ukmsregister

Help shape the future of MS research in the UK. Join the UK MS Register if you: ✅ Live in the UK ✅ Are 18 or over ✅ Have a confirmed MS diagnosis Find out more: ukmsregister.org/Account/Regi...

Join us in wishing a warm welcome to Arya! 👋 Arya is a third-year Computer Science & Artificial Intelligence student at Swansea University. She is joining the UK MS Register team for the next 12 months for her Year in Industry placement. We are very much looking forward to getting to know Arya 😊

Hello #MSToronto2026! 👋 Dr Rod Middleton is attending the 10th Joint ECTRIMS-ACTRIMS meeting, where the UK MS Register will be presenting a number of research posters. We're looking forward to sharing our work and connecting with colleagues from across the global MS community.

We were recently sent this photo of Register participant Mark at an MS event. As an active participant of the Register's PPIE group, Mark is a real champion of our study 🙌 If you are hosting an MS event and would like some Register leaflets, please get in touch: contact@ukmsregister.org

Once again we are proud to be supporting partners of the ECTRIMS Patient Community Day 🌍 Dr Rod Middleton will be attending on behalf of the UK MS Register. The event will be live streamed, so you can take part wherever you are: www.ectrimspatientcommunity.eu

The Register are in Llandudno today at the MS Society UK's Community Information Day! Register Senior Data Scientist, Dr Jeff Rodgers, is ready to welcome guests and tell them all about the UK MS Register and how they can support #MS research.

This summer, Esther joined the UK MS Register through the Health Data Research UK (HDR UK) Black Internship Programme. In our latest blog, Esther reflects on the skills she developed, and how the experience has shaped her future career aspirations: blog.msregister.org/hdr-intern-j...

Octopus Trial Update Webinar 📣 📅 Wednesday 23rd September, 6pm 📍 Online Hear from Professor Jeremy Chataway (Octopus Chief Investigator) and Dr Emma Tallantyre (Octopus Recruitment Lead): www.eventbrite.co.uk/e/octopus-tr...

Octopus is a world-first multi-arm multi-stage clinical trial funded by the MS Society.The UK MS Register hosts the registration of interest platform for this trial. In this video, Professor Jeremy Chataway, chief investigator of the trial, shares the interim results: www.youtube.com/watch?v=Fi2U...

📱 How does technology fit into your life with MS? As part of our autumn questionnaires, we've added a new survey exploring technology and social media use. Your experiences can help researchers understand how digital tools affect people living with MS. Read more: blog.msregister.org/new-question...

🍁 Autumn questionnaires are now ready to complete! If you're part of the UK MS Register, please log in and fill in your latest questionnaires. Thank you for being part of our community: ukmsregister.org/Account/Login

The MS Society's latest "Ask the Expert" blog looks at what we know so far about MS risk and prevention, and where science is still searching for answers. Take a look: www.mssociety.org.uk/research/lat...

Work with the UK MS Register! The Register supports research through access to anonymised data, questionnaire hosting, participant recruitment, and input from our PPIE group of people living with MS. Have a research idea? Start the conversation today: 🔗 www.ukmsregister.org/Research/WorkingWithUs

We're pleased to share that a UK MS Register letter written by CI Dr Rod Middleton has been published in The BMJ, highlighting the importance of patient-reported data in MS research. Read more about what this means and why it matters: blog.msregister.org/ukmsr-letter...

☀️ With the current UK heatwave, people with MS may notice their symptoms worsening. Understanding how factors like hot weather affect daily life is valuable for research. Through the UK MS Register, you can log your experiences and help build a picture of living with MS: ukmsregister.org/AboutUs

We’re delighted to share a video interview with the Register’s CI, Dr Rod Middleton. In the interview, Rod reflects on the importance of the data and contributions from everyone who has helped make the Register such a valuable resource over the past 15 years. www.youtube.com/watch?v=fPDM...

Every person who joins the UK MS Register helps build a clearer picture of multiple sclerosis. By sharing your experiences, you can support research, improve understanding of MS, and help shape better care for the future. www.youtube.com/watch?v=2g0U...

Welcome to the team Esther! Esther joins the UK MS Register as part of the Health Data Research UK (HDR UK) Black Internship Programme🎉 We are so pleased to have Esther on board, and look forward to working together in the coming weeks. #BlackInternProg #HealthDataScience

Women living with MS – the University of Leeds wants to hear from you! 📣 Researchers are exploring how Multiple Sclerosis affects women’s everyday lives, including physical activity, wellbeing, and quality of life. Take part here: forms.cloud.microsoft/e/EcC0RmX7MX

It's #WorldBrainDay 🧠 The MS Society have shared a fascinating conversation with Dr Antonio Scalfari, Consultant Neurologist, about brain reserve, what it is and what we can do to help protect it. www.mssociety.org.uk/research/lat...

The Register team have had a fantastic week at Erasmus University Rotterdam, for the International Population Data Linkage Network conference #IPDLN2026 A great opportunity to share our data linkage work through posters and presentations, as well as network with colleagues from across the sector.

New MS study from Imperial College London. Recruiting people with relapsing-remitting MS that are not treated with any disease modifying therapy, or those treated with Ocrelizumab, and people without MS or any other autoimmune condition. ⬇️

Congrats to Register analyst Sarah, and her friend Bronwen, on completing the MS Society's May 50k! 🎉 🎉 They raised over £700 for the charity which will go towards vital work supporting people affected by multiple sclerosis across the UK. Read more in our blog: blog.msregister.org/sarah-comple...

The team have travelled to Edinburgh this week to take part in the MS Society's MS Frontiers conference - the UK's largest biennial conference for MS research professionals. We were thrilled to have so many of our abstracts accepted this year, creating a whole avenue of UK MS Register research!

Read all about it 🗞️ 📣 The latest UK MS Register newsletter is now available online. Contents include our 15th anniversary celebrations, recent events, and a news of a major Register milestone 🎉 Read here: blog.msregister.org/spring-newsl...

This #WorldMSDay the theme #MyMSDiagnosis reminds us that behind every diagnosis is a unique experience. By sharing data and lived experiences through the UK MS Register, people with MS are helping researchers uncover new insights and shape the future of treatment and support.

It's International Nurse's Day! 👩‍⚕️ 👨‍⚕️ 🏆 🏆 Today we acknowledge and celebrate the work of our amazing nursing teams. Read our latest blog to discover more about how the UK MS Register works with nurses to get more people with MS involved in research: blog.msregister.org/internationa...

This week Dr Rod Middleton and Dr Richard Nicholas travelled to Birmingham for the Association of British Neurologists (ABN) Annual Meeting 2026. This has been a great opportunity to once again showcase the work of the UK MS Register.

New Study: Does your menstrual cycle affect your MS symptoms? This study is funded by the MS Society UK and supported by MS Together. To take part, visit ms-menstrualcycle.co.uk/newcastle-la...

Great to see @ukmsregister.bsky.social at the #EMSP2026

Our colleague Rory at the MS Tissue Bank ran the London Marathon last weekend....dressed as a brain! 🧠 Rory has raised an incredible amount of money for the MS Society UK and there is still time to donate via the JustGiving page 👇 www.justgiving.com/page/brain-r...

Researcher Richard Edwards from University of Wolverhampton is currently looking for participants to take part in his study focusing on time to MS diagnosis. Participants can take part remotely. If this sounds of interest to you, please contact Richard for more information: r.c.edwards@wlv.ac.uk

The team are in Sheffield today at the EuroQol UK & Ireland Regional Meeting 2026. UK MS Register clinical lead, Dr Richard Nicholas, is presenting the work we have been doing on the EQ-5D questionnaires.

The Register team have just returned from the Multiple Sclerosis Trust conference; we were proud to showcase our research though our posters and presentations, and welcomed so many engaged visitors to our stand. 👋 Thank you MS Trust team for another great conference! 🎉

Congratulations to UK MS Register senior analyst Dr Jeff Rodgers who is today showcasing his work at Brain Conference 2026 in London🙌 Jeff has been studying Register data and is presenting a poster titled 'Emulating a pseudo-trial of Baclofen and Sativex for MS spasticity using the UK MS Register'.

Did you know that the UK MS Register host the expression of interest for the Octopus trial? This is a revolutionary trial that will transform the way we test treatments for Progressive Multiple Sclerosis (MS). You can read the latest update from the trial here: blog.msregister.org/octopus-upda...

🌸 Our Spring questionnaires are now live on the UK MS Register! If you’re living with MS, your experiences matter. By taking part, you’re helping to shape research, improve understanding, and make a real difference to the MS community. Log into your account here: ukmsregister.org/Account/Login

This International Day of Women and Girls in Science we celebrate the women and girls shaping the future of science. 🔬✨ At The Register, we’re committed to highlighting the groundbreaking work being carried out by women, and supporting the next generation of female researchers 🙌 #IDWGS2026

New study from researchers at University of Birmingham looking into the experiences of pregnant women with MS. More details below 👇

In December 2025, the UK MS Register hosted a Campus Research Day at Swansea University which brought together researchers and supporters of the MS Society UK. blog.msregister.org/campus-resea...

The @ukmsregister.bsky.social hosted a Campus Research Day in December, @swanseauni.bsky.social, bringing together researchers and supporters of the @mssocietyuk.bsky.social, to see how their fundraising activities support important MS research in Wales. 👉 popdatasci.swan.ac.uk/uk-ms-regist...

📣 We are pleased to share that the Register are now part of the NIHR (National Institute for Health and Care Research) Associate PI Scheme 🎉 Read more about the scheme, and how to be involved, in our blog: lnkd.in/e5tBExBJ blog.msregister.org/nihr-associa... @nihr.bsky.social

Congrats to Jess Smith and the team at Convey Law for raising over £6k for the MS Society 👏 🙌 We were delighted to welcome Jess and her father Mike to Swansea University back in August as part of an MS research visit, in partnership with the MS Society Cymru. businessnewswales.com/law-firm-rai...

There's a fantastic new blog post available on the MS Society website written by volunteer Susan Crane. Susan is a participant on the UK MS Register, and a valued member of our Patient and Public Involvement group - the Brainstormers. Read Susan's blog here 👇 www.mssociety.org.uk/support-and-...

PhD researcher Hannah Hollinger, from the University of Highlands and Islands, is currently recruiting to her study. If you have RRMS and currently use a method of cooling yourself please contact hannah.hollinger@uhi.ac.uk directly if you would like more information. Please also feel free to share.

Register PI Dr Rod Middleton is in London today at the National meeting of the ACORD Collaboration. The ACORD Collaboration consists of a variety of groups currently developing, running and reporting MAMS platform trials in neurodegenerative conditions : lnkd.in/geKi-Kpu

Earlier this month Rod from the Register joined MS-UK @ms-uk.bsky.social for an online information session. You can read more about the event, or sign up to watch the recording, by following the link below. Thank you MS-UK for inviting us along! www.ms-uk.org/ms-register-...

In our most recent blog we hear from Professor Klaus Schmierer at Queen Mary University of London about the AttackMS trial which has recently reopened. This trial is the first study to treat individuals with suspected MS at the first demyelinating event. blog.msregister.org/attack-is-ba...

The MS Society 2026 grant rounds are now open for applications! 📣 Did you know that you can apply for any of these Awards with a research project that's using the UK MS Register? Find out more here: www.mssociety.org.uk/research/res...

Want to take your research to the next level?🚀 Sign up for the @ukmsregister.bsky.social's free one-day workshop and learn how to manipulate and analyse synthetic data from the MS Register using the R statistical programming environment. 👉https://popdatasci.swan.ac.uk/uk-ms-register-data-workshop/