UK-CAB

UK-CAB

@ukcab.bsky.social

HIV treatment advocates network: Supporting advocates in the UK | Providing expert training on treatment | Ensuring PLWHIV represented at all levels of our care

87 followers31 following16 posts

UK-CAB reposted

This Trans Day of Visibility, and every day, we stand firmly by all trans people, living with or without #HIV. In a year that has demonstrated increasing hostility and transphobia, it has never been more vital to stand up for everybody's fundamental rights 🏳️‍⚧️

UK-CAB reposted

We offer solidarity with our trans followers this #TransgenderDayOfVisibility as we revisit last year’s Lancet #HIV article: #Transgender people accessing #hormones are more likely to stay #undetectable and less likely to become #HIVpositive. i-base.info/htb/50802 #GAHT #HIVsky #GUMsky #TDOV

UK-CAB reposted

Study of #4CMenB #vaccine in #Australia fails to protect gay men against #gonorrhoea: i-base.info/htb/53465 Will other study results be more positive or do we need a better vaccine? #CROI2026 #GUMsky #IDsky #STI #SexualHealth #gonorrhea #GonorrhoeaVaccine #LoveGUM #STIprevention #STIawareness

UK-CAB reposted

New paper in @bmj.com shows GLP-1 receptor agonists can tackle #SubstanceUseDisorder: i-base.info/htb/53421 Could they also help to break #chemsex addiction? #HIVsky #GUMsky #HIV #PLWH #PWH #HIVpositive #GLP1s #GLP1ReceptorAgonists #Ozempic #Wegovy #Mounjaro #semaglutide #tirzepatide #addiction

The HIV Action Plan has promise — but real progress needs action and accountability. Prisons, women, trans people + marginalised groups must not be left behind. You can read our public statement regarding to new HIV Action Plan below.

Recent claims linking autism to Tylenol or vaccines are not supported by science. We stand firmly against misinformation that fuels stigma, fear, and distrust in healthcare. Our community values evidence-based information, respect for lived experience, and the right to safe, informed care.

WHO@who.int

WHO statement on autism-related issues The World Health Organization (WHO) emphasizes that there is currently no conclusive scientific evidence confirming a possible link between #autism and use of acetaminophen (also known as paracetamol) during pregnancy Full statement bit.ly/47YsgwI

We encourage all people living with HIV in Europe to join this short study run by @shareeastlondon.bsky.social & @profchloeorkin.bsky.social to share their experiences with new HIV treatments & conversations with the clinical teams about treatment choices. Visit the page & complete the survey below

Prof Chloe Orkin@profchloeorkin.bsky.social

Our latest study to understand the perspective of people living with HIV in Europe is now live! We created it together with an amazing steering group of community members from 17 countries. Please do the survey if you are living with HIV in UK and Europe and SHARE widely !! 🙏🙏🙏🙏

🚨 Gilead’s lenacapavir could be a game-changer for #HIV — but at $28K/year, it’s priced out of reach for most. Generics could cost <$50. We’re calling on Gilead to make it affordable for all, not just the privileged few. Please find UK-CAB public response below.

📢 #NHSEngland has updated the TAF prescribing policy – mainly to clarify eligibility & introduce a simple approval form (Blueteq). ✅ No changes to patient access. 📄 Clinicians just need to submit a tick-box form. More updates on ART prescription coming soon – we will keep you posted. #HIV

🚨 The Lenacapavir Early Access Programme has closed to new patients. This life-saving #HIV treatment is now out of reach for those who need it most. We urge NHS England & Gilead to act now. Access to Lenacapavir must be restored. Urgently. Community organisations: speak up. Silence costs lives.

Our next UK-CAB members meeting will be on 20th of June 2025. You can visit UK-CAB forum for the details and registration form. We will announce the programme on the forum once it is ready. Looking forward to seeing many of our members in June!

UK-CAB deeply concerned about GSK/ViiV diversity policy implications globally, despite UK/EU assurances. Erosion anywhere sets a dangerous precedent. Our community is alarmed by US policy shifts & PEPFAR threats. Please read our statement below. #HIV #Diversity #GlobalHealth #UKCAB

New @abpi.bsky.social guidance risks excluding #HIV advocates from conferences — suggesting we’re too “impressionable” to hear about treatments. We reject this. People with HIV are informed, critical partners in progress. You can read our response below. #NothingAboutUsWithoutUs #HIVAdvocacy

The UK Community Advisory Board (UK-CAB) is now on BlueSky! Follow and share with your networks. #HIV #HIVAdvocacy #Advocate #HIVtreatment

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