Paulette Arochena

Paulette Arochena

@parochena.com

Freelance Artist 🇬🇧 #HumanArtist Creator and Owner of Parochena® 🎨Website: https://Parochena.com 🎨 💜All other links: https://beacons.page/parochena 💜 ✉️Enquiries: paulette@parochena.com

404 followers1.3K following1K posts

Companies who change 1 month rolling contracts to 12 month rolling contracts and state that you agree to the new terms and conditions just because you’ve continued to pay the direct debit you initially agreed to before the change, ARE SO PREDATORY!!!!! 😡😡😡😡

Well… wisdom tooth extraction attempt 1 swelling is down (which is good) but the facial nerve pain has returned, likely coz it’s not fully out yet at least… If the tooth isn’t the one that’s caused the pain, I also found a link with my CSF pressure being something that could have triggered it too.

Wisdom tooth extraction was attempted coz it looked sort of close to the nerve, so was more of a ‘well if this doesn’t help, we need to send you to a specialist) sort of thing.

Well… wisdom tooth extraction attempt 1 swelling is down (which is good) but the facial nerve pain has returned, likely coz it’s not fully out yet at least… If the tooth isn’t the one that’s caused the pain, I also found a link with my CSF pressure being something that could have triggered it too.

Well… wisdom tooth extraction attempt 1 swelling is down (which is good) but the facial nerve pain has returned, likely coz it’s not fully out yet at least… If the tooth isn’t the one that’s caused the pain, I also found a link with my CSF pressure being something that could have triggered it too.

If it’s the second, brain surgery already on the cards to try to aid the constantly rising CSF in skull… (in one area) But reading there’s also chances it might need to be in another area too. That has a 66% recurrence rate though. 🫠

Okay, but does anybody have any tips on how to concentrate if your nerves are screaming? Sometimes it gives me a few minutes of relief with some deep tissue massage, and then starts again.

Did some reading and apparently my set of conditions can mirror end stage heart failure despite my organs appearing okay. Cool cool. Things aren’t working at the cellular level so for example, my blood isn’t transporting enough oxygen, which makes them starved. Cool. 🫠

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Not terminal, which is fantastic. But it just feels like my very little tolerance window is getting smaller and smaller, and the traditional fixes make me worse.

Did some reading and apparently my set of conditions can mirror end stage heart failure despite my organs appearing okay. Cool cool. Things aren’t working at the cellular level so for example, my blood isn’t transporting enough oxygen, which makes them starved. Cool. 🫠

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But it wasn’t possible to take it all. So I’m now waiting for them to try again at a place with the correct equipment for some bone removal. Whilst the swelling and pain goes down from the first attempt. I am strong willed. I am stubborn, but boy is this current state breaking me.

It’s not even easy to fix. Chances are I might need a stunt in my brain. GP has referred me to haem as well because my blood isn’t doing the oxygen transportation thing… Meanwhile, my back up body systems are essentially in debt and have been for so long, that I’m just on reserve.

Did some reading and apparently my set of conditions can mirror end stage heart failure despite my organs appearing okay. Cool cool. Things aren’t working at the cellular level so for example, my blood isn’t transporting enough oxygen, which makes them starved. Cool. 🫠

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And yet… I’m here, with the WILL of what I once was. An athlete. But current health means even the littlest (I mean less than 10 mins) worth of movement means it’s making me crash with post exersional malaise (PEM). Which makes things REALLY hard to get out of this doom loop.

And it’s not even decent movement… it’s just basic movement. :/ And then my facial nerves started to throw extreme pain at me when I was eating and breathing, so dentist said maybe a wisdom tooth extraction might help…

Did some reading and apparently my set of conditions can mirror end stage heart failure despite my organs appearing okay. Cool cool. Things aren’t working at the cellular level so for example, my blood isn’t transporting enough oxygen, which makes them starved. Cool. 🫠

Mix with it the combination that the neurologist told me of my autonomic system management making my CSF fluid levels too high… I can see why he said things are ‘unfortunate’. I am S T R U G G L I N G

#artvartist time by the look of the timeline! Wish I was more productive this year… have been extremely frustrated with myself for not handling more… doing everything I WANT to do, that I have on my to do list etc etc, but my body has been seriously kicking my booty.

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LOL! But still… *sigh*. I am not a machine. I cannot ‘compete’ with the GenAi in the world that is negatively affecting every artist, so this is me. Just a little human who still hand paints stuff with a brain and a heart; pushing against the current that is heading towards a very steep waterfall.

#artvartist time by the look of the timeline! Wish I was more productive this year… have been extremely frustrated with myself for not handling more… doing everything I WANT to do, that I have on my to do list etc etc, but my body has been seriously kicking my booty.

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I’d like to be less harsh on myself, really. Every single part of me goes ‘YOU SHOULD JUST PUSH THROUGH EVERYTHING, WHY AREN’T YOU MANAGING?!’, but realistically, this WAS how little was managed even with the push. The body really lets you know when things are too much.

#artvartist time by the look of the timeline! Wish I was more productive this year… have been extremely frustrated with myself for not handling more… doing everything I WANT to do, that I have on my to do list etc etc, but my body has been seriously kicking my booty.

Still, managing to keep things somewhat moving in terms of my little biz when I’ve had too much fluid in my brain + everything else adding complications that means we’ve had to decide to manage the brain one as it’s more important.

(The management of other stuff is generally contraindicated when it comes to trying to manage the fluid…) I feel extremely weak and disappointed in myself overall; my world feels like it’s getting smaller and smaller, but looking back, at least there’s been enough to cover this little meme LOL!

So Facebook thinks it’s cool (and apparently ethical) and has started throwing me stories of people with some of my medical issues choosing assisted suicide… To each their own etc, but I’m extremely against being commercially targeted for this sort of thing.

Not that I ever had any faith that Meta chose the ethical option… Disgusted because in a more vulnerable state, this sort of thing has finite effects on people. NOT TODAY SATAN!🖕🏻😑

There’re young children in Gaza who are helping their friend by making a make-do prosthetic out of sewage pipes and string so that their amputee friend could play football with them & be less sad… Source: Al Jazeera If you spread hateful rhetoric against the disabled, kids do better than you.

Paulette Arochena reposted

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