Richard Vallée

It's not even exaggerating that content produced about ME/CFS and Long Covid by people with no medical knowledge, here a kids' TV show, is generally better than what experts produce. This is a choice. A choice no reasonable, competent person would make, and yet here we are.

It never, ever happens that a kids' TV show will produce more informed content than actual experts. Just straight up never happens unless something is deeply wrong. And we know that things are deeply wrong with how medicine mishandles those illnesses, that outcomes are horrible. By choice.

One remarkable dynamic when it comes to how health care systems fail chronic illnesses like Long Covid and ME/CFS is that every single assessment, any time in any country, has concluded that it's completely inadequate and must change. And nothing ever changes. Never has, not even one bit.

They even pretty much universally agree about the root cause: psychosomatic ideology. Always. Literally every single report finds that this is the cause of this systemic failure. This rotten ideology is clearly far more important than 100M+ lives to the medical profession. Absolutely rotten.

One remarkable dynamic when it comes to how health care systems fail chronic illnesses like Long Covid and ME/CFS is that every single assessment, any time in any country, has concluded that it's completely inadequate and must change. And nothing ever changes. Never has, not even one bit.

Really, there hasn't been a single serious evaluation that found that anything done was adequate. Literally a 100% failure rate across the board. All by choice. All the consequences of ancient ritual sacrifices, 100-1000x the size, with none of the (hallucinated) benefits.

One remarkable dynamic when it comes to how health care systems fail chronic illnesses like Long Covid and ME/CFS is that every single assessment, any time in any country, has concluded that it's completely inadequate and must change. And nothing ever changes. Never has, not even one bit.

By far the most effective way to bring welfare costs everywhere is to fund medical research, especially for chronic conditions that have long been neglected. It literally costs most to not do the research, so all those whining about how expensive disability is can sit the hell down and shut up.

It's such a human thing to pay more to get worse outcomes that make people suffer needlessly. The root cause of this problem is the medical profession and its fanatical obsession with psychosomatic ideology blinding them to it. All of this is a choice. It can be fixed, or at least improved.

"The people who control an institution care primarily about preserving their own power and status within it, rather than the success, survival, or mission of the institution itself" The idea that there exists any group of people that is above this is comically wrong.

People never look any further or deeper than what their daily routine demands. Even at work. Even experts whose job it is to look further and deeper. They stay in their lane, rock no boat. Almost no one goes against the system when it's against their interest. It doesn't matter what the stakes are.

"The people who control an institution care primarily about preserving their own power and status within it, rather than the success, survival, or mission of the institution itself" The idea that there exists any group of people that is above this is comically wrong.

One major reason why there is still no support or care for chronic illnesses like ME/CFS and Long Covid

This is the second time the organization Sense About Science is trying to hand out an award for courageously standing up... on the neck of sick people. Awards handed explicitly for blocking science and care, immiserating millions in the process.

One major reason why there is still no support or care for chronic illnesses like ME/CFS and Long Covid

All of this is a choice. I will never understand or forgive those responsible. All along it would have been easier and cheaper to actually work to solve those problems, but instead an industrial machine of death and misery was created to perpetuate and amplify it.

Somehow every country is pretending that it's only happening in that country, and nowhere else, despite all of them knowing it's happening everywhere. It was predicted, it was documented, and still they are pretending not to know, because the medical profession is complicit in this Big Lie.

I have sadly been following the crankery machine that is psychosomatic ideology for years. They never actually think about the possible consequences of being wrong. Never actually do, it never gets any further than what it could possibly mean for them, it's always completely superficial.

As if you can intentionally immiserate and destroy tens of millions of lives and just shrug it off. Bunch of weak, spineless babies. "So be it", one of those cranks said. So be consequences, I say.

I have sadly been following the crankery machine that is psychosomatic ideology for years. They never actually think about the possible consequences of being wrong. Never actually do, it never gets any further than what it could possibly mean for them, it's always completely superficial.

So-called "evidence-based medicine" in a nutshell: doesn't work, recommend it anyway. They don't care. No wonder zero progress occurs in illnesses where this failing approach dominates. If this were a commercial product it would be banned. There are no adequate checks & balances in health care.

Anyone who still doesn't understand why there has been zero progress made with Long Covid, POTS and ME/CFS needs to understand that all of this is intentional. It's medicine being incapable of letting go of their psychosomatic fairy tales that ruins everything.

The enshittification of academia in a nutshell: an open label trial with subjective assessment of the very model of care that has been failing the whole time, which they obviously know but pretend not to, is presented as double-blinded when it's not even single-blinded.

Randomized trials are by far the least reliable form of evidence out there and this is just one of so many reasons. Because they still conclude that it should go to larger trials. Which they know is complete bullshit, failure on loop. They are not testing anything. They are selling a lie.