We Are TB

We Are TB

@wearetb.bsky.social

We Are TB is a community of people affected by tuberculosis in the United States. Here to educate, advocate, empower. 💚🌿

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We Are TB
@wearetb.bsky.social

Thank you to the orgs that generously provided financial support to the travel/expenses of We Are TB & Somos TB at the 2026 #TBHillDay. The inclusion of lived experience at all events for tuberculosis is essential, & we couldn’t be there without your support. We are very grateful! #EndTB #TBfreeUSA

We Are TB
@wearetb.bsky.social

Thank you to the NYC DOH&MH for having Lisbeth & David present at their annual “PHA Day!”. We love being a part of this event & getting to talk patient support directly with the staff who provide outreach. Amazing job to our presenters for their passion, insight & commitment to better TB care!!! 🙌💚

We Are TB reposted

National TB Coalition of America (NTCA)
@tbcoalitionamerica.bsky.social

NTCA is pleased to announce a "save the date" for the 2027 National TB Conference (NTC). The 2027 NTC will be held the week of June 21 - 25, 2027. We are returning to Atlanta! More information will be released at a later date. We anticipate opening registration in early 2027l

We Are TB
@wearetb.bsky.social

Thanks MidAtlantic AIDS Education and Training Center for having Kate present her TB story & highlight our support groups at the “What’s New Update: Caring for the Pregnant Patient regarding TB, STI, HIV, Substance Use and Mental Health” event at the Talbot County health department in Easton MD!

We Are TB reposted

National TB Coalition of America (NTCA)
@tbcoalitionamerica.bsky.social

LETTER CLOSES TODAY! Urgent action is needed to ensure access to TB meds for children in the USA. In response, the NSTC Pediatric Formulary Work Group and TB Alliance are sponsoring a pediatric TB drug access congressional sign-on letter. Link:

docs.google.comPediatric TB Drug Access Sign-On Letter Please sign the below letter directed to House Energy and Commerce leaders and Senate Health, Education, Labor, and Pensions Committee leaders to immediately allow the United States to procure pediatric TB medications through the GDF and ultimately to develop a pathway for FDA approval of dispersible pediatric TB drugs so they may be readily available here in the United States. The letter is open to organizations and individual signers. The deadline to join the letter is end of day July 15. For any questions, please contact Donna Wegner at dhwegener.ntca@gmail.com. _________________________________________________ Dear Senators Cassidy and Sanders and Representatives Guthrie and Pallone: On behalf of the undersigned organizations and individuals, we urgently request your support to ensure access to appropriate tuberculosis (TB) medications for children in the United States. Currently, children are treated with pills designed for adults, which have to be crushed or suspended in liquids in an inconsistent manner. While child appropriate formulations of pediatric TB medications are available in more than 123 countries around the world, they are not available to children in the United States because of regulatory and cost barriers. While FDA approval of pediatric TB medications is the ultimate solution, this will take several years and still lacks appropriate funding. We need an immediate solution and urge you to allow the United States to access these medications through the Global Drug Facility (GDF)—a bundled drug procurement mechanism that supplies quality-assured TB treatments and diagnostics to 165 countries worldwide. TB—a highly contagious airborne bacterial infection—is the world’s deadliest infectious disease. Each year more than 10 million people fall ill with TB around the world, including approximately 1.25 million children 14 or younger. In 2024 an estimated 1.23 million people died of TB including an estimated 174,000 children and young adolescents (<15 years). While often fatal if untreated, TB is curable with antibiotics. Although the United States has one of the lowest TB rates in the world, TB outbreaks continue to occur. Between 2017 and 2023, the United States had 50 large TB outbreaks, and in 2025 there were over 10,200 cases of TB in the United States. Recently, a large TB outbreak in Kansas resulted in nearly 70 people developing active TB. Of those individuals, 17 were children aged 15 years or younger—representing 24 percent of all cases in the outbreak. Unfortunately, in large TB outbreak cases in the United States, children 15 years and younger are often disproportionately affected, representing 15 percent of cases compared to 3 percent in smaller outbreaks. This is in part due to ongoing challenges to provide adequate treatment for children in the United States with TB. While most of the world has access to approved, high-quality, effective water-dispersible, flavored pediatric TB drugs, children with TB in the United States are unfortunately treated with arcane methods—with estimated amounts of adult medications being crushed and blended into yogurt, apple sauce, or other foods that the child will swallow. Efforts are underway to bring pediatric dispersible TB medications to the U.S. market directly; however, there is a lack of current funding to formulate and manufacture these products for FDA approval. Once funding is secured, this process will take years, and we need these drugs for our patients now. We are working with the GDF to allow the United States to procure these drugs for patients here at home, however, TB controllers and United States physicians are not allowed to use this drug procurement mechanism despite years of United States government funding support for the GDF. We ask that Congress work with us to immediately allow the United States to procure pediatric TB medications through the GDF or other countries with similarly stringent regulatory authorities and ultimately to develop a pathway for FDA approval of dispersible pediatric TB drugs so they may be readily available here in the United States. Thank you for your consideration. For any questions on this issue, please reach out to Erin Morton with the TB Alliance, at emorton@dc-crd.com. Sincerely,
We Are TB
@wearetb.bsky.social

Thank you so much to @stoptbusa.bsky.social for your support of our members to travel and participate in the 30th annual National TB Conference! We really appreciate your generous and continued support over the years, thanks to you we were able to present posters and train new advocates!

We Are TB
@wearetb.bsky.social

Thank you to the California Tuberculosis Controllers Association for supporting our members and covering travel costs to the 30th annual National Tuberculosis Conference! We can’t wait to see what our new members from CA do next! #TBfreeUSA #TBfreeCA #EndTB

We Are TB
@wearetb.bsky.social

Jyou did an incredible job yesterday, presenting about TB’s impact on her life, especially her education, at the 30th National TB Conference. We are so proud of Jyou for not just delivering a great presentation, but for finishing high school despite huge unexpected challenges! Congratulations! 👏

We Are TB
@wearetb.bsky.social

Thanks to Erin for sharing her experience with #tuberculosis and the impact of isolation at the 30th National TB Conference. We appreciate this opportunity for Erin to share & to help healthcare workers understand the difficulties that isolation places on people in TB treatment and to improve care!

We Are TB
@wearetb.bsky.social

Congratulations to Sue & Maggy for having their posters - “Nutritional Care in TB: From Discretionary to Standard“ (Maggy) & “Access to emotional support in state TB Programs” (Sue) accepted to the 30th annual National TB Conference in Palm Springs California! 👏

We Are TB
@wearetb.bsky.social

Thank you @stoptbusa.bsky.social & ATS for having Kate co-chair the session “The Changing Landscape Of Drug‑Resistant Tuberculosis” at the annual ATS conference. The travel support & the opportunity to interject advocacy points into this session was greatly appreciated! #TBfreeUSA #ATS2026

We Are TB
@wearetb.bsky.social

Congrats to #WeAreTB ‘s & #SomosTB ‘s Lisbeth on receiving the “TB Warrior Award” from NYC’s Bureau of TB Control! Lisbeth has worked tirelessly to break TB stigma by sharing on TikTok & encouraging others to do the same. You can now follow Lisbeth on YouTube too! youtube.com/@pulmoncitos...

We Are TB
@wearetb.bsky.social

It’s World TB Day and we are so grateful for the support We Are TB and Somos TB has received over the years from our partners in the fight against tuberculosis. We affirm our dedication and solidarity with people fighting this disease everywhere. Yes we can! #EndTB

We Are TB reposted

TBFighters
@tbfighters.org

Today is the anniversary of the publication of Everything is Tuberculosis! To celebrate, we’re sitting down with Dr. Jen Furin for her TB Ed Talk, Partnering with People: Compassion and the End of Tuberculosis. Join us this evening at 8 pm Eastern/5 pm Pacific on youtube! #eitb #TBSky

We Are TB reposted

Partners In Health
@pih.org

TB remains the world’s deadliest infectious disease driven by inequality. This World TB Day, join PIH for a virtual event exploring how we eliminate TB for good. 🗓 March 24 | 12 p.m. ET Hear from global TB experts and advocates about the path forward. Save your spot: https://bit.ly/4uKJsyP

act.pih.orgRegister | How We Eliminate TBJoin experts on World TB Day to discuss the history, innovations, and social justice impact of TB, the world's deadliest infectious disease.

We Are TB reposted

Partners In Health
@pih.org

Tuberculosis remains one of the world’s deadliest infectious diseases, but it’s also preventable and treatable. 🌍 Hear from Catherine Biglaiser, a member of PIH Engage, as she shares insights on the fight against TB and what it will take to eliminate it for good. Learn more: https://bit.ly/456k0bE

We Are TB
@wearetb.bsky.social

Diane represented the great state of Ohio & #tuberculosis survivors everywhere in her meetings on TB Hill Day! Thank you to the offices of Rep. Guy Reschenthaler, Sen. John Husted, @berniemoreno.bsky.social and Rep. Joyce Beatty for meeting with Diane & the TB Roundtable! #SwagLikeOhio #TBhillDay

We Are TB
@wearetb.bsky.social

Thank you to the orgs that generously provided financial support to the travel/expenses of We Are TB & Somos TB at the 2026 #TBHillDay. The inclusion of lived experience at all events for tuberculosis is essential, & we couldn’t be there without your support. We are very grateful! #EndTB #TBfreeUSA

We Are TB
@wearetb.bsky.social

Do NOT mess with Texas or #WeAreTB’s Tiffany, who shared her #tuberculosis knowledge & experience this week on #TBHillDay! Thank you to the offices of Rep. Alford, Sen. Cruz and Rep. Juan Cuscomani of AZ for speaking with Tiffany! #EndTB #TBfreeUSA @tbfighters.org

We Are TB
@wearetb.bsky.social

Thank you so much Tori, we are so grateful for your nomination, your support, and for everything you have done for Hill Day! We can’t say enough that we love the @tbfighters.org !!! 💚💚💚💚

Tori ✨@tori.dftba.social

Bumping this up again because this one really means a lot to me. I’m lucky enough to get to work with these amazing people on #tbhillday and a little bonus adventure for #p4a

youtu.be2026 Project For Awesome: We Are TBYouTube video by Tori Sandifer

We Are TB reposted

Gabriele Pollara
@gpollara.bsky.social

Post-TB lung disease - the impact of TB on patients does not end with the course of antibiotics, characterised by substantial long-term pulmonary impairment. Proposed case definition to support assessments and interventions in research studies 👇 #TBSky #IDSky @thelancetinfdis.bsky.social

thelancet.comPost-tuberculosis lung disease: a case definition for use in research studiesDespite growing awareness of the substantial burden of long-term pulmonary impairment among tuberculosis survivors, marked variability in how post-tuberculosis lung disease is defined across research ...
We Are TB
@wearetb.bsky.social

Congratulations are due for to #WeAreTB ‘s Maggy! At the NJ TB Update, Maggy was given the “NJ TB Rockstar award” for all her work advocating for people with TB in NJ, the USA, and the world! We appreciate the opportunity to honor her- Congratulations Maggy!! #TBfreeUSA

We Are TB
@wearetb.bsky.social

Amazing job by Sue at the Four Corners Conference last week in Colorado! Sue gave a passionate talk about her family’s history with TB and the need for social services and support. Sue is an incredible advocate for people with TB and we are so grateful for her activism! #FourCornersConference

We Are TB
@wearetb.bsky.social

Thank you Kelly & Aiyana for your presentation at the New England TB Clinicians Conference! It’s so important to hear from those affected by TB when we talk about the disease. Reminder that Aiyana has also shared her experiences in her recent poetry collection, The Underdream! #tuberculosis

We Are TB reposted

TBFighters
@tbfighters.org

It's a rainy day on Parliament Hill but that isn't stopping our TB advocates in the fight for Canada to #LeadOnTB ! Nearly one hundred advocates are meeting with MPs and Senators today, and you can support the fight to #EndTB too by sending a message to your MP now! pihcanada.org/tell-c...

We Are TB
@wearetb.bsky.social

🚨ACTION ALERT! 🚨Medicare coverage for TB infection is NOT available consistently across the country despite older Americans being at a greater risk! Please this out and contact your representatives! #tuberculosis #TBfreeUSA #Medicare

StopTB USA@stoptbusa.bsky.social

Testing for latent TB infection (LTBI) saves lives and money. But Medicare has stalled... - Over 25 organizations called on CMS to act nearly 2 years ago. -TB cases are the highest in a decade. - Older Americans are at greater risk. @globalsentinels.bsky.social @tbfighters.org @wearetb.bsky.social

We Are TB reposted

Partners In Health
@pih.org

Tuberculosis (TB) is the world’s deadliest infectious disease, yet it often goes unnoticed. Every year, 10 million people fall sick and 1.5 million die. We can change this. Awareness, testing, and treatment save lives. Watch @wearetb.bsky.social Kate O’Brien explain why TB needs to matter 👇

We Are TB
@wearetb.bsky.social

Celebrating the release of Aiyana’s poetry collection, The Underdream, out on August 19th! Aiyana wrote these poems while healing from #Tuberculosis during the height of the Covid-19 pandemic. Pre-order until August 12 for 20% off retail price. Use QR code or check out: www.AiyanaMasla.com/poetry

We Are TB reposted

Clinical Infectious Diseases
@cidjournal.bsky.social

Projecting the impact and costs of near point-of-care tuberculosis screening assays in community-based active case finding ✅ Just Accepted ✍️ @jasonandrews.bsky.social #IDSky

doi.orgProjecting the impact and costs of near point-of-care tuberculosis screening assays in community-based active case findingCommunity-based active case finding (ACF) may reduce tuberculosis incidence and mortality but is not widely implemented due to resource constraints. How novel screening test characteristics would affect the impact and costs of ACF strategies is not clear.
We Are TB
@wearetb.bsky.social

Congrats to Maggy for her graduation from @harvard.edu Business School’s Analytics Program & her Leadership Degree! A #Tuberculosis diagnosis shouldn’t stop you from achieving your goals. We all deserve the care & support to finish TB treatment & live a healthy life! #WeAreTB can help w/ the support