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dear god PLEASE let this also lead to a wider acceptance that treatment needs to include *improving quality of life* and not just "how to make them have baby"

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My reaction to one of the quotes in the scientificamerican article about this 🤨

Nanya Bzniz 💗 💜 💙@nanyabzniz.bsky.social

"reduce stigma and bolster research" because when it's "just" ovary-havers suffering, it's an icky problem that shouldn't be sorted, I guess. I'm gonna stuck to writing PCOS when I need to fill out med history, not like anyone who ignores that isn't gonna ignore it by a new name.

The NYT writer just posted that she’s looking to talk to people w PCOS. Wanted to make sure you saw because it seems like you’d be a great person for her to talk to

Originally got diagnosed in 1994. I got hormones "until you want a baby." Later got put on metformin but couldn't tolerate it. Infertility meds failed and they refused IVF, so I quit and got my endometrium nuked. Went diabetic, but the injectibles gave me pancreatitis so now I'm on a cocktail. Whee.

as I was discussing with @rahaeli.bsky.social the other day, the way the glp-1 hit my entire system and fixed like 8,000 seemingly disconnected issues I've struggled with for decades made it clear that my metabolic issues, my hormone issues, and my autoimmune issues were THROWING A RAVE TOGETHER.

Dayum that’s amazing and I am so happy that we are FINALLY researching this shit and I am so PISSED it’s the year 20fucking26 and we’re only just now finding this shit out!

and the way medicine so often completely ignores the metabolic aspect of PCOS (outside of yelling at people to lose weight so, again, they can Has Baby) is just so aggravating. LIFETIME OF RAGE BUBBLING OVER HERE.

as a fellow PMOS-haver, i'm so glad they're formally recognizing the fact that this is an *endocrine disorder* that affects multiple body systems, not just "your ovaries don't work good :( :("

fat phobia in medicine is out of this world i carry a few extra pounds, i am not and never have been worried about it having been skinny my whole life but now it feels like doctors obsess about any kind of extra weight people carry

YES. Tirzepatide improved my quality of life so much, but it isn’t FDA-approved for PCOS/PMOS so my insurance stopped covering it. Now I either need to come up with thousands of dollars or use a sketchy compounding pharmacy.

I hate this SO MUCH for all of us!!!!!!! (I have been on the same roller coaster. the direct pay thing is no longer like $600/month but it's still UNREASONABLE when we just want to fuckin' live!!!)

This might only be a bit reassuring, but the way PMOS, BMI, pregnancy etc are taught in the new gen of medical students (at least at my school) is very much in line with what you are saying. It might not be super helpful right now, but hopefully it gives some optimism for the future generations

i read this! and now i'm wondering if my hormonal bullshittery that makes my body, and i quote, 'fill up like a water balloon', is related! bc there are quite a few things i don't have, but do i have female-related hormonal bullshit

👀 Need to look into this some further, just to have a base to look at this again with my endocrinologist (as in looking up whether they also overhauled the diagnostic criteria)

I'm so glad the PCOS/PMOS diagnosis is available for younger women. In my day (said w/a creaky voice) I just had to suffer thru heavy irregular periods, acne, cramps & PMS. I did have 2 kids, but we didn't really use birth control. When I finally got my ovaries out they were the size of cat heads.

As a Perimenopausal woman with PCOS I"m like--absolutely no one really understands how these things work together...like no one and it's so enraging