πŸ†‚πŸ†ƒπŸ…΄πŸ†…πŸ…΄πŸ…½ πŸŒˆβ˜•πŸΈ

πŸ†‚πŸ†ƒπŸ…΄πŸ†…πŸ…΄πŸ…½ πŸŒˆβ˜•πŸΈ

@zencoffeebreak.com

(they/them) aro-ace β€’ non-binary β€’ long covid & ME/CFS β€’ secular humanist #LongCovid #TransRights #SmashThePatriarchy Masto: zencoffeebreak@mas.to Just my posts: bsky.app/profile/zencoffeebreak.com/feed/noreposts

4.3K followers1.9K following1.8K posts

πŸ†‚πŸ†ƒπŸ…΄πŸ†…πŸ…΄πŸ…½ πŸŒˆβ˜•πŸΈ reposted

And now back to my full time job, texting the word "stop" to every living Democrat.

πŸ†‚πŸ†ƒπŸ…΄πŸ†…πŸ…΄πŸ…½ πŸŒˆβ˜•πŸΈ reposted

β€œMassive CDC upward retroactive corrections” So, just like the jobs reports except the direction. πŸ™„

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πŸ†‚πŸ†ƒπŸ…΄πŸ†…πŸ…΄πŸ…½ πŸŒˆβ˜•πŸΈ reposted

Respirators in healthcare facilities is the bare minimum we should do. The bar is so low when it comes to public health.

β€œ @mark-ungrin.bsky.social believes N95 masks should be worn in all hospitals, the spaces where people are often the most vulnerable or have a higher chance of spreading disease. β€˜why aren’t we doing more of this in health care facilities?If it doesn’t get inside you, it can’t make you sick””

πŸ†‚πŸ†ƒπŸ…΄πŸ†…πŸ…΄πŸ…½ πŸŒˆβ˜•πŸΈ reposted

I wish people would not just invoke PEM, but show us that they understand it… #LongCovid #ME

Jon Douglas@atranscendedman.bsky.social

Researchers at University Medical Center GΓΆttingen studied 892 adults and found that people with Long COVID reported significantly worse sex lives, even after accounting for depression and other health factors. The impact was similar in men and women. link.springer.com/article/10.1...

πŸ†‚πŸ†ƒπŸ…΄πŸ†…πŸ…΄πŸ…½ πŸŒˆβ˜•πŸΈ reposted

About 40-55 years since ME and CFS were first recognised and still no golden PROM* for PEM in ME/CFS, the hallmark symptom, with the vast majority of studies not using a specific PROM at all. What the hell has the research community been doing? Obsessing over "fatigue"! * FUNCAP & DSQ-PEM limited.

ME/CFS Science@mecfsscience.org

6) 54% of PROMs in LC or ME/CFS clinical trials mainly assess fatigue. In contrast, PROMs that specifically assess PEM are only used in 18% of LC and 5% of ME/CFS trials. Often the DSQ-PEM is used for PEM but it has multiple problems (e.g it doesn't consider symptom delay).

*sigh* we're never getting out of this hell, are we?

Jon Douglas@atranscendedman.bsky.social

Researchers reviewed 105 Long COVID and ME/CFS clinical trials and found major gaps in how treatment success is measured. Only 18% of Long COVID trials assessed post-exertional malaise (PEM). Many relied on fatigue scores that miss disability & crashes. www.frontiersin.org/journals/pub...

πŸ†‚πŸ†ƒπŸ…΄πŸ†…πŸ…΄πŸ…½ πŸŒˆβ˜•πŸΈ reposted

Jon Douglas@atranscendedman.bsky.social

Researchers at University Medical Center GΓΆttingen studied 892 adults and found that people with Long COVID reported significantly worse sex lives, even after accounting for depression and other health factors. The impact was similar in men and women. link.springer.com/article/10.1...

πŸ†‚πŸ†ƒπŸ…΄πŸ†…πŸ…΄πŸ…½ πŸŒˆβ˜•πŸΈ reposted

Also, studies show that when we improve a space or system for the disabled, the benefits actually spread to everyone. You’re not just helping yourself later; you’re helping yourself right now.

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πŸ†‚πŸ†ƒπŸ…΄πŸ†…πŸ…΄πŸ…½ πŸŒˆβ˜•πŸΈ reposted

wtf. that's so not ok!! release her

πŸ†‚πŸ†ƒπŸ…΄πŸ†…πŸ…΄πŸ…½ πŸŒˆβ˜•πŸΈ reposted

There are people who have never heard of long COVID. It's not rare. Medically speaking, it's very common. A complete failure of public health. My elderly father's caregivers had never heard of it until I told them about it. They were extremely dubious. One told me COVID has been gone for years. 😷

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every time i do blood work i have to explain why i'm out of breath from walking 50 feet and 4/5 times the person dong the draw has never heard of Long COVID. how is that possible

Andrea Is Sick of Long Covid@andreastudiescovid.bsky.social

There are people who have never heard of long COVID. It's not rare. Medically speaking, it's very common. A complete failure of public health. My elderly father's caregivers had never heard of it until I told them about it. They were extremely dubious. One told me COVID has been gone for years. 😷

is this a secure private sigil?

zooko2.bsky.social@zooko2.bsky.social

I made base-1353 encoding, so I can fit 256-bit values, like β€œ96cca2a0c8a3263c74ef36274abf55f410d992034d16e8285811a9ad3fc59c13”, into short 26 character strings, like β€œα“’α”³α£α‹§αŽα‘™α–œα‹Œα™”αΈΖ«ΘΆΖƒα’¨α‹ŠαŒΆα™΅αŠ»Ρ«yααŽ‰α‘«α–«α˜ͺᒩ”. (Also, I think these sigils are beautiful.) johnservil.github.io/sigil/play.h...

πŸ†‚πŸ†ƒπŸ…΄πŸ†…πŸ…΄πŸ…½ πŸŒˆβ˜•πŸΈ reposted

This is the best article I've ever read describing the LC experience. It was helpful when I needed my family to understand what I was experiencingand couldnt find the words

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πŸ†‚πŸ†ƒπŸ…΄πŸ†…πŸ…΄πŸ…½ πŸŒˆβ˜•πŸΈ reposted

Reposts are not only endorsements, they are a binding contract between myself and the author to die for each other if need be.