Ryan Burkholder

Ryan Burkholder

@ryan-digital.bsky.social

Father, husband, artist, musician, engineer, fixer, ME/CFS, erosive arthritis and POTS warrior. My music project, Trakzero - https://www.trakzero.com Instrument Farm, my tinkering outlet - https://instrumentfarm.com/

51 followers29 following151 posts

#mecfswarrior #MECFS #mecfsawarenessmonth #invisibleillness #pots #potsawareness #potssyndrome #longcovid #longcovidawareness #longcovidrecovery #volunteer #volunteering #community #givebacktothecommunity #giveback #dontgiveup

Ignored. Lost. Gaslighted. Friends gone. Only my wife understands. Besides the millions of sufferers. #mecfswarrior #mecfsawareness #MECFS #LongCOVID #longcovidrecovery #invisibleillness #gaslighting #gaslightingawareness #healthcare

Gaslighted by another doctor. #MECFS #chronicillness #chronicpain #arthritis #erosivearthritis #pots #potssyndrome #mecfsawareness #mecfswarrior #compassion #gaslighting #gaslightingawareness #abuse #MedicalAbuse #HealthInsurance #Medicade #doctors #healthcareprofessionals #healthcareworkers

Ryan Burkholder reposted

Today we push for Long COVID Awareness. Those with Long COVID become part of the Missing Millions. The living but have no life. They deserve the help they need, the testing, the treatment, and the compassion.

#ME/CFS, #PoTS and erosive #arthritis have been a challenge. As long as I can remember. I could always #bike and swim, loved #swimming all day long. Both are quite doable with PoTS. Unlike track, baseball, basketball, choir, acting or any of the other stuff I wanted to do. Still on two feet! 🖖

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