Pinned
in the interest of the importance of telling our own stories, i have a request for #SocialScienceSky #ResearchSky: may i pick your brain on a line of qualitative questioning for data collection from my fellow autoimmune patients about the shortages that hit us so hard due to mis & disinformation?
Ive been reading @mariaressa.bsky.social’s book, where she says smthn to the effect of “tell your story or someone will tell it for you”—tho it took me a bit to grasp the totality of how HCQ was spectacularized in 2020, I do feel I can say I’ve been doin that since I struggled refilling my own meds.