Probably Prowerfox

Probably Prowerfox

@prowerfox.bsky.social

Punny, crafts, chronic illness, math, snow They/Them

670 followers473 following344 posts

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Introduction post! I'm Prower, probably wherever you have a local one. I am disabled since 2014 with ME/CFS, and in between dealing with that I fill my time with crafts, raising my kid, petting my dogs, and video games when my cognition allows.

Probably Prowerfox reposted

See you tomorrow One day at a time One day to see The sun shine brighter One day to look Out at the moon Being human ain't easy Life is a lot Thank you for staying You Are Enough 💚🌙 Words by myself, Art by Loryn Brantz 🥹 tinyurl.com/LorynMychal

Probably Prowerfox reposted

Regular reminder that when you go to things while sick, you are giving those germs to people with autoimmune disorders, you’re passing them to someone’s newborn, to someone’s elderly parents. It’s “just a cold” to you but it can and does severely impact countless people.

Johanna T 👻 📚@johannamation.bsky.social

I am b e g g i n g people to mask up at major cons, *especially* ones with 5-digit crowd sizes!! Lightbox this weekend was absolutely ravaged; I’m hearing of SO many attendees and exhibitors who got sick from doing the show this year!! Please stay safe out there! 🙏 🙏

Probably Prowerfox reposted

As a singer, wearing a mask and working has been challenging. Knowing I’m keeping my family and community safe is worth looking different and pushing through ❤️ #covidconscious #masking #maskchains #immunocompromised #maskup

Probably Prowerfox reposted

All the cold, cough, and flu products ads make me crazy. Take a snort of Afrin and go to your gig. Take some Alka Seltzer Plus and go on your date. Take Painquil and gather with your family. Take some flu meds and go to work. NO, TAKE A COVID TEST AND STAY YOUR ASS AT HOME! 😷

Probably Prowerfox reposted

The thing about mecfs is, it is inescapable. I am moderate now as opposed to severe. Some days I have good days and I think oh wow, is it really leaving? No, no it isn't. It is here to stay. Crashed today. My naive T cells are depleted, silly me for having hope

Probably Prowerfox reposted

“For most healthy young adults, these viruses don't really pose a threat, unless you're challenged with things like COVID.” I lived my first 46 years believing chronic illness didn’t pose a threat to me. And then COVID came for me. www.npr.org/2026/10/23/n...

npr.orgThe dormant viruses in all of us may help explain long COVID : Short WaveVirtually every human on Earth has a slew of different types of dormant viruses in our bodies. They are remnants of past infections and are—generally—harmless. Unless they wake up, which can be trigge...

Probably Prowerfox reposted

Repeated infections being a “fact of life” is a framing designed to make you think something is naturally inevitable rather than the expected result of a series of public health decisions designed with something other than your health and safety at the forefront.

Billy Hanlon@bhanlon15.bsky.social

NYT: 'How Bad Is Another Case of Covid?' “Every time there’s a wave, there’s another wave that’s going to follow with patients developing new onset long Covid,” said Akiko Iwasaki, an immunologist at Yale University www.nytimes.com/2026/10/19/w...

Probably Prowerfox reposted

The CDC might take away a key data source on Long COVID and ME. You have until this Tuesday, October 20, to tell them why that would be a mistake. The advocacy group Solve ME has put together a script that people can use to leave a comment: solvecfs.org/cdc-me-cfs-l...

Probably Prowerfox reposted

🚨 BREAKTHROUGH: Scientists have engineered a virus that invades and destroys glioblastoma one of the deadliest brain cancers while turning the immune system into a relentless tumor-killing force This could be a historic shift in cancer treatment.

Probably Prowerfox reposted

Such a fantastic interview from Beth Dobbin on the scourge that is #ME/CFS. How she managed to hit all the key points in a short conversation - the arbitrariness, the life-altering severity, the lack of support, and the incredulity faced by sufferers from medical establishment and society at large.

ThereForME@thereforme.bsky.social

1/2 Huge thanks to Olympic athlete Beth Dobbin for using her limited energy to share her story & raise awareness of the severely debilitating effects of ME & the lack of clear NHS pathways. www.bbc.co.uk/sport/athlet... We hear of situations like this all too often.

Probably Prowerfox reposted

🚨 BREAKTHROUGH: 13-year-old Camarria Williams from Chicago discovers a cancer-fighting compound in goose poop that slowed skin and ovarian cancer cell growth in a lab! Miss Williams said: ‘My mom, auntie and grandma have all had cancer, so it makes me happy that something I found could help'

Probably Prowerfox reposted

“Just having a conversation… can impact you afterwards. When I say impact you, you feel like you're dying basically.” Former Olympic sprinter Beth Dobbin describing post-exertional malaise the hallmark symptom of #ME.

Probably Prowerfox reposted

LBC: 'What is ME? Former Olympic sprinter Beth Dobbin, 32, now in bed for 22 hours a day due to condition' 'Former British 200m runner, who competed at Tokyo 2020 Olympics, says she now has chronic fatigue syndrome and myalgic encephalomyelitis' www.lbc.co.uk/article/beth...

lbc.co.ukWhat is ME? Scottish sprinter Beth Dobin says she is now in bed for 22 hours a day | LBCFormer British 200m runner, who competed at Tokyo 2020 Olympics, says she now has chronic fatigue syndrome and myalgic encephalomyelitis

Probably Prowerfox reposted

"The medical establishment is not merely passively neglectful toward people with ME/CFS. It is actively vindictive: A medical textbook doubles down on misinformation and stigma" by K. Johnstone mecfs.substack.com/p/the-medica... #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

Probably Prowerfox reposted

All the garden variety tests that your corner doc can order up will be "normal," despite you being debilitated for months or even years.

Jon Douglas@atranscendedman.bsky.social

Researchers reviewing brain imaging studies found that Long COVID can disrupt brain metabolism and communication between regions, even when MRI appears normal. PET scans may help explain persistent brain fog and cognitive difficulties. www.sciencedirect.com/science/arti...

Probably Prowerfox reposted

Anyone need a genuinely *nice* story for this Wednesday? "Takahashi thought the lost barrel might be adrift somewhere on the Bering Sea by now. Or, he imagined an 'Alaskan bear wearing my down jacket or like, playing my flute...'"

cbc.caB.C. man reunited with beloved flute, 5 years after it floated away down a Yukon river | CBC NewsJun Takahashi was stunned when he saw the online post: someone in the Yukon bush had found a canoe barrel full of his mildew-y camping gear, and his long-lost flute.

Probably Prowerfox reposted

Pretty key sentence. People have screamed “ITS ENDEMIC” at me since at least 2023, and A) it wasn’t and B) using endemic to mean “it’s fine now” is very, very stupid.

David Keegan@drdavidkeegan.bsky.social

COVID-19 hasn’t gone since 2020 and has always been airborne. We need a respirator mask mandate for everyone in healthcare settings. Not having one is causing it to spread more, and sicken and disable more. In room air filtration can also help. #abpoli #ableg edmontonjournal.com/news/covid-p...

Probably Prowerfox reposted

I keep seeing clips of a politician at a town hall saying “I think the responsible thing to do when you have something like the flu is to stay home and not get other people sick,” and I wish the next question had been: “what will you do to ensure everyone can do that?”

Probably Prowerfox reposted

'Severe long Covid associated with distinct oral and lung microbiomes' 'We hope our findings will stimulate more research into long Covid and in the future, we would love to see treatment trials to help people with this devastating condition" www.news-medical.net/news/2026101...

news-medical.netSevere long Covid associated with distinct oral and lung microbiomesA study of more than 700 people has shown that those with long Covid have distinct differences in the mix of bacteria that live in their mouths and lungs, according to a study published today (Monday)...

Probably Prowerfox reposted

Today @thesicktimes.org: Big feature by @khaoticaa.bsky.social exploring the immense challenges that trans people with Long COVID face in getting healthcare. "Neglect within healthcare and the queer community both contribute to the medical and social erasure of trans people."

thesicktimes.orgTrans people with Long COVID navigate a new “dark age” in trans health - The Sick TimesWe spoke with and surveyed dozens of trans people navigating gender-affirming care and Long COVID during Trump’s second term.

Probably Prowerfox reposted

Wow, better things are possible.

Miles W. Griffis@mileswgriffis.bsky.social

"For families maneuvering the often isolating reality of living a COVID-cautious life, especially those living with a chronic illness like Long COVID, finding an educational environment that doesn’t jeopardize a child’s or family’s health can feel impossible." thesicktimes.org/2026/10/09/h...