking into the palliative and end of life care research workforce. Can you help? The sessions seek to explore your views on the findings and implications for growing the palliative care research workforce in the UK. See below post for details 👇

Well done to @katieflanagan.bsky.social for presenting a great paper in the @mariecurieuk.bsky.social Hospice Liverpool journal club about the role of #VirtualReality in palliative care for hospice patients. #hapc #palliativecare #medsky #vr @nicolawhite.bsky.social @sarah-stan.bsky.social

Terminal illness is already characterised by uncertainty about the future trajectory. Prognostic uncertainty will become a more central issue if eligibility for assisted dying hinges on prognosis, say @samurray3.bsky.social and @simonnoahetkind.bsky.social www.bmj.com/content/388/...

Really important editorial on predicting survival, prognosis and the current #AssistedDying law

Frailty brings up several important issues in relation to #assisteddying Read our commentary here: academic.oup.com/ageing/artic... @gerisoc.bsky.social

Here are the 24 the identified priorities identified in the priority setting exercise

The Marie Curie Research into Practice Conference 2025 is taking place this week. 🗓️ Feb 11-14, 2025 (Free & Online) ➡️ Register now (it's not too late to join for the remaining days of the conference): mariecurie.ivent-pro.com/events/resea...

Our research with the Health Economics Unit & @mariecurieuk.bsky.social reveals how much public money is spent on health care, social care & social security for those in their final year of life. Over half of the £22bn annual total goes on health care. 💷 Read report: https://buff.ly/3Eqyfxz

Older people make up the majority of those dying each year. @gerisoc.bsky.social concerned about the lack of representation from older people’s healthcare specialists and older people themselves on the witness list for the Assisted Dying Bill - have a look at our website for updates

Practitioners need to take caution when encouraging self-care as illness progresses, as its efficacy weakens as the end of life approaches. #hpm #hapc #palliativecare buff.ly/4gzygNb

Invitation - open until Sunday 12th: If you are a UK-based researcher, or clinician conducting palliative care research, please complete our brief survey to help funders understand what is needed to sustain and grow palliative care research in the UK. Now open until 12.1.25:

First bluesky post! My new editorial with Catherine Evans and @proflizsampson.bsky.social calls out the misuse of 'person-centred care' in policy and outcome measurement as vague and oversimplified, especially for those with dementia. Full article on request! onlinelibrary.wiley.com/doi/abs/10.1...

@thelancet.bsky.social Comment out today: www.thelancet.com/journals/lan... Social and structural determinants of dying well and the complex systems they exist in #palliativecare #socialdeterminantsofhealth

Invitation: If you are a UK-based researcher, or clinician conducting palliative care research, please complete our brief survey to help funders understand what is needed to sustain and grow palliative care research in the UK. Now open until 12.1.25: app.onlinesurveys.jisc.ac.uk/s/edinburgh/...