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@zencoffeebreak.com
(they/them) aro-ace β’ non-binary β’ long covid & ME/CFS β’ secular humanist #LongCovid #TransRights #SmashThePatriarchy Masto: zencoffeebreak@mas.to Just my posts: bsky.app/profile/zencoffeebreak.com/feed/noreposts
4.3K followers1.9K following1.8K posts
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Oh great an article about how to stay healthy when traveling⦠with zero mentions of wearing a mask. Public health is a joke.
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Respirators in healthcare facilities is the bare minimum we should do. The bar is so low when it comes to public health.
β @mark-ungrin.bsky.social believes N95 masks should be worn in all hospitals, the spaces where people are often the most vulnerable or have a higher chance of spreading disease. βwhy arenβt we doing more of this in health care facilities?If it doesnβt get inside you, it canβt make you sickββ
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I wish people would not just invoke PEM, but show us that they understand it⦠#LongCovid #ME
Researchers at University Medical Center GΓΆttingen studied 892 adults and found that people with Long COVID reported significantly worse sex lives, even after accounting for depression and other health factors. The impact was similar in men and women. link.springer.com/article/10.1...
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About 40-55 years since ME and CFS were first recognised and still no golden PROM* for PEM in ME/CFS, the hallmark symptom, with the vast majority of studies not using a specific PROM at all. What the hell has the research community been doing? Obsessing over "fatigue"! * FUNCAP & DSQ-PEM limited.
6) 54% of PROMs in LC or ME/CFS clinical trials mainly assess fatigue. In contrast, PROMs that specifically assess PEM are only used in 18% of LC and 5% of ME/CFS trials. Often the DSQ-PEM is used for PEM but it has multiple problems (e.g it doesn't consider symptom delay).
*sigh* we're never getting out of this hell, are we?
Researchers reviewed 105 Long COVID and ME/CFS clinical trials and found major gaps in how treatment success is measured. Only 18% of Long COVID trials assessed post-exertional malaise (PEM). Many relied on fatigue scores that miss disability & crashes. www.frontiersin.org/journals/pub...
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There are people who have never heard of long COVID. It's not rare. Medically speaking, it's very common. A complete failure of public health. My elderly father's caregivers had never heard of it until I told them about it. They were extremely dubious. One told me COVID has been gone for years. π·
every time i do blood work i have to explain why i'm out of breath from walking 50 feet and 4/5 times the person dong the draw has never heard of Long COVID. how is that possible
There are people who have never heard of long COVID. It's not rare. Medically speaking, it's very common. A complete failure of public health. My elderly father's caregivers had never heard of it until I told them about it. They were extremely dubious. One told me COVID has been gone for years. π·
is this a secure private sigil?
I made base-1353 encoding, so I can fit 256-bit values, like β96cca2a0c8a3263c74ef36274abf55f410d992034d16e8285811a9ad3fc59c13β, into short 26 character strings, like βαα³α£α§ααααααΈΖ«ΘΆΖα¨ααΆα΅α»Ρ«yααα«α«αͺα©β. (Also, I think these sigils are beautiful.) johnservil.github.io/sigil/play.h...
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'Nobody knows what to do': How Long COVID left Physics Girl searching for answers
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